How much to go up? : Brain fog, obviously. Tsh... - Thyroid UK

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How much to go up?

haggisplant profile image
7 Replies

Brain fog, obviously.

Tsh 6.55, currently on 125 t4. Gp letting me decide how much to go up. I was slightly over replaced and getting symptoms about a year ago. Periods returned sporadically after a dose drop and I’ve not been able to get it under control since.

At Xmas tsh was about 2.5 in 125 and I wasn’t feeling great. I’m surprised it’s that much but I’m wondering if it’s because my cycle has now fully returned.

My gut says 25 BUT that would be the highest I’ve ever been on. We’ve settled on 125 x 3 and 150 x 4, because I used to be on that pre children. But I’m now worried it’s not enough.

I definitely don’t want to be over replaced again though. Around 1 would be ideal!

Any thoughts? I’m lucky not to need t3 as long as I can get it balanced!

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7 Replies
SeasideSusie profile image
SeasideSusieRemembering

haggisplant

With TSH that high, I'd be increasing Levo by 25mcg and retesting in 6-8 weeks. But please don't make the mistake of dosing by TSH, it's not a thyroid hormone, the FT4 and FT3 are thyroid hormones and these are what's important, were these tested this time?

Most people need FT4 and FT3 in the upper part of their reference ranges (if that is where they feel well). It's over range FT3 that means we are overmedicated.

haggisplant profile image
haggisplant in reply toSeasideSusie

No, I know but for me it’s a guide and based on 6.55, which is high, I’m thinking it should be 25.

haggisplant profile image
haggisplant in reply tohaggisplant

T4 and t3 not tested as the Gp did it. I can’t afford a private test unless it’s absolutely necessary. Was delighted vit d was tested, I’m taking 3000-5000 plus vit k a day as breastfeeding.

SlowDragon profile image
SlowDragonAdministrator

Just testing TSH doesn’t tell you much

Essential to regularly retest vitamin D, folate, ferritin and B12

These need to be optimal

What vitamin supplements are you currently taking

Suggest you increase as you suggested and get FULL Thyroid and vitamin testing in 6-8 weeks

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

If/when also on T3, make sure to take last third or half of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus ultra vitamin

medichecks.com/products/thy...

Medichecks often have special offers, if order on Thursdays

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

haggisplant profile image
haggisplant

I’m guessing ferritin is ok as I’m supplementing and was tested in Oct, it was 65. I’m best at 80. vit d is 74 b13 is v good

Angel_of_the_North profile image
Angel_of_the_North in reply tohaggisplant

So vit D is lower than optimal, but you should be able to increase it by getting outside in the sun

Jodypody profile image
Jodypody

Do the 25 and keep checking in how you feel. Childbirth places a stress on thyroid so that’s probably why you need that increase. It was after my second child I finally got my diagnosis after nearly passing out behind the wheel!

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