Update just wondering: Hi everyone I spoke to a... - Thyroid UK

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Update just wondering

pet-lamb profile image
6 Replies

Hi everyone I spoke to a different receptionist today and there going to mail me my results by post there also helped me get on to their online system to check blood results etcetera .But I've had to request access to them through the doctors so waiting to hear about that .although there shouldn't be a problem I always collect my results from the surgery.

Today the receptionist told me the nurse hadn't taken thyroid bloods it was a full blood count and it's abnormal but expected and my white blood count is 15 and lymphocytes 9.96 so just under 10 which is a steady rise from December but that's because of the Cll .

I'll post pictures of I can when they come thanks again for all your help .

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pet-lamb
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6 Replies
Fruitandnutcase profile image
Fruitandnutcase

That’s a good result isn’t it. Not sure what Cll is though.

pet-lamb profile image
pet-lamb in reply to Fruitandnutcase

Fruitandnutcase hi. yes I'm happy there going to send me the blood test results . Cll is chronic lymphocytic leukaemia .

Lora7again profile image
Lora7again

As I said on your other thread I can log into my GP services to read my results and records so that will be much easier and quicker for you than waiting for a print out. I usually have a private blood test because my GP surgery only tests the TSH even though I have Graves' disease written on my notes. I have actually now given up with asking them to help me with my thyroid disease because they don't seem interested even though I was admitted to hospital last July with a thyroid storm. I was advised by the hospital to see my GP for a more detailed test and all I got was the TSH with N/A put by the side of it. So I then paid for a private blood test to get a more accurate result. I am sure you will be treated differently because of the seriousness of your condition.

pet-lamb profile image
pet-lamb in reply to Lora7again

Hi Lora I have the ability to log in to my doctors website for booking appointment etcetera but it's not giving me access/permission to check test results,I've asked for this and I'm waiting for a reply .

I'm also on the coded register because of the Cll but can't access that either yet!

I'm not sure what coded is but think it means vunrable.

I don't think they'll treat me differently because of my Cll in regards to my thyroid disease there not really interested in it and I had to fight them even for treatment!

But I have definitely had more help with other problems due to the cll.

I can't afford to pay for private tests just yet but have thought about it x

Lora7again profile image
Lora7again in reply to pet-lamb

A friend of mine became hypothyroid after having treatment for a melanoma in his mouth. Have you always had thyroid disease or did your cancer treatment cause it?

pet-lamb profile image
pet-lamb in reply to Lora7again

I had graves disease when I was about 40 then in my 60 s I found I had under active thyroid disease and it was auto immune hashimotos .

I'm on watch and wait for my Cll it's very indolent and early days I was just diagnosed in November last year .

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