My GP is no longer prescribing my T3 Liothronine.
This morning I agreed to a private prescription to get from my usual source at my pharmacy next to my surgery. I have now later been told that my GP will no longer prescribe it at all and to get in touch with my Endo.
Is this allowed to happen? I would appreciate advice.
Marfit.
GP should not alter T3 prescription - should refer you back to endocrinologist BEFORE even considering changing T3 prescription
pulsetoday.co.uk/news/clini...
I found the cynicism within the GP comments striking. Perhaps the one giving the example of the cost of Levothyroxin against the cost of Liothyronine yearly should be asking why the NHS is willing to pay that instead of procuring it from countries where its still costing pennies! Perhaps they should get some knowledge before putting pen to paper! Clueless!
Hi SD, I had a look on the link you provided and whilst there, saw another link to "NHS overcharged by £100m on 'low value' liothyronine, finds watchdog". I couldn't see the whole document without being logged in. I wondered if you had access to the Pulse web ? If so, could you provide a link to that article as well. TIA
Here ..from 2017
Still no action taken
pulsetoday.co.uk/clinical/c...
Media coverage
thyroidtrust.org/media-cove...
From 2016
mjauk.org/wp-content/upload...
dailymail.co.uk/news/articl...
medscape.com/viewarticle/90...
theyworkforyou.com/search/?...
gov.uk/cma-cases/pharmaceut...
Thank you
They shouldn’t take you off T3 without tests to prove you don’t need it. Have you got your latest tests before being taken off T3 and now a test without T3. You could look at the difference in test results and your symptoms too. Put this forward to your GP and Endo. Have you had the DIO2 gene test to see if you are a poor converter. This helped sway my NHS Endo along with test results. Although the NHS do not do gene testing but a positive DIO2 gene test can only help your argument. But then again not all poor converters have this gene fault. Also they needed to reduce or help manage your T3 doses prior not to just removing altogether.
Hi Marfit,
I'm suprised that they've only now decided to take you off Liothyronine.There was a big drive a couple of years ago when the cost of liothyronine shot up, and all the doctors were trying to get people off it.When my doctor mentioned it to me I agreed to trial thyroxine only (to keep her onside) on the understanding that if it didn't agree with me then I could go back on the liothyronine. I saw the Endo first before doing this, you need to make an appointment with your endo, you will need to see him/her as they are the only ones who can prescribe it now. Anyway, I changed to thyroxine only for a few months, and it didn't work. I have been on liothyronine for 20 years since thyroid removal and my body had got so used to it that I couldn't tolerate a higher dose of thyroxine than the 75mcg which I was taking.More thyroxine was giving me palpitations and pushing up my blood pressure to dangerous levels, I said to my doctor I felt I might have a stroke or heart attack! So she agreed to put me back on the liothyronine.She said she just had to justify why I was on it. So you probably have to go through the same procedure,and once this is done then hopefully they will leave you alone!
Hey there Marfit
I thought your endo was covering your prescription - although it meant you had to go to the hospital to collect it - did I get that wrong ?
Can I ask you which CCG you are under? Each CCG unfortunately has its own view on T3 prescribing, despite several pieces of national guidance that say a minority of patients do need it.
It is corrupt pharmaceutical companies & government officials who are controlling price of medicine very high, so only rich can afford it. I bought T3 from India 4 years ago price of 25 mcg 30 tablets were £9.00 in India.
Now you cannot buy them in India but freely available on line at £35 per pack for same tablets in U.K.
I now get mine from Turkey 25mcg -100 Tablets for £4 courtsey of friends who were on holiday in Turkey last summer. You can buy them on line in UK for around £10 to £15.
I wrote these details to our Health Minister department. They replied saying they do not understand what I am talking about.
I now hope to find more information on who to contact, mainly department who purchase these T3 & T4 hormones for NHS and may be take them to court to justify choosing their supplier who charges astronomical prices when one has choice to buy from wholesaler at much lower price.
Any one who can supply more info on this issue????
God bless all of us in fighting this illness together. Ameen
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