Eeeek conversation with GP!: I`ve been on 75 mcg... - Thyroid UK

Thyroid UK

137,721 members161,505 posts

Eeeek conversation with GP!

Joyliz profile image
6 Replies

I`ve been on 75 mcg of levothyroxine for just over 2 weeks and found some very small and good changes. But the overwhelming tiredness, joint and muscle aches have out weighed them by far. After RAI 2 months ago, I went under-active and my body seems to be telling me that the doses of Levo, just hasn`t kept up with the symptoms. It was only 4 weeks ago that I was taking our dog for short walks- now I can hardly be bothered to get out of bed.

I posted earlier asking if Nutri supplements may help me, and I`m still interested (TY)

However, since that post I managed to speak to the duty GP who has raised my Levo to 100 mcg starting tomorrow.

He began telling me my last results were borderline TSH 6.00 (0.35-3.50) and said my treatment will depend on whether I improve on Levothyroxine- said with the implication that if not `I`m in normal range so I`ll be ok`

Now I am really panicking.....as I cannot live with these debilitating symptoms.

I realize it`s still early days for me and the Levo needs a chance to work - but does my explanation of the Levo not keeping up with my crash into hypo-ness make sense?

Any advice please.

Many thanks, you have all been so helpful.

JLiz

Written by
Joyliz profile image
Joyliz
To view profiles and participate in discussions please or .
Read more about...
6 Replies
shaws profile image
shawsAdministrator

Change your GP. You've had your thyroid gland knocked out altogether, so he should be aiming for a low TSH of around 1 or suppressed TSH. A TSH of 6 is terrible, no wonder you are feeling so unwell. He has to increase. Email louise.warvill@thyroiduk.org for a copy of the Pulse article by Dr Toft. Read question 6 in particular and send a copy to your GP before your appointment to discuss this with him. He doesn't know how best to treat you.

Joyliz profile image
Joyliz in reply to shaws

Thank you shaws

I`ll email Louise and go armed to my next doctor`s appointment. A small saving grace is that this wasn`t my usual GP, hopefully mine will help and not hinder.

I`m not pleased I`m not well, but so relieved that you can understand my feeling dreadful with my TSH at that level. I really don`t know how I`d have coped without you all on here.

I`m now on a mission, but I`m hoping the increase of thyroxine helps.

I have my follow up appointment from the RAI in January, so hopefully I`ll get better help there.

JLiz

shaws profile image
shawsAdministrator in reply to Joyliz

Yes, I hope you slowly feel much better. We have to gradually work up to a dose we feel well with a co-operative GP. If not, we have to read and learn how best to get our hormones back to a good level

Joyliz profile image
Joyliz in reply to shaws

Hi again shaws

I tried that email twice for louise but it didn`t work?

I looked on Thyroid UK but couldn`t find her on there.

thanks

JLiz

shaws profile image
shawsAdministrator in reply to Joyliz

Did you send the message from your own email address? Did you forget the . (dot) between louise.warvill@thyroiduk.org

Joyliz profile image
Joyliz in reply to shaws

Yes I set it from my email, perhaps I missed the dot. Thanks, I`ll try again.

You may also like...

Advice for next GP conversation please

worded as if not currently medicated) I take 100mc of Levo. (Going by my weight alone, I think it...

T4 Conversion or not T4 conversion

of Donald J. Trump. Anyway, my TSH (taken a week ago) was 0.03, my FT4 was 0.7ng/dL -0.8-1.8...

Conversion

increase T3 7.5mcg (2,5 3xper day as had increased hypo symptoms feeling cold,fatigue. However...

Conversion problems?

I have a drs appt on Monday to review my Levothyroxine dose, I’ve had bloods done through medichecks

Is this poor conversion?