Inflammation or T3 dosage

[Simplyred57]

I posted last week that I had developed a bad burning pain sensation in my upper right arm, now in my left also, I spoke to my GP on the phone and he prescribed Celebrex anti inflammatories , I have been taking it for about a week with little improvement, it feels deep inside my arms as if an elastic band is too tight, has anyone had anything similar that is thyroid related ? My Gp suggested bloods as soon as we are of lockdown. Just looking for some relief if anyone can help please . My T4 and T3 were both in the upper part of the ranges when they were do a month ago.

[ladylou_uk]

I'm not sure if this is any help, I used to suffer from terrible pains in my joints, muscles and bones and magnesium really helped. Before that I was using tiger balm and regular brufen and paracetamol to get relief.

I hope you can get some relief from it soon, I know all to well how it feels to be stuck with pain x

[Simplyred57 in reply to ladylou_uk]

Thank you , I’ve started taking magnesium in the hope it will help , it’s so draining being in pain all the time , I’ve been furloughed from work thank goodness as I don’t think I could have worked feeling like this 😩

[a1glenn in reply to Simplyred57]

I totally understand. Going through muscle pain and weakness. It is frustrating. T3 gave me relief in the past but it also cause weight gain for me.

[LivingWithHT]

I can think of 3 reasons you could be feeling this pain in your upper arms.

1) You are a side sleeper that often sleeps on her/his right side, thus regularly putting a lot of pressure on your right shoulder and upper arm; this can cause a muscle cramp. If this is the case, switch sides every other day or try sleeping on your back for a while.

2) You have trapped gas and it has made its way up to your shoulders and upper arms...and yes, it can travel that far. Try taking simethicone tablets (only simethicone, not calcium carbonate or any other ingredients that tend to be in gas relief pills.) Simethicone helps relieve the trapped gas.

3) You have low stomach acid (as most people suffering from hypothyroidism do), which can cause cause indigestion, heartburn, constipation, trapped gas...and all that can make your neck, shoulders and upper arms stiff from physical discomfort. For this, a Betaine HCL + Pepsin supplement should help, or diluting a bit of apple cider vinegar and lemon juice in water and drinking it.

Reasons 2 and 3 may be because your T3 dosage is not high enough. Not being optimally medicated can lead to such discomforts.

[Simplyred57 in reply to LivingWithHT]

Thank you I will have a look at the supplements , I would never have though of gas or low stomach acid being the problem, but definitely worth a try this has been going on for weeks now and it’s wearing me down 😩

[greygoose]

Have you had your B12 tested. Low B12 often causes burning pains.

[Simplyred57 in reply to greygoose]

Yes I had it done in February and

serum B12 was 474ng/L( 190-910)

serum folate 12.1ng/ml ( 3.3-99999.0 )

Vitamin d - 88nmol/L ( 50.0 - 99999.0 )

I supplement both .

[greygoose in reply to Simplyred57]

It was still a bit low in February. Might have something to do with it.

[Simplyred57 in reply to greygoose]

I am supplementing as per seaside susie recommendation, so will carry on and hopefully get some relief, do you think it could be my T3 needs increasing Im on 12.5 along with 100 thyroxine ?

[greygoose in reply to Simplyred57]

Well, that's only a very small dose of T3. When was it last tested? And, what was the result?

How much B12 are you taking?

[Simplyred57 in reply to greygoose]

Hi greygoose I’m taking 500yg of b12 Cytoplam a day plus Thorne vitamin B complex one a day .

Yes my thyroid bloods were done in February also and the results were T4- 20 (9-23)

T3 - 6.1 ( 3.5 - 6.5 ) taking 100 thyroxine & 12.5 T3

I had to reduce from 18.75 in November last year as my T3 was 7.5 and although I felt well , I was having palpitations.

My blood test after 6 weeks on reduced dose brought it down to 6.9 , and now I’m at 6.1 , do you think I should increase my Thyroxine or T3 . My Endo appointment has been cancelled for next month so would really value your advice. Thank you.

[greygoose in reply to Simplyred57]

I’m taking 500yg of b12 Cytoplam

I've no idea what you're telling me, there. What is Cytoplam? Google didn't know, either. And, you're taking 500 mcg? 500 mcg B12 isn't much.

Has reducing your T3 stopped the palpitations? Going by those results, it doesn't look as if you should increase anything. Do you have Hashi's?

[Simplyred57 in reply to greygoose]

Sorry the make is cytoplan B12 methylcobalamin& adenosylcobalamin is says 500 of each and (a backward y and a g ) if that makes sense ?

Yes reducing my T3 stopped the palpitations within a week , no I don’t have Hashi’s I Had a full medichecks and antibodies were fine .

[greygoose in reply to Simplyred57]

Ah, µg. It just means mcg. So, if it's 500 mcg of each, that adds up to 1000 mcg, which is more like a normal dose.

Just because you have one negative antibody test, it does not mean you don't have Hashi's. 20% of Hashi's people never have raised antibodies. But, Having such a high FT3, on such a small dose of T3 is rather suspicious. I think you really need to be retested before increasing anything. However, given the circumstances, you could try raising the T3 slightly, and see if things improve, or if the palpitations come back.

[Simplyred57 in reply to greygoose]

Thank you so much for your guidance, I was also wondering why my levels are high on such a low dose, even when I reduced they stayed quiet high , I will try a small increase to see if it helps , and maybe need to assume I have Hashi and look after myself as if I have , I react very quickly to dose increases or decreases so will give it a go to see if it helps x

[greygoose in reply to Simplyred57]

You're welcome.

[helvella Administrator Thyroid UK in reply to Simplyred57]

This document might help you when posting measurements (e.g. dosages):

dropbox.com/s/sgv815w8hkexl...

[Hidden]

Hey Simplyred57, I had this pain in my left arm mainly, burning and sometimes a lot of pain. It only happens when my dose is off, recently had the burning pain when I lowered Levo, now it stopped since I upped it back where it was. All my vits are currently optimal, so I know it's not that.

[Simplyred57 in reply to Hidden]

Thank you I’m going to do a small of T3 increase to see if I helps , I will know pretty quickly as I react quickly to any increases or decreases in medications 🤞

[Hidden in reply to Simplyred57]

Absolutely, you will see quickly enough, but I know this symptom too well! Hopefully it goes well for you!

[Simplyred57 in reply to Hidden]

Thank you I do hope so too ?

[Batty1]

I have similar issue in one of my arms it hurts in one area between my shoulder joint and elbow, I’ve developed this about 2 months ago but boy does it hurt to lift my arm or try to pick up or open things. I do go back to my Rheumy in July and I’m going to press her about this I also have psoriatic arthritis and no thyroid and honestly it’s hard to say which one is the culprit or if it’s something new.

[Simplyred57 in reply to Batty1]

I have arthritis in my fingers and had a knuckle replacement in October last year , but not rheumatoid thankfully, I hope you get some answers are you gluten free ?

[Batty1 in reply to Simplyred57]

Knuckle replacement...ouch

[Simplyred57 in reply to Batty1]

Yes would never have it done again 😩