I had a total thyroidectomy last 2018 and i'm very ill at this time. Feeling weak and tired all the times. Anybody can help me please.
Thyroid problem after thyroidectomy feeling ill... - Thyroid UK
Thyroid problem after thyroidectomy feeling ill always
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jovon
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As scrumbler says jovon we need results and more info to offer advice. We feel very ill when our thyroid hormones are out of balance.
Hi. I am taking levo 100mcg at this time but really i felt weak and tired all the times. Cannot sleep and have also shortness of breath.
Hello Jovon
Welcome to the forum.
Can you tell us why you had a thyroidectomy.
Was the reason cancer, or nodules, a goitre or maybe Graves Disease. ?
Are you still under the hospital for monitoring and medication or has your GP taken over these responsibilities ?
I also do not have a thyroid and managed by my doctor and had 6 monthly and then yearly blood test showing, as far as I am aware just TSH blood test results.
You are entitled to copies of your blood test results, and that is basically a bench mark for the people on here to look at and to try and establish if your results look ok for you.
We also ask for vitamin and mineral levels, and for ferritin, folate, B12 and vitamin D to be tested. Your doctor may have all these results and you may just need to ask for copies.
Alternatively you can arrange to have your bloods tested privately. The two main private companies, are Blue Horizon and Medichecks, and depending upon where you are in the country, they can even visit you at home to take your bloods for you, and there is more information on the Thyroid uk website, should you wish.
Once you have current blood test results of TSH, T3, T4, folate, ferritin, B12 and Vitamin D and the antibodies, post the results and ranges back on here and people better able than me will talk you through the results and what it all means.
Only latest TSH i have now 0.97. I am taking cobal B12 daily. Other than that nothing.
Last 2 years ago i was diagnosed of swelling goiter. When biopsy tested it was benign but can be cancerous as per doctor. So underwent total thyroidectomy. Since that time my health become bad and now coming worst everyday feeling weak, tired, shortness of breath and sleepless. Cannot sleep
As of this time im living here Saudi Arabia working.
Ok then, I 'm sure living in Saudi Arabia has it's challenges -
So, do you have medical cover or can you pay to have these blood tests as detailed above expedited ?
Without further information it's difficult knowing anything - when you discussed your symptoms with the doctor what did he suggest, and did he run some more detailed blood tests ?
Do they accept insurance?
I have no idea - if you're on contract over there, sometimes medical insurance is included in the salary package.
Yes salary package type. Everytime i go doctor i show my insurance card. How about if Cash is that acceptable and how much. After you get the full result of my blood test as you recommended. What happen next
I don't know the details of your medical/ salary package and so can't answer this question.
If you can get the blood test actioned, as detailed, post the results and ranges back on here, in a new post and people better able than me will talk yo through the results and recommend anything that needs to be actioned.
We can help you understand the blood test results and suggest what you need to do next.
Ok thanks i will do to see my doctor. Did you recieve blood test result sent to your email?
No, we have only received a TSH reading of 0.97 :
Some glucose readings and know you are supplementing B12 and that you are on Levothyroxine x 100/125 daily for hypothyroidism following a thyroidectomy about 2 years ago:
Do you have Whatsapp. I can send you there.
No I don't have What's Up - this website is all we have and everybody sees every post, question and answer.
Where are you from?
Actually all my tsh t3 and t4 are norma. But why im still getting this kind of ill.
Jovon, You need to post your most recent thyroid and vitamins labs with the ranges provided from lab paperwork. The ranges are usually after the results.
Are you taking 100mcg thyroid meds one day and the next day taking 125mcg?
How long have you been on these two thyroid meds and rotating them?
Why are you on 2 different thyroid meds?
Hi Batty1. I was on 125mcg last year, then i switch to 100mcg this year being reduce the dosage as per doctor advice.
This is the Uk
Actually my tsh t3 and t4 are all normal but why im still getting this kind of feeling unwell.
Well what are your T3 and T4 ?
Sorry I dropped out just now - my laptop cut out :
Last 2 months ago i had T3 0.91 T4 11.27 and TSH 1.048
But lately the latest last 2 days only my TSH was 0.97. T3 and T4 not included
OK what were the ranges for the T3 and T4 ?
and should both be the Free T3 and Free T4 results.
TSH: 1.048 ul/ml
T3: 0.91 ng/ml
T4: 11.27 ug/dl
There should also be some numbers alongside these which are the ranges -
Free T3 ranges are generally around 3.1-6.8 and Free T4 range is generally around 12-22.0 :
I think these results are Total T3 and Total T4 results - do you have the ranges ?
It is better to work things out on Free T3 and Free T4 results and ranges ?
Can you look for these as well please.
Please add the ranges on Ft4 and Ft3 results
Different laboratories have different ranges
Eg
Ft4 11.25(12-22)
Ft4 11.25 (9-19)
T3: 0.91 ng/ml. Range: 0.87 - 1.78
T4: 12.27 ug/dl. Range: 6.10 - 12.20
TSH: 1.048 ulU/ml. Range: 0.380 - 5.330
Sorry my T4: 11.27 ug/dl. Range: 6.10 - 12.20
So your Ft4 is high , but Ft3 very low
Was test done soon after taking levothyroxine?
Or was last dose levothyroxine 24 hours before test.
Ft4 is 84% through range
But Ft3 is only 5% through range
Helpful calculator for working out percentage through range
So you are extremely poor converter of Ft4 to Ft3
Important to test vitamin D, folate, ferritin and B12 regularly
These need to be at good levels for good conversion
But many people, especially after thyroidectomy do need addition of small dose of T3 alongside levothyroxine
20% Patients with no thyroid can not regain full health on just Levothyroxine
ncbi.nlm.nih.gov/pmc/articl...
This was done after 24 hours taking my levothyroxine. I tool levo at 4am then labtest done at 10am.
4am to 10am is only 6 hours
Or did you mean 4am last levothyroxine and bloods 30 hours later
Next time adjust time of last levothyroxine to be 24 hours before blood test.
Ah ok. So what i will do is not to take my regular 4am levo prior to my labtest. From how many labtest have done already im so used this way.
We recommend that ALL thyroid tests are done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
If you normally take levothyroxine at 4am
Eg if test Monday 8am morning.....on Sunday morning don’t take levothyroxine until 8am
Monday 8am have blood test. Take levothyroxine dose straight after
Ok next test i will do. Thanks. How can i manage my health now no good as really ill all the times
Is there any medicine aside from levothyroxine?
I need help badly
I don't suppose you could source some NDT? or are you unable to take it because of where you live or other reasons. A lot of people without a thyroid do better on NDT. There is also Thyro -Gold which is bovine NDT from the US.
Hi Lora
Thats my problem. I want to try NDT but im living here Saudi Arabia and its hard to find the source. Its not allowed here.
Many people are forced to acquire T3 (liothyronine) or NDT themselves
Most NDT is from pigs, but some is from Beef
Which one is good. From pig or beef.
I am prescribed T3 liothyronine. It’s more flexible on being able to adjust tiny split doses of T3 alongside levothyroxine
I thought living in Muslim country pig thyroid would be disapproved/banned on cultural grounds ?
I can take pig thyroid when i go back my country Philippines as no prohibited there.
From another clinic last 3 months ago. TSH: 1.52 uIU/ml normal
Free T4: 1.54 ng/dl high
Free T3: 2.50 pg/ml normal
Hi. I am taking levothyroxine 100mcg daily. Sometimes 125mcg but still my condition bad. Feeling so weak and tired and even i have shortness of breath.
My TSH was 0.97
Ok, have you discussed these symptoms with your doctor and were some blood tests run ?
Is your doctor managing you B12 or are you doing this yourself ?
Do you live with someone ?
I have regular visit doctor every 3 months to see my bloodtest and all normal except this latest my glucose in blood showed 159 and my glucose in urine showed +4. My TSH 0.97
Well, I don't think everything can be normal for you as you say you are very unwell.
We really do need a full thyroid blood test panel to include TSH, T3, T4, ferritin, folate, B12 and Vitamin D plus the antibodies and inflammation markers as previously detailed.
Both Medichecks and Blue Horizon do this test if your doctor hasn't.
Normal doesn't actually mean anything in the overall scheme of things, we need the results and ranges to be able to identify why you feel as you do.
I have sent you the blood test result in your inbox.
We need a thyroid blood test panel to include TSH, T3, T4, ferritin, folate, B12 and
vitamin D - a TSH blood test in isolation means nothing and I can't comment on the
glucose numbers as I don't know enough about that speciality.
What has the doctor done to try and help you ?
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Im living alone here but have friend by side.
If you are getting no help from your doctor, can your friend help you and take you to a different doctor, hopefully a specialist in endocrinology.
No they can't. I am working my own.
My tsh 0.97
If these breathing difficulties are a new symptom I suggest you talk urgently to the doctor as currently the whole world is experiencing a pandemic - Covid 19 - and some of the main symptoms are a high temperature, a cough and breathing difficulties.
I have this breathing difficulties before the covid 19 appered.
Your Total T3 is very low at under 4% through the range compared to your Total T4 which is at around 85% through the range, and from everything that I read I believe these two vital hormone need to be balanced and most people feel well when both T3 and T4 are both in the upper quadrants of the ranges.
I'm not too conversant with reading blood test results, especially Total T3 and Total T4 so shall wait and read and learn what the Administrator suggest you do.
Your conversion can be compromised if your vitamins and minerals are not optimal, so suggest you still get the ferritin, folate, B12 and vitamin D checked out.
Some people need to have both T3 and T4 thyroid hormone replacement prescribed in order to bring both the T3 and T4 into balance and the patient an acceptable level of wellbeing.
How can i balance my T3 and T4
How can i balance my T3 and T4
Good morning to you -
Levothyroxine is synthetic T4 - :
Liothyronine is synthetic T3 - :
I don't know if you can get Liothyronine in Saudi : It is a question for your doctor :
There are also tablets that contain a fixed amount of T3 and T4 - your doctor should advise you there as to what options you have :
It is also imperative that your vitamins and minerals are optimal and that your core strength is strong to help you through this phase :
You need medical advise there, now, and if your doctor doesn't know you need to see someone else with knowledge of thyroid health issues :
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