Tight throat

[Contra21]

On and off 2 week of a tight throat, feels muscular weird but is this common?im on levo 7 years and had rai.

[cazmania7]

I’ve had all kinds of weird throat symptoms over the years. Even had a camera down my throat. At one point diagnosed with muscle tension dysphonia I think it was called. Started before my RAI and continues. Stopping smoking helped but four years on it’s still pretty bad. Coughing stuff up. Speech is not normal. Affects the way I express myself. No fun!

Stay safe and well. X

[Contra21 in reply to cazmania7]

I had an endoscopy and colonoscopy in 2019 but don’t cough up anything speech is fine but it’s so annoying. So not thyroid related...?

[shaws Administrator in reply to Contra21]

This is a list of symptoms and there are some re throat. within it.

thyroiduk.org.uk/tuk/about_...

[Contra21 in reply to shaws]

Doesn’t really all it says is lump in throat. I just want to know if it related or if anyone else has experienced it

[Marz in reply to Contra21]

If you scroll down and down on your phone you will see 10 more posts like yours in RELATED POSTS - about tight throats. There is also a SEARCH box at the top of the page ..

[Contra21 in reply to Marz]

Should i be worried? I've had 3 endos say gluten isn't bad.

[Marz in reply to Contra21]

I am not a Doctor - but worrying is not helpful. Did you find anything interesting in the 10 posts below ? If you have Hashimotos - then being Gluten Free is helpful for many hundreds on this Forum.

[Batty1 in reply to Contra21]

Gluten isn't bad unless you have gluten intolerance problem and in order to know is to try gluten free for awhile.

[SlowDragon Administrator]

How much levothyroxine are you currently taking?

Guidelines on dose by weight

NICE guidelines

nice.org.uk/guidance/ng145/...

1.3.6

Consider starting levothyroxine at a dosage of 1.6 micrograms per kilogram of body weight per day (rounded to the nearest 25 micrograms) for adults under 65 with primary hypothyroidism and no history of cardiovascular disease.

BMJ also clear on dose required

bmj.com/content/368/bmj.m41

Did you have Graves’ disease before thyroidectomy? If yes, then gluten free diet is likely to reduce symptoms

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying strictly gluten free diet for 3-6 months

If no noticeable improvement, reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

Absolutely essential to regularly retest vitamin D, folate, ferritin and B12 ....these are frequently too low when on levothyroxine, especially if under medicated

[Batty1 in reply to SlowDragon]

SD .....I purchased the B-Complex you recommended....fingers crossed it works.

[SlowDragon Administrator in reply to Batty1]

Suggest you start with just half or even 1/4 tablet ..for first few days...then increase up to one tablet per day

Starting too quickly can make you feel a bit hyper/wired

Best to take B vitamins in morning after breakfast

[Batty1 in reply to SlowDragon]

It's that potent it could make me hyper...wow

[SlowDragon Administrator in reply to Batty1]

feel wired....rather than actually hyper

[Batty1 in reply to SlowDragon]

I just received the Super B-Complex today. I will take mine with my lunch easier to manage since I split my thyroid meds.

[Batty1]

I had thyroidectomy 3yrs ago and I get muscle spasms in my neck off and on ....no Endo or GP can tell me why and at times it's severe I actually choke from it..... I take D3,K and magnesium and"knock on wood" I haven't had spasm in a while.

[pennyannie]

Hello Contra

I too am with Graves Disease and post RAI thyroid ablation in 2005, becoming very unwell some 8 years later, and with no help nor understanding from any NHS hospital department, and referred to by my doctor as a conundrum, ended up on here.

If you haven't heard of Elaine Moore and her website regarding Graves Disease I think that would be an excellent adjunct to this amazing website. This lady has Graves and went through RAI in the late 1990's. She found no help with her health issues, so being a medical researcher decided she would sort it out for herself, and is now one of the leading figures in all things Graves and autoimmune thyroid disease issues.

The second book I purchased is written by a doctor who has hypothyroidism. Barry Durrant- Peatfield writes in an easy to understand, sometimes funny, insightful way and his Book, Your Thyroid and How To Keep It Healthy is everything we need to know about this small, but very major player in our overall health.

The thyroid is a major gland responsible for full body synchronisation, your mental, physical, emotional, psychological and spiritual wellbeing, your inner central heating system and your metabolism.

P.S. A fully functioning working thyroid would be supporting you, on a daily basis, with approximately :- 100 T4 + 10 T3. and I read T3 is about 4 times more powerful than T4.

You say you have had experience of 3 endo's have any of them measured T3 and T4 alongside your ferritin, folate, B12 and vitamin D ?

In short, from what I've read some people do better when they are on a combination of T3/T4 rather than monotherapy with Levothyroxine.

Your body needs to be able to convert the T4 into T3 which is the active hormone that the body runs on, This can be compromised if your vitamins and minerals are not optimal in the ranges, and just ' being in range ' is not optimal.

RAI is a slow burn and known to trash vitamins and minerals so there maybe something there.

Even with excellent conversion you have lost this small proportion of T3 that your own body made and that equates to about 20% of your overall daily bodily needs and though your body will try to compensate, overtime, it may just take more effort to stay well.