My MD only agreed with 12 mcg levothyroxine every other day!!! Pls advise.

[sunsetssr]

Thanks to everyone helping me with my 2 previous questions about the high fiber diet and also the interpretation of my recent test result. I proposed to my PCP to have an increase of 88mcg levothyroxine to 25 mcg more per group recommendation but my MD is sending me this statement. "Your TSH shows that yours is 0.63 with lowest limit 0.27 so you are getting close. The FT4 is 1.51 [1.7] is also very close to being hyperthyroid. Clinically, the more we push up the thyroid, we increase the risk for harm including loss of bone integrity, atrial fibrillation, mood, skin, sleep, etc

[SlowDragon Administrator]

healthunlocked.com/thyroidu...

Did you get vitamin D, ferritin and coeliac test done?

Did you point out Ft4 at 75% through range

But Ft3 is only 11% through range

[sunsetssr in reply to SlowDragon]

Greetings. I had Vit D tested several times before. It is even a little higher than normal. MD didn't wish to order ferritin based on good Hg. No antibody test done to diagnose Hashimoto T. Just hypothyroidism. I was tested for celiac disease many years a go with negative result but whenever I eat wheat product I get bloating and abdominal pain. I guess I'm just sensitive. Thanks for your support.

[SlowDragon Administrator in reply to sunsetssr]

If gluten intolerance then highly likely to be hashimoto's

[sunsetssr in reply to SlowDragon]

I'll ask my MD in next appoitment with another test. Hope I can get it. Life with G.I issues is a misery....Thanks again for your support.

[sunsetssr]

Evening

I totally agree with your comment.She panics every time I talk about my thyroid issues. I believe it is due to lack of knowledge or experinse . I will have a blood test in 4 weeks to show her the little increase (12mcg) every other day is not working.I'll report to the group if I feel any benefits too. Thanks for your replay.

[Lora7again in reply to sunsetssr]

I would change your Doctor she doesn't not seem to know how to treat thyroid disease. She could keep you ill if she is going just by the TSH.

[shaws Administrator in reply to sunsetssr]

As the majority of doctors seem to not know much more than the TSH (thyroid stimulating hormone) your doctor could be in panic mode if your TSH is low, as they imagine if it is low that we've become hyPERthyroid and therefore causes them to be anxious. Of course, it is the patient who suffers through doctors following guidelines but who've not been taught well. i.e. doctors used to go by our clinical symptoms alone.

In these modern times, its all about numbers in the blood test and they know no clinical symptoms.

[Contra21]

What levels are risk for atrial fibrillation?

[Lora7again in reply to Contra21]

I was wondering that as well. I do suffer with palpitations if I over exert myself or get angry or anxious. I was admitted to hospital in July of last year with a suspected heart attack which turned out to be a thyroid storm. My heart was fine btw even though my heart rate was high and my blood pressure. I was sweating and shaking all over very frightening for me to experience.

[Contra21 in reply to Lora7again]

Are you hyper of hypo?

[Lora7again in reply to Contra21]

I was told by two Consultants that I have Graves' disease but someone on this site and others have disagreed with me. Read my story on my profile page. At the moment I am taking nothing except a Vitamin D spray and selenium. About 3 years ago I started to feel under active again after being well for 4 years so I took Thyroid S after being bedridden for 2 years because my T4 and T3 were low. My TSH was 0.80 so my GP refused to give me Levothyroxine so I gave up and became depressed. A kind lady on another site gave me details of her supplier in Thailand. Dr Gordon Skinner who I saw before his death said he had come across people like me and he had originally got my GP to give me Levothyroxine because my TSH was 9. I have times of being both under active and over active which I don't really understand myself. I do my own private blood tests and I self treat if I need to because Doctors have not helped me in the past so I had no choice but to buy my own NDT. If I become under active again I will self treat with NDT. This is my choice and do understand that some people need to be under a Doctor's supervision. I have found all the Doctors I have asked for help in the past including a Endocrinologist to be useless imho. I am sure there are good Doctors somewhere in the UK but I haven't found one yet. I have been classed as a difficult patient because I don't agree with them when they use NHS guidelines which means going by just the TSH. Sorry if this was a long drawn out answer but I hope this explains things.

[Contra21 in reply to Lora7again]

How do you know of your treating yourself properly with no bloods? I had graves killed of my thyroid with radiation. Seen 7 endos and all say mt results are within range tsh always goes up and down and i think ate palps from thyroid they say no

[Lora7again in reply to Contra21]

I have got blood results I had them taken a couple of weeks ago privately. I also can tell how well I am by symptoms and my energy levels. My folate is low and I have tried taking some methyl folate tablets but they made me feel ill so I am going to try and do it by diet and then retest privately.

[Lora7again in reply to Contra21]

Do you have these result to show me? Sometimes people without a thyroid or have had RAI need T3 as well as Levothyroxine. Do you have your TSH, T4 and T3 results?

[Contra21 in reply to Lora7again]

I do from November 7 yrs with all this and so confused.

[Lora7again in reply to Contra21]

I would start your own thread and post them for other members to comment and advise you about them.

[Contra21]

I’ve done it one two many times and leaves me feeling scared confused and overwhelmed

[Lora7again]

I was wary about taking NDT at first but it was easier than I thought because you do go by how you feel. I would increase by a 1/4 grain and see how I felt for a couple of weeks and if I started to feel jittery I would decrease it and try to increase again. This is how thyroid patients were treated years ago before there were blood tests and the TSH. The TSH is actually a pituitary gland hormone and not a thyroid hormone, it is the T4 and T3 levels that count. When my TSH was 0.80 I was virtually bedridden and my hair and nails were dropping off. When I did a private blood test some ladies on another site advised me the T4 and T3 were too low and I needed thyroxine. I went to my Doctor with the information I had printed off Thyroid UK and he just brushed them aside and said he could not treat me because my TSH was in range and he would be struck off. I then purchased NDT from Thailand and self treated because I had no choice. I had lay in bed all day with no energy to shower or get dressed. I couldn't drive because my eyes were blurred,I was balding and had hair extensions to hide my thin hair, I lost my smell and taste and my skin was very dry. I felt depressed and a burden to my family and I had suicidal thoughts with no quality of life. These are all symptoms of having a under active thyroid. Some of us on this site have had to self treat because we are not being helped by Doctors .... this is why this site exists. People who are doing well on Levothyroxine rarely visit this site because they don't need help and advice.

[Contra21 in reply to Lora7again]

See i had that. Had the radiation now permanently on thyroxine . Dr says im ok i check it ever 2 mths but i fear for my heart. These ectpics can i get heart problems