LDN Low Dose Naltraxone: Does anyone have... - Thyroid UK

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LDN Low Dose Naltraxone

msmono profile image
15 Replies

Does anyone have experience of this? I’m kind of fed up with being in near constant pain and Ive seen a bit of research around reduced endorphins in relation to Hypothyroidism and use of LDN.

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msmono profile image
msmono
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15 Replies
galathea profile image
galathea

I tried it several times but couldnt get on with it. It made me dizzy after about 3 weeks. It looked like it might be great though.

You wont know till you try.....

Good luck!

msmono profile image
msmono in reply to galathea

Thank you. It does seem to have mixed results. Sorry it didn't help you.

Chickenlady2009 profile image
Chickenlady2009

Join, "Got endorphins? Low dose naltrexone" private face book group. They have lots of information.

Personally, it gave me a terrible stomach and I abandoned it. Shame because it took me about six months to find a doctor who would prescribe it.

Good luck- start low

msmono profile image
msmono in reply to Chickenlady2009

good call. Thanks

caroash profile image
caroash

Hi my daughter just started this a few weeks ago for headaches and low mood as has suffered cwith M E/CFS ,so far headaches are quite a bit better and slowly improving mood aits a compound drug ,so you start on very low dose 1mg,then 2 till you get up to 4 ,it takes 4 weeks to reach 4 She's only on 2,but already noticing benefits.You can get more info from LDN research trust x

msmono profile image
msmono in reply to caroash

Thank you. Hope she continues to improve.

Frustrated2 profile image
Frustrated2

Yes I tried it and it didn’t work at all for me. I hope if you try it that you have better luck.

msmono profile image
msmono in reply to Frustrated2

Sorry to hear that. Hope something else will help you...

Frustrated2 profile image
Frustrated2 in reply to msmono

What I take for relaxation is magnesium citrate. I take 4-5 capsules at night to help me sleep.

It’s side effect is loose stools so I slowly increased dose to see what I tolerated. I have thyroid issues and an autoimmune disease called Behcet’s.

I have several doctors and one of them is a functional medicine doctor that is looking for the root cause of all of my illness. So I done a lot of tests.

Not sure where you are located, I am in the States.

HashiFedUp profile image
HashiFedUp

I used Celebrex for general joint and muscle pain. I have Hashimoto’s. Had pain for over a decade. Celebrex works amazing for me. Almost pain free.

msmono profile image
msmono in reply to HashiFedUp

Thank you. I will now google this 🙂

Britomartis29 profile image
Britomartis29

Great (really kind of amazing or unbelievable) results with LDN. I was a huge skeptic and almost didn't try it because they said some people get "vivid dreams" (which I have anyway).

I have lupus and hypothyroidism (probably Hashi's). Suffered for years with both; long journey too boring to retell again here (everyone's no doubt sick of hearing it). But just to say that I've been on LDN a little more than a year now and it has been a true lifesaver for me. I started at 2.5 and worked up to 4.5 where results were optimal. I take one capsule (compounded) at night. I have been able to reduce my thyroidmeds down to T3 only; have gottten almost back to my normal weight just with reasonable diet and exercise (and believe me this was a huge struggle); bloods are stable and good; I do take HRT for menopause and I do keep Vit D3, ferritin, and B12 levels checked regularly and up in the optimal ranges.

But even with all that I was not well. It was LDN that made the difference in my chronic pain, mood problems, exhaustion (not fatgue: exhaustion). Everything improved. It worked remarkably fast after getting to the 4.5 dose. I would never want to be without this medicine. I got myself and my life back. But i know it does not work for everyone, Good luck!

(Oh PS: once when I could not get to my own usual compounding pharmacy I tried another where they made it a different way: it did not work for me and I had a pretty ugly relapse; that month was extremely unplaeasant, but within days of getting the old compounding pharmacy meds again, I was ok again. So that might be an issue for some. I am in the USA.)

janeroar profile image
janeroar in reply to Britomartis29

Hello could you private message me about your compounding pharmacy as would be interested in getting it. Many thanks!

meme profile image
meme

Is your vitamin D optimal ? I get a lot of pain if mine is low.

msmono profile image
msmono in reply to meme

Hmm, well ive been using a spray and it is going albeit a bit slowly..

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