Ldn low dose naltrexone: While I'm looking into... - Thyroid UK

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Ldn low dose naltrexone

shaybenholly profile image
15 Replies

While I'm looking into things to help with my hashi symptoms I stumbled across this theirs a fb group on it for hashi ppl it seems very positive anyone tried it

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shaybenholly
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shaws profile image
shawsAdministrator

I believe a couple of members might have tried LDN. There is also an HU group to:

healthunlocked.com/ldnresea...

Dora5 profile image
Dora5

Hello shaybenholly 😊 I have started LDN 8 days ago, mainly hoping that it will help me with the fatigue I'm experiencing.

I started on 1mg and have experienced a headache for the first three days as well as vivid dreams. My neuralgic pain was gone within two days.

As with fatigue I did not notice any improvement (there has been a downward trend in the way I feel 😞 with fatigue increasing but this started prior to taking LDN).

I also started NDT four days ago previously having been on Levothyroxine (hypo/Hashis).

I decreased my NDT dose and decided to take 2mg of LDN last night. I woke up before my alarm today and was less fatigued first thing in the morning.

I'm hoping LDN and NDT will be my tickets to a higher quality life.

shaybenholly profile image
shaybenholly in reply toDora5

Fingers x for you Dora the palps are the worse for me an the fatigue I'm switching tomorrow to taking my meds at night to see if that helps I'm at a loss what to do about the palps I've got an endo appoitment in a few weeks keep us updated on how you get on an good luck I hope this is the answer for you

Dora5 profile image
Dora5 in reply toshaybenholly

I'm sorry to hear that you're suffering with palps 😞. I suffer with them too for the past six weeks and it drives me crazy.

My nutritionist told me that I should take the NDT at night. I'm going to try tomorrow.

Good luck with your journey to health 😊.

shaybenholly profile image
shaybenholly in reply toDora5

Thank you an you I've heard a few ppl say switching to night time for them made a massive difference fingers x hey

abby3216 profile image
abby3216 in reply toDora5

The pharmacist told me it would be three months before noticing how wonderful LDN is for us thyroid sufferers. My doctor started me on 1.5 mg and then slowly, slowly increase eventually to 4.5 Good luck and I hope it helps you but I wanted you to know its no magic quick pill but subtle and very helpful.

Dora5 profile image
Dora5 in reply toabby3216

Thank you abby3216 😊 I shall preservere with it. I have a year's supply 😉.

I've started a diary of symptoms and improvements just so I remember how helpful it is 😊.

How long have you been on LDN?

abby3216 profile image
abby3216 in reply toDora5

I just bought mine yesterday but my experience comes from three of my friends who have Hashis and take it. They are thrilled with the results! I wish you a good journey with it and like you, I will be keeping a journal too.

Dora5 profile image
Dora5 in reply toabby3216

Thank you and good luck 😊

abby3216 profile image
abby3216 in reply toDora5

You are very welcome and take care! I will be keeping my fingers crossed for both of us!

shaybenholly profile image
shaybenholly in reply toabby3216

That's great news can I ask do you get palps with hashi it's my worse symptom an good luck with it

abby3216 profile image
abby3216 in reply toshaybenholly

Hi ShayBenHolly,

Yes I sure do.....just had one the other day that was larger than some of them....and then I don't feel well for 24 hours afterwards. My doc said...oh yes...I hear that from most women....so I guess its normal..lol. I am hoping the LDN might play a role in quieting them but don't know yet. I have only been on NDT since early this year so maybe I haven't hit my sweet spot yet. Take care!

shaybenholly profile image
shaybenholly in reply toabby3216

Good luck an keep us updated

Dora5 profile image
Dora5

Let me know how you get on 😊

sulamaye profile image
sulamaye

I've been on it 11 months, but I have m.e as well as hashis which makes life complicated, but I built up gradually, get it from prescribe 4 me and noticed an evening out of my symptoms overall.

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