Feeling that I will never get it right

I'm having a bit of a bad day. And have no one to talk to. I have Hashimotos, I still feel very underactive, to the point, that I'm mostly at home, had to let my job go as I stopped sleeping and I'm exhausted. My partner is fed up with this and mentally he is struggling and unable to support me. I would love to be able to go out in the evening to meet with our friends, but I mainly stay home and he goes. I feel so bad today, I'm sorry for this rant, but this has been happening for over 2.5 years now and I'm losing hope that I'll ever feel normal again. X

[Phronsias2]

Hi

We all have bad days,sometimes my bad days last weeks I tell myself the feeling isnt real, this works for me but nobody who doesn't suffer like we do can fully understand.

Regards

Frank

[Hidden in reply to Phronsias2]

Thank you Frank 🙏 I do feel that no one else understands. Sometimes makes you feel so alone. It's better today, meaning, the bad day is gone, I hope

[Lora7again]

I just read a previous thread of yours and wondered if NDT might suit you better? Have you ever taken it? I did well on it when I took it a couple of years ago but had to stop when my thyroid flared up. Also other people especially family members do not understand how exhausted we feel. Before Christmas my husband told me the house was a tip and had been so for over 10 years. I became very unwell 12 years ago and have struggled to do housework and could not drive for a few years. I also gave up my job as a Legal Assistant because I could not think straight and kept making errors which you cannot do in a Law office.

[Hidden in reply to Lora7again]

I'm so sorry to hear my job was very technical and there was a lot of travel. It was the right move. It really is not nice when the closest people to you don't understand and don't believe you. Re ndt - it was terrible, wrong proportion of both t's for me, and the nightmare of stock issues. I do feel better on combination than ndt, even though I'm not there yet. Xx

[Hillwoman in reply to Lora7again]

Lora7again, is the house not also your husband's responsibility to keep tidy?!

[LAHs in reply to Hillwoman]

Absolutely! - but one battle at a time Hw. Get your own oxygen mask on first then tend to the baby's little problems. If Lora7's husband cannot wait that long tell him to hire a cleaning service if it's that important to him.

[lisabax]

Have you had blood tests for VitB12, VitD3, ferritin and folate recently? I know that I have had continuing symptoms that seemed to be related to my Hashimotos but in fact I was low in B12 and D, and it made a real difference increasing them. Also, when I was on T4/T3 combination, my adrenals were affected. I was making too much adrenaline at the wrong time of the day. I don't know if you have tested for this?

[Hidden in reply to lisabax]

Hey lisabax. Yes, all these tested, high in range d and over range b12, iron 75%, folate I think was 14 and ferritin 35% or thereabouts, but it's always low even when supplementing ferrous fumarate 210. Also adrenals all good, did saliva test twice. It's "just" my dose. I suspect it's my t4, need it a bit higher and been only on this combination for 4 weeks (Levo 112 for 7 weeks). Xxx

[lisabax in reply to Hidden]

Ah well, it was just a thought. I hope your increase of T4 will sort things out and you’ll feel better soon

[Hidden in reply to lisabax]

Thanks you lisabax ❤️ I have increased Levo this morning, fingers crossed

[fuchsia-pink]

So sorry to hear you're having a bad day. Can you manage to get out for a little walk outside? - I know it's cold and miserable at this time of year, but I find a bit of fresh air often helps.

Big hug from the south coast xx

[Hidden in reply to fuchsia-pink]

Absolutely! Everyday I go outside no matter what, it's so important x thank you!

[norwood1]

Hi, I am so sorry you are feeling so miserable. Most people just don't understand unfortunately as the tiredness and lack of motivation can be all consuming. Please try to remain as positive as you can as hopefully this will pass once your medication is at the right level. Do seek medical advice though if it continues. Take care and above all be kind to yourself and I know you will get great advice from the knowledgeable people on here x

[Hidden in reply to norwood1]

Thank you norwood for your kind words , it's all mentally and physically exhausting. Just on my way to my doctor now. X today is a better day

[norwood1 in reply to Hidden]

I am so glad today is a better day for you and I hope your doctor is of help today so that tomorrow will also be a good day. It would be nice to know how you are doing over the next few weeks so hopefully you will update us and it will help you also to know there is always someone somewhere to talk to on this forum. Stay strong and well x

[Hidden in reply to norwood1]

Thank you, he is normally quite helpful, I just need to stay strong and positive x I will be posting my progress for sure , it's so good to have this support here, it's so important and vital to the recovery x

[Hidden in reply to norwood1]

Just back from the doctor. He is really good. Basically in agreement to try a bit more Levo, but gave me loads of t3 in case the above doesn't work and I need to increase that. He said he just wants me to feel better, almost hugged him x

[norwood1 in reply to Hidden]

You are very lucky to have what seems like a very good sympathetic and understanding Doctor. I hope you feel more yourself day by day. It’s a long slow process but you will get there x

[Hidden in reply to norwood1]

Thank you, I am indeed. I sometimes forget how good he is. Now need to do it x

[ThyroQueen in reply to Hidden]

What a lovely doc to give you loads of t3!!! I got myself on a dose that works for me, plus vits/liquid D3/K2 etc, following the guidance of the good folks on here. Now I still have to juggle my HRT but at least I have the miracle of energy!

Just fyi high levo, even with some T3, was not a good fit for me and I now have a dose that is lower levo to T3 ratio than usual, it is a possible way to try if nothing else works as a few others on here go this route but of course adjustments to t3 always low and slow as advised on here!

[Hidden in reply to ThyroQueen]

Hey ThyroQueen, thank you so much your message! Could I ask about something. I did think of potentially lowering my Levo, I take 112, and upping my t3. I feel more t3 I add to my 112 of Levo, more hypo I am in some ways? My ft4 is now mid-range and I wonder if this is causing issues.

[ThyroQueen in reply to Hidden]

For me personally, going above 75 levo makes me brain-foggy, bloated and dazed, and I gain weight at lightning speed. Last year an endo put me on 150 levo while dropping my T3 (she wanted to get me off the T3). it was incredibly, horribly bad. But higher doses of levo are great for some people, so this is just my personal experience. Luckily I discovered this board before I was completely bed-bound, and began slowly lowering my levo and bringing my T3 back up (she had gotten me down to 10).

I accidentally hit a sweet spot at 75 levo and 30 t3, which is an unusual ratio. But I am so grateful to be able to load the washer and unload the dishwasher on the same day that I'll take it!

[Hidden in reply to ThyroQueen]

Oh dear. So sorry to hear you had to go through this.

So that was my first idea, to actually decrease levo further because I am continuously bloated on it and gain weight. I did that and day three I got incredibly bloated, but I think my t3 dose was not enough at that time, just started 15 t3 at the time, and now I'm up to 20. It's funny that when I increase t3 now I'm more tired and bloated and stiff. May I ask where your ft4 is level wise at 75 mcg? I guess my concern was that decreasing will give me the lowest level, when I decreased from 125 to 112 my level dropped from 76% to 48% currently.

[ThyroQueen in reply to Hidden]

I have to admit I haven't been tested since I got to my "happy place" dose. I haven't been able to find a new endo (can be a bit of a wait to get to a specialist in Berlin) and have so many other health issues to deal with I have kind of put it off! Plus probably my levels will not be in a place they will approve of and I truly don't care, I don't have tremors or racy pulse except the first couple days increasing T3.

[Hidden in reply to ThyroQueen]

I see I guess I'm very torn between increasing levo and decreasing Levo, which are totally opposite. Decisions, decisions

[Tulay07]

I feel exactly the same no life left in me! Increasing or decreasing thyroxine has nothing to do with it.. Hashimato is monster:((

[Hidden in reply to Tulay07]

Oh tulay so sorry to hear you also are struggling thyroxine on its own didn't do much for me, had to combine it with t3. Yes, Hashimotos is a monster, I'm trying to befriend it so it's less scary, but it's difficult x

[Tulay07]

How did you get T4 my docs don't even mention it! One of the endos suggested iodine it's apparently not god for Hashi:((

[Hidden in reply to Tulay07]

My Endo is very pro t3 and some other endos have mentioned t3 before. I'm based in Ireland, seems doctors are a bit more progressive here than in the UK. Iodine in small amounts may not be harmful, but you need to do a test if you're deficient otherwise you can harm yourself taking it

[Arlie123]

Sending you hugs and hurrah for a good doctor! X

[Hidden in reply to Arlie123]

Thank you Arlie, big hugs back xxx

[Hidden]

He is amazing, but he is a bit older, but hey, I hope he lives along and healthy life