Will I ever feel ok again?

[Fern74]

Hi, I'm new here. I've been taking my thyroid tablets for 3 years now and at first they made me feel better, but now I feel bad every day. It's SO frustrating because I feel like no one understands. I feel like they think I'm a massive hypochondriac or just lazy. I have to dig deep to get through the day. It's so hard to be enthusiastic about life when you have no energy for anything. Thanks for listening. It's nice to vent to people who know how I'm feeling.

[sunsetalley]

Hi, I'm sorry to hear that but I understand you.

What medication you're taking? Do you check your thyroid hormones regulary? Perhaps you're undermedicated.

[Fern74 in reply to sunsetalley]

After years of telling my GP I still feel terrible, but her telling me I'm fine, she's referring me to an Endocrinologist. So hopefully they will be able to give me more answers. I think that's been one of the most frustrating thing...your trusted health professional telling you you are ok when you clearly aren't.

[sunsetalley in reply to Fern74]

I know how you feel.

[Fruitandnutcase in reply to sunsetalley]

Me too. I can just picture the scene with you being ignored for all that time. Thank heavens your doctor is referring you. Hopefully you will get a better result.

After years of visiting the doctor and being made to feel like a complete hypochondriac to the extent one of them told me I was ‘needing my holiday’ two months I went into total hyper meltdown. The upside was I was being properly treated within three days.

My first question on here was ‘will I ever feel normal again’ and yes I do so hopefully yu will too. Good luck with it all. Get copies of all of your blood test results and their ranges. Keep a notebook with all of your symptoms, treatments and any questions you want to ask your consultant so that you don’t get to your appointment and say ‘fine’ when the endo asks how you are.

[Hypogo]

I’m going through this currently 2.5 years post diagnosis. I have no answers. I just wanted you to know that you are not alone. I believe that it took a long time for many of us to become so ill and fatigued, so the journey back to health may require a lot of patience, frustration, tears, research and fine tuning of the essential hormones and nutrients that our body needs to feel better after many years (in my case) of battling an illness that is so depleting. Take the best care of yourself, be kind to yourself and take one day at a time 💕

[Fern74 in reply to Hypogo]

Thanks so much.

[fibrolinda]

Do you have your latest test results? Including ranges. Have you had vitamin d, folate, ferritin and b12 levels checked, usually low in hypos.

[SlowDragon Administrator]

Welcome to the forum, your are not alone in feeling like this, but with help you can make important

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Far too often GP only tests tsh or TSH plus FT4

Can you add your most recent results and ranges on all tests you have had

Do you know if you have raised Thyroid antibodies?

Ask GP to test vitamin levels and antibodies, if not been done

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Is this how you do your tests?

Always take Levo on empty stomach and then nothing apart from water for at least an hour after. Many take early morning, on waking, but it may be more convenient and possibly more effective taken at bedtime.

verywell.com/should-i-take-...

Other medication at least 2 hours away, some like HRT, iron, calcium, vitamin D or magnesium at least four hours away from Levothyroxine

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased or at repeat prescription.

Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients

Which brand do you take?