New person in a bit of a state: Hello. Thank you... - Thyroid UK

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New person in a bit of a state

Noji profile image
Noji
17 Replies

Hello. Thank you for reading. I’m sure you see hundreds of posts like this a week so apologies in advance. I am 50 years old. For the last 8 years I have had real trouble keeping weight off. My periods stopped when I was 43. I am using HRT but suffer frightening brain fog. I feel very anxious a lot and I am miserable too. And angry.

Despite tweaking my bio-identicals HRT lots of times, regulating my diet and doing many anti-stress exercises and CBT I never feel good.

I recently looked at a thyroid test result I had last year, which I was told is ‘perfect’. I posted the results on a hormone group I am in and was told I am hypothyroid and may benefit from some meds. My doctor won’t hear of it.

Can someone advise please.

My results:

TSH 1.63 mIU (ref range 0.27-4.2)

Free T4 15.5pmo1/1 (ref range 12.0-22.0)

Free T3 3.9pmo1/L (ref range 3.1-6)

Would I benefit from further tests?

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Noji
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17 Replies
Nanaedake profile image
Nanaedake

Are you taking thyroid hormone or diagnosed with a thyroid condition? Have you got blood test results for vitamin D, folate, ferritin and B12?

Noji profile image
Noji in reply to Nanaedake

I am not taking any thyroid meds! I am constantly told that my test results are ‘perfect’. I spoke to my GP this week and he refused to acknowledge a problem. I can’t change doctors as I live in a rural location and he’s my only choice. What do we do in this situation? I feel awful x

Noji profile image
Noji

Thank you. I am not taking any thyroid meds at all. My doctor refuses to acknowledge a problem.

Noji profile image
Noji

Thank you so much! Invaluable information.

Marz profile image
Marz in reply to Noji

Also a good idea to test for anti- bodies to rule out Hashimotos - along with B12 - Folate - Ferritin - VitD

humanbean profile image
humanbean

Your results aren't very good.

Free T4 is 35% of the way through the range.

Free T3 is approx 28% of the way through the range.

Both of these are too low for good health in many people, particularly those who are diagnosed and treated for hypothyroidism.

Although requirements vary from person to person, most of us need Free T3 and Free T4 to be around 50% - 80% of the way through the range.

But at the moment you aren't diagnosed, and until your TSH rises substantially you won't be, assuming you live in the UK. Here, people have to have TSH > 10 for a diagnosis, although if patients have Hashimoto's Thyroiditis (an autoimmune condition which shows up in above range antibody levels and destroys the thyroid), they can sometimes persuade doctors to treat when TSH goes above range.

By the way, TSH is a very poor marker for thyroid health but doctors insist on using it and disbelieving patients who tell them they feel very ill, which is why so many of us use thyroid forums and in some cases self-treat. I've seen people quoting results for Free T4 and Free T3 on this forum very much like mine were before I was treated and yet their TSH is sometimes four times what mine was.

Until such time as your TSH rises substantially, your best options for feeling better than you currently do are :

1) Get tests done for levels of vitamin B12, folate, ferritin, and vitamin D. Post your results in a new thread and ask for feedback. Low nutrient levels can cause many of the same symptoms as hypothyroidism.

2) Optimise as many of your nutrient levels as you can. This might improve your thyroid's output of thyroid hormones - but there are no guarantees. But optimal nutrient levels will (probably) improve how you feel.

3) Have you ever had your thyroid antibody levels tested? There are two types that may show up in hypothyroidism - TPO antibodies and TG antibodies - and either or both can be positive. The NHS usually only tests TPO antibodies if they test antibodies at all.

4) If you have positive antibodies then you have Hashimoto's Thyroiditis. Many people with this condition feel better with a 100% (no cheating) gluten-free diet. You don't have to have coeliac disease to feel better on a gluten-free diet. However, if you don't get any benefits after, say, a three month trial then you may as well go back to eating gluten. There is no point in removing anything from your diet if you get no benefit from doing so.

5) The same comments about gluten apply to lactose (milk sugar from animal sources). But don't try giving up gluten and giving up animal milk products at the same time. If you got a benefit you would have no idea which one was helping. (I have given up gluten, got lots of benefits from doing so, but have never tried giving up lactose.) Although I have no numbers, I would say more people benefit from giving up gluten than lactose - but this is just my impression, so isn't reliable. Some people do give up both.

To find out more about private testing without needing to see a doctor see this link :

thyroiduk.org.uk/tuk/testin...

The most popular tests on this forum which cover most of the points above are :

medichecks.com/products/thy...

bluehorizonbloodtests.co.uk...

Both companies sometimes have special offers. Medichecks tend to have special offers on Thursdays, Blue Horizon's special offers are more random. It is worth registering with any company that you might be interested in using so that you get emails telling you about their special offers.

Noji profile image
Noji in reply to humanbean

Thank you so very much! I am getting palpitations on and off too. This is a minefield. For ages I just thought it was menopause hormones.

humanbean profile image
humanbean in reply to Noji

Palpitations could be caused by low iron, low B12 and no doubt some other nutrient deficiencies as well.

Low thyroid hormones can also cause palpitations.

SlowDragon profile image
SlowDragonAdministrator

Yes definitely get FULL Thyroid and vitamin testing

Your FT3 is very low

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

You could ask GP to test vitamin levels and thyroid antibodies....

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Come back with new post once you get full results

Oestrogen dominance can be linked with Hashimoto's

thyroidpharmacist.com/artic...

Ask GP to test oestrogen and progesterone levels

Noji profile image
Noji in reply to SlowDragon

Thanks so much. A lot to take in!

SlowDragon profile image
SlowDragonAdministrator in reply to Noji

First step ....getting full testing...

Come back with new post once you get results

Assiya profile image
Assiya in reply to SlowDragon

What if you have low oestrogen or progesteron? What to do? Could be the cause of the thyroid problem?

SlowDragon profile image
SlowDragonAdministrator in reply to Assiya

Suggest you make a separate post asking this

More people would see it

Noji profile image
Noji in reply to Assiya

I am post meno and on HRT. Doctors, in my experience, don’t really understand hormones. Or worse, think they do and give false or misleading advice. To get hormone blood tests is like trying to get blood out of a stone. I don’t have low oestrogen or particularly low progesterone because I use bio identical hormones and have done for 18 months, and have enough evidence to know I am absorbing them. I take testosterone too.

Batty1 profile image
Batty1

I been on Estradiol for 16yrs and decided to stop 2 weeks ago I’m going on 50 had hysterectomy and I have no thyroid.

I think stopping HRT has been the smartest thing I’ve done for myself I actually look less bloated to the point my pants don’t feel as tight (I’m still overweight).

Noji profile image
Noji in reply to Batty1

I don’t know what is happening to me but I am now apparently developing blood sugar issues. Woke up feeling ok but once I was up I started feeling incredibly shaky like I needed to eat. I are some berries and very very slowly the shakiness subsided but I still feel very very weird. I think when I use progesterone it pushes up my cortisol levels.

Batty1 profile image
Batty1 in reply to Noji

I dont know anything about progesterone since I had hysterectomy and I bet everyone at some point has waken up to a sugar slump, if this is and everyday event then that needs to be addressed with the doctor.

I would get low sugar about 2 hours after dinner when my husband and I would go for a walk (I would walk like I was drunk) had this a happen a handful of times and haven't had this since but I do think mine was from calorie cutting too much to slow down my thyroidectomy weight gain that my Endo wasn't from thyroidectomy (sigh).

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