Thyroid July to November t4: Morning.. Can... - Thyroid UK

Thyroid UK

139,003 members163,126 posts

Thyroid July to November t4

Lillygirl66 profile image
7 Replies

Morning.. Can someone please look at my medichecks results one lot from July/ 2nd lot November. My doctor said she doesn't know why t4 is low and left it at that so does that mean it's all OK?

B12 treatment started September, folate and vitamin d treatment also.

Feel like death still.

Thanks and Happy New year's.

Written by
Lillygirl66 profile image
Lillygirl66
To view profiles and participate in discussions please or .
Read more about...
7 Replies
crimple profile image
crimple

I would say your Thyroid is struggling with such low T3 and T4 readings. The T3 is only just in range and the T4 is below range No wonder you feel awful.

If your doc doesn't know the answer ask for a referral to an Endo. Be sure to ask Louise at TUK for the list of Endos who might know what you are talking about! Is there any family history for thyroid issues. (rampant in my family)

Do you have any earlier readings for thyroid function? Has your TSH risen? I certainly would feel like death with that Tsh.

My hypothyroidism was diagnosed when TSH reached 5.8 but many people have to wait until it reaches 10. Docs generally are not interested in symptoms, just the numbers.

NSH would say you are sub-clinical hypothyroid.

I am not a doctor just a hypo, now successfully treated with T4 and a little T3. Good luck

Lillygirl66 profile image
Lillygirl66 in reply to crimple

Thanks for the quick response! my previous doctors told me I've been borderline for 10 years. My battle has always been tsh is fine so no reason to check any further.

shaws profile image
shawsAdministrator in reply to Lillygirl66

So, you're still struggling - after ten years. Not surprising as - in UK - medical professionals have been told not to diagnose until the TSH reaches 10. No notice - or no testing - of FT4 and FT3 are undertaken. These two are more informative as the TSH is from the pituitary gland - not thyroid gland. It is not a thyroid hormone!!!

Unfortunately all doctors seem to have been 'told' that the TSH is the 'evidence' when the thyroid gland is 'struggling. Unfortunately they also seem to have been told nothing about clinical symptoms (of which we used to be diagnosed upon and given a trial of NDT).

Nowadays, in the UK the guidelines state that we should not be diagnosed as being hypothyroid until the TSH reaches 10 and some people can be quite symptomatic by then and it would be more 'holistic' to give people a trial of levothyroxine (although that may not work for many people - I'm one and I would prefer a T4/T3 combination).

I am really horrified that people who have clear clinical symptoms plus a TSH which has risen are dismissed without any thought to their symptoms (most GPs have no knowledge of any symptoms) and they leave the surgery without - at the very least - levothyroxine.

thyroiduk.org.uk/tuk/testin...

TSH - Thyroid Stimulating Hormone - rises when our thyroid gland begins to struggle. In other countries if it goes above 3 we'll be prescribed levothyroxine but ' for some unknown reason to me' in UK we've to wait until it reaches 10. In my case I wasn't diagnosed - even though TSH was 97.5 but 100 when I got my own blood test.

TSH is from the pituitary gland - not thyroid gland so that's when it would thoughtful to test the Free T4 and Free T3. We need these to be towards the upper part of the ranges. Rarely tested in the UK.

Unfortunately some members have had to get their own private blood tests and may then be diagnosed. Doctor should also test B12, Vit D, iron, ferritin and folate. These can also be low and cause symptoms.

Your GP says "My doctor said she doesn't know why t4 is low" - it is low because your body isn't providing so you need it to be prescribed (levothyroxine is synthetic T4). T4 has to convert to the Active Thyroid Hormone, i.e. T3, and levothyroxine is T4 alone.

Before blood tests superseded clinical symptoms, we were diagnosed upon symptoms alone and given a trial of NDT (Natural Dessicated Thyroid Hormones). If we improved we were hypo and continued with NDT. This has now been withdrawn due to False Statements made by the BTA in order to do so.

It saved lives from 1892 onwards - no blood tests then, only the expertise of doctors who diagnosed upon clinical symptoms and given a trial of it. If we improved we were hypo. The following is an extract from the link below:-

"TSH is not a thyroid hormone and is not an appropriate guide to thyroid replacement therapy.

The hypothalamic-pituitary secretion of TSH did not evolve to tell physicians what dose of inactive levothyroxine a person should swallow every day. A low or suppressed TSH on replacement therapy is not the same thing as a low TSH in primary hyperthyroidism. IF you continue to suffer from the symptoms of hypothyroidism, you have the right to demand that your physician give you more effective T4/T3 (inactive/active) thyroid replacement therapy. Your physician can either add sufficient T3 (10 to 20mcgs) to your T4 dose, or lower your T4 dose while adding the T3. The most convenient form of T4/T3 therapy, with a 4:1 ratio, is natural desiccated thyroid (NDT-- Armour, NP Thyroid, Nature-Throid). If you have persistent symptoms ask your physician change you to NDT and adjust the dose to keep the TSH at the bottom of its range-- when you have the

blood drawn in the morning prior to your daily dose. This may be sufficient treatment, but IF you continue to have persisting hypothyroid symptoms, and no hyperthyroid symptoms, ask your physician to increase the dose to see if your symptoms will improve, even if the TSH becomes low or suppressed. You can prove to your physician that you're not hyperthyroid by the facts that you have no symptoms of hyperthyroidism and your free T4 and free T3 levels are normal in the morning, prior to your daily dose.

hormonerestoration.com/

p.s. The earliest the blood draw - fasting (you can drink water) gives a better result as the TSH drops throughout the day.

greygoose profile image
greygoose

No, your doctor wouldn't know why your FT4 is so low - not to mention your FT3 - because all she knows about is the TSH, and that is in range, so her knowledge stops there and for her, everything is alright. But that doesn't mean that everything is OK.

With such low Frees, your TSH should be a lot higher. The fact that it isn't suggests Central Hypo, where the problem lies with the pituitary or the hypothalamus, rather than the thyroid itself. And, it's highly unlikely she will ever even have heard of Central Hypo.

In your last post, your cortisol was low, so that is also suggesting a pituitary problem. So, you really need to be referred to an endo for further tests and investigation. But, not just any old endo. You need one that knows something about thyroid, so research your endo carefully - ask questions on here - before seeing one.

Lillygirl66 profile image
Lillygirl66 in reply to greygoose

Thank you I will push for finding a Endo.

greygoose profile image
greygoose in reply to Lillygirl66

You're welcome. :)

SeasideSusie profile image
SeasideSusieRemembering

As Greygoose says, your results suggest Central Hypothyroidism which is suggested by low, normal or minimally elevated TSH with low FT4. Your FT4 is below range and FT3 very low in range so I think definitely investigate Central Hypo. You need a thyroid specialist not any old endo who is a diabetes specialist (most are).

Links about Central Hypothyroidism:

endocrinologyadvisor.com/ho...

bestpractice.bmj.com/topics... (Click on READ MORE in the Summary, your GP will be able to read the whole article)

ncbi.nlm.nih.gov/pmc/articl...

You may also like...

New Thyroid results (July)

Hello there, I have my thyroid and antibodies test results back, these are my most recent ones, so...

thyroid t4 tests shortage?

hi I’ve had lots worse symptoms of struggling to stay awake, fatigue , body ache constipation or...

Thyroid cancer and Levothyroxine (T4)

symptoms. My regular blood tests come back and my doctors say everything is as it should be - I...

Latest thyroid results. Reduce T4?

be too high. They also warned that a consistently low TSH can lead to osteoporosis. Do I need to...

Thyroid T4

Results from monitor my health T4 =9. said to be low (12-14) normalDoes this matter and if so how...