I feel so unwell posted on here several times about my journey the last 8 months having total TT in May this year.. Haven't really got a good gp he seems to know nothing of thiyroid conditions anyway I'm having bloods done on the 14th of Jan this includes a vitamin D test and cholesterol test aswell as the thiyroid pannle.. I'm thinking of purchasing some vitamin D mouth spray as I know even if my test comes back in range or just below my gp will do nothing what is the best spray to get looked on line boots don't do it and super drug don't do it.. Holland and Barratt do but what do I go for... 🤔
Thanks
Karen
Written by
birkie
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BetterYou oral spray is popular here, you can buy direct or from many outlets.
You need to base your dose on your test result, so when you have this post it on the forum and I can work out how much you will need to take to reach the level recommended by the Vit D Council/Vit D Society which is 100-150nmol/L.
There are also important cofactors needed when taking D3.
D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.
D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking tablets/capsules/softgels, no necessity if using an oral spray.
BetterYou do a combined D3/K2 spray.
Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.
Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking tablets/capsules, no necessity if using topical forms of magnesium.
Also about a month before my TT my surgeon recommended I take vit D can't remember the dose but they were small files filled with a light gold liquid I must say I had some energy return to me when taking them and managed to get out of bed didn't feel so fatiqued.. But after my op surgeon nore gp did vit D test I requested it at my last appointment with gp.. His face said it all he was not pleased and just said ho well if we must OK we can do it on your next blood draw which as I said is Jan 14th.. I will look in to magnesium to
Bitkie so sorry to hear your GP isnt very supportive after all youve been through. Lol. Have they started you on Levothyroxine or are they waiting for the thyroid hormones level to drop?
Like Seaside Susie said wait for your blood test results then post. You will get really good advice on here.
In the meantime if you can read up as much as you can as for many of us the only way to become well again is to become well informed. Knowledge is power..... xx
I've been on levo since my TT in May this year but I'm not getting on with it my blood test revealed low T3 T4 high TSH... I also have reactive colitis which is flaring up due to the levo. Gp is insisting I keep on the pill form.. He should know better he did that with the anti thiyroid meds I had a really bad reaction to them but he made me take them I was vomiting them bk upshot I was rushed to hospital in thiyroid storm its been 8 months now and I feel just as bad gp said it can take years to get the right dose and to feel well I've got my next bloods for Jan 14th I'll wait to get the results and post on here I really can't see me being able to take the meds much longer I'm in bed now with imflame bowels I'm bloated and in pain also a thumping headache 😩😩
Can you post your blood test results with the ranges. Plis what dose of levo you are currently taking.
If you have high ft4 and low ft3 then it sounds like you are not converting very well. Adding a bit of T3 in would be the way to go but your GP would have to refer you to an endocrinologist as GPs are not allowed to prescribe it unless guided to do so from a specialsit. If you are no longer under an endocrinologist, contact thyroid uk in the new year as they have a list of thyroid friendly specialists, some are nhs, some are private.
It does take time to get the dose and med combination right for you .....your GP is correct on that......but if you manage to find a specialist who really does know what they are doing the process is shortened. And there are some really clued up clever people on here who can advise you too. You will get there....in time.
I was on 125gm after surgery then dropped to 100gm as surgeon saw I was still hyper then drop me again to 75mg due to being hyper.. He then said he would refer me to my endo who I've never seen since my op I was waiting for the app but nothing came so I rang his secretary she couldn't see anything for me so suggested I ring my surgery which I did left the message with the receptionist so far I've heard nothing but I would say that's because of the holidays I will be ringing after the new year.. My bloods were.. TSH... 3.53...T3 2.9...T4 10.9..... I would say that makes me hypo.... I think.. ❤️
What are the ranges -they vary lab to lab but based on the ranges in the lab in my area -Yep! These test results, subject to the ranges, show that you are definately under medicated. You need to get your thyroid hormones in the top third of the range (some need them near the top of the ranges) and your TSH needs to be under 1. Ask your GP for an increase! He/she can surely increase to 100mcg. Needs to be done in 25mcg stages usually 6-8 weeks between each increase, bloods then increase again if needs to be higher. This is called Tiltration. It has to be done slowly as it takes some weeks for the full effect on your body. If you go quicker you can end up over medicated.
My only problem is the levo is flaring my colitis up so I really need to sort that I've not gotten along with levo since taking them... Same with anti thiyroid they inflamed my bowles/stomach feel the same way on levo especially since its to be taken on an empty stomach 😩 I'm sure I could try another form of drug ilother than levo.. ❤️
The trouble is by not getting your thyroid dose higher you are in effect making the colitis worse as the bowels/intestine do not work properly when hypothyroid let along with colitis. Thats why its key you get your thyroid meds dose higher.
Try a different brand of levo but you heed to increase. The alternatives are not prescribed on the nhs unless after youve given a fair go at Levothyroxine a speciaist recommends it. That something you will have to discuss with the endo next time or you will have to buy the alternatives privately.
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