Advice : Hi, I have just found this site and I'm... - Thyroid UK

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jamcas profile image
jamcas
•11 Replies

Hi,

I have just found this site and I'm hoping for some advice 😊

I was diagnosed 5weeks ago with costocondritis (inflammation of the cartalidge around the ribs) I've had numerous bloods tests and have found out that my serum ferritin is 13.0 and after convincing doctors to test my thyroid my TSH was 2.74. Over the past couple of years I have been suffering with hypothyroid symptoms (long family history of this) Do you think this could this be hypothyroidism? Any advice would be greatly appreciated as I'm exhausted and want this sorting so that I can return to work.

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SlowDragon profile image
SlowDragonAdministrator

What's the range on Ferritin?

That result looks very low in range. GP should run full iron panel test for Anaemia

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin D, folate and B12 levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you did these tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Come back with new post once you get results

jamcas profile image
jamcas• in reply toSlowDragon

Thanks for the advice.

These are the results that I have received from tests that doctors have taken in past 4 weeks.

FBC

Haemoglobin concentration 139 g/L [115.0 - 165.0]

Platelet count - observation 271 10*9/L [150.0 - 400.0]

Red blood cell count 4.54 10*12/L [3.8 - 5.8]

Haematocrit 0.421 L/L [0.37 - 0.47]

Mean cell volume 94.5 fL [80.0 - 100]

Mean cell haemoglobin level 30.6pg [27.0 - 32]

Mean cell haemoglobin concentration 324 g/L [3200 - 360.0]

Neutrophil count 4.0 10*9/L [1.7 - 7.5]

Lymphocyte count 1.9 10*9/L [1.5 - 4.5]

Monocyte count - observation 0.5 10*9/L [0.2 - 0.8]

Eosinophil count - observation 0.4 10*9/L [0.2- 0.4]

Basophil count 0.0 10*9/L [0.0 - 0.1]

Total white blood count 6.8 10*9/L [4.0- 11.0]

TSH 2.74 (0.35-5.5)

Serum ferritin 13.0 (13.0-300)

Serum prolactin 161 (59-619) this result is from a year ago not been restested or investigated just highlighted as abnormal.

**I follow strict gluten free diet, as I react really badly to gluten,and have done since 2017 - before feeling ill I took an iron and vitamin c tablet daily. (Containing 14mg iron and 60mg vitamin C in each tablet)

SlowDragon profile image
SlowDragonAdministrator• in reply tojamcas

So only ferritin is low

Eating liver or liver pate once a week, plus other iron rich foods like black pudding, prawns, spinach, pumpkin seeds and dark chocolate, plus daily vitamin C can help improve iron absorption

Links about iron and ferritin

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

drhedberg.com/ferritin-hypo...

restartmed.com/hypothyroidi...

Gluten intolerance is extremely common with autoimmune thyroid disease (Hashimoto's) diagnosed by high thyroid antibodies

So you need to get FULL Thyroid test

TSH

FT3

FT4

TPO and TG thyroid antibodies

Plus

Vitamin D

Folate and B12

Cheapest way to do this is via Medichecks or Blue Horizon

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Come back with new post once you get results

jamcas profile image
jamcas• in reply toSlowDragon

Hi,

I've been speaking to my doctor again due to me still feeling extremely tired, breathless etc. They've said that they will retest my bloods again in two weeks as they want to see if the iron tablets are helping with symptoms. They have noted that they want to retest fbc, ferritin, prolactin and TFT would you advise that these are the tests that I need, will these look further into my thyroid ? I've noted discharge from both breasts recently too , sorry to be graphic I'm just worried .

Any advice would be greatly appreciated

SlowDragon profile image
SlowDragonAdministrator• in reply tojamcas

Discharge from breasts is almost always high prolactin usually linked to autoimmune thyroid disease diagnosed by high thyroid antibodies

Strongly recommend getting full Thyroid and vitamin testing privately as GP is dragging his heels

Most important to test BOTH TPO and TG thyroid antibodies, TSH, FT3, FT4 plus vitamin D, folate and B12

jamcas profile image
jamcas• in reply toSlowDragon

Thank you for such fast response. I really appreciate all of your advice and support 😊

SlowDragon profile image
SlowDragonAdministrator• in reply tojamcas

Link

frontiersin.org/articles/10...

jamcas profile image
jamcas• in reply toSlowDragon

That article is very interesting to read. It's certainly making me more determined not to try to just continue with trying to manage this . I need help and if I need to do private testing it'll be worth it to hopefully alleviate my symptoms.

Luna1390 profile image
Luna1390

Hi there! I had costchondritis for a full year, prior to going on thyroid medicine. After I started thyroid medicine, it went away within 10 days & hasn't come back. For me, it was definitely a hypo symptom.

jamcas profile image
jamcas• in reply toLuna1390

Wow, I can't believe you have been in the same situation. if you don't mind me asking , how did you eventually get your diagnosis of hypothyroidism? Everything seems to be pointing towards that, including a big family history of it .

Luna1390 profile image
Luna1390• in reply tojamcas

I went to the dr to be tested for MTHFR and I mentioned I had felt tired lately. She ran a full thyroid panel & I had TPO & TG antibodies, raised TSH, and low FT3. Then I realized all my other weird, "random" symptoms were Hashimoto's and it all made sense. I have seen costo listed on thyroid symptom lists.

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