The second lot of bloods are in....seven weeks after the first lot
On 125mcg levo, 10mcg T3
Serum free. T3 4.5pmol/l (2.5 - 5.7)
Serum free T4 13.4 pmol/l (9 - 20)
TSH 0.13 mu/l (0.35 -5)
Previous results on my last post....
I followed folks advice after my inital results and quietly upped my levo to 125mcg ( the consulant had dropped me from 150 to 100) and have been splitting my 10mcg dose of T3 ( liothronine) so 5 mcg at 6 amish and the other around 3-4 pm
I am pleased to report that i amfeeling a lot better!
I went on holiday straight after my last consultant appt a little downheartened by his attitude, followed your advice and actually had a great time, was very apprehensive as was going to be a very busy walking exploring and catching up with friends break in usa, but had set time up for day on and a day to recover! And was actaully able to keep going all days with no major crashes and fatigue...had this been a year ago...i would have ended up in bed after day 1..still have tingling hand foot lhs, and energy levels are still less than id like, but i cant be greedy! Foot pain has stayed away and sleeping better getting at least an extra hour each night, head is clearer but memory still not always sharp....
Have since now been diagnosed with T2Diabetes and blood pressure and started on 2.5 ramipril for the last few weeks...prob all related to gaining 3 stone in last 2plus years with an u der medicated thyroid! But pleased to say 1/2 stone has come off since i started on T3.. another 2 1/2 stone to go!
Questions..
Do u think these reults are optimal or still room for improvement..if so what am i aiming for
is the consultant going to throw a paddy and try n drop my T4 when he sees tsh 0.1 He thinks i am taking 100mcg, and sadly kept wittering on about must not suppress too much as get heart issues..grrrrrr
How can i source levothyroxine without a scrip? ( i appreciate this info needs to be pm'd to me)
Thanking you all for your time and advice x
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MishB
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Great to hear you are doing well! I’ve just started T3 too so I’m hoping I’ll be the same as you! Good luck and keep going!
It's impossible to know how your doctor will react. Most freak out when they see a TSH below range, some are OK with it (the more enlightened ones). You should never dose by the TSH, BTW.
While it's true that hypothyroidism and especially low FT3 levels can cause weight gain and an inability to lose weight, in my case insulin resistance is the main culprit. I have managed to put on weight while on 4 grains of NDT while being insulin resistant. In my opinion, it's essential to get your blood sugar and insulin levels down in order to lose weight.
Hi thanks for your reply, sadly the Consultant still watches TSH, despite prescribing T3! Just need counter argument ..esp as its prob cos i upped the T4.. he doesnt know that as felt not great after the inital 6 weeks on his titration and folk here felt he had dropped me too quickly ie by 50 as he added the T3
No metformin yet, havent actually been offered it, altho endo suggested gp consider it or i could try n self manage and actually have diabetic eye screening today, will book another gp appt after i see the endo ( 24th nov) to discuss further
Unfortunately, in my experience, weight loss is all but impossible as long as insulin levels are high. Be sure not to overdose T3 in an attempt to lose weight!
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
If/when also on T3, make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Is this how you do your tests?
As you have Hashimoto's it's important to regularly retest vitamin levels
When were these last tested
What vitamin supplements do you currently take
Are you on strictly gluten free diet?
Your results suggest you are slightly under medicated....assuming you did testing as advised
Yup have Hashimotos and PA, you have kindly advised me in the past and on my last post having started T3/4 trial But u reply and advise many i am sure u wont remember
Bloods always at 08.30, fasting and no T4 24 hrs and T3 taken 10 hrs before test
On mg,vitD,folic acid, and B12 inj every 8 weeks. admittedly these havent been retested since July 2019
Ferritin 224 (20-275ug/l
Folate 19.1 (2.7-34)
B12. 969 low is <145
VIt D. 167 (50-150nmol)
And GF nearly two years niw...and has helped the leaky gut side of things
U say poss still undermedicated...need more T3 or T4, sadly consultant not easy to chat too and last time was not happy to adjust anything despite only slight improvement in symptoms...so any adjustments may need to be done quietly by me....hence request for how to purchase levo, as fast using up my supply of 25s from nhs...do i need to poss go back onto the 150?
Look forward to your thoughts, and much appreciated
You might experiment with trying a small increase in Levothyroxine....perhaps 125/150mcg alternate days .....retesting in 6-8 weeks
But if you can't get an agreed dose increase in Levothyroxine, you would need to find the extra Levothyroxine elsewhere
Wearing a Fitbit can give good printable evidence that you are not over treated.......assuming you still have low resting heart rate
I found I ended up back on same dose of Levothyroxine (125mcg) after it was initially dropped to 100mcg. Plus 20mcg T3. But we are all different. I have Hashimoto's and gluten intolerance and Heterozygous DIO2. More details on my profile
Hi SlowDragon, and everyone elses advice welcolme too........i saw endo yday, who was happy! With The T3/4 levels given above on 10mcgT3 100T4
TSH as expected ...again was his target...sooo annoying n said better than prev visit, but will check results again in 3 months.....quality of life scores much improved!
So he has given me another private script for T3... yey...but did suggest that maybe need to increase my T4....after next results are in...i darent say already had n prob was why feeling better......hes not the easiest chap and dont want my T3 taken away
BUT...i have been upping my T4 as u suggested. And this has helped++but no retest yet as only been two weeks.....as he hasnt upped T4.. i am fast running out of my overstocks of T4... is it easier to get without a script than the T3, and could you guide me as to how to go about getting a supply.....i appreciate that info may need to be PM to me
Have taken allsorts...refused the teva brand as seen several folk on here not,getting on with it....and so seem to get northstar or mercury pharma...have to keep reminding pharmacist not to give teva.
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