Tsh and t4 what happens with these why meds’ are stopped?

[Wwerty]

Can anybody explain to me about tsh and t4 and what happens when medication has been stopped, brief back story: diagnosed July started on 25 mcg, tsh was 5.8 and tested positive for antibodies, tablets make me dizzy but carried on taking them, 6 weeks later tsh was 3.8 dose in creased to 50mcg, really bad palpitations and still dizzy so gp reduced to 50 and 25 alternate days, palpitations continued and stated with anxiety, gp increased to 75, really bad palpitations and chest pains, anxiety through the roof to the point I thought I was going crazy, gp dropped dose to 25 and take at night, this helped with palpitations, chest pain stopped, dizziness stopped instantly after taking at night but after a few days I started waking at 4:30 in the morning and shaking which would last all day, anxiety still bad but having horrible racing thoughts, dr stopped meds saying maybe they was wrong to put me on them, 2 weeks on Ended up at a&e due to bad palpitations and shaking, the checked my bloods which came back at tsh 2.7 and t4 15, they said I am going through withdrawal and they don’t think I’ve got hypothyroidism 🙄, so currently I’m still shaking but all my symptoms are coming back, I’ve been off meds two weeks, I’ve got to have another blood test on Monday for tsh and t4, what would the results show? Would they change so quickly? I personally think I was and am shaking because they reduced my dose and now stopped and that it’s my adreanals struggling to push what little thyroxine I have around my body, ( I’m new to all this so just guessing and struggling to trust what my go says)

Sorry for the long post was just wanting to know , if I am hypo would my bloods change that quickly in a week?

[Wetsuiter]

did the dr do any tests in between all the changes?

[Wwerty in reply to Wetsuiter]

Only tsh 6 weeks after starting levo and it was 3.8, a&e say my body is all messed up with all the dose changing and stuff which I can totally get but now I feel like I’m going to have a fight on my hands because they are now saying they don’t think I’ve got an under active thyroid and it could have been a virus 🙄, but all the symptoms I had before diagnosed that I didn’t associate with thyroid are coming back

[Wetsuiter in reply to Wwerty]

well several things jump out at me, but I'm sure someone knowledgeable like GG will be along soon, so i wont muddy the waters with inexperienced opinion, at this stage.

[silverfox7]

Have you only taken one brand of Levo, if so which one? Tablets contain fillers to bulk it up and to keep it stable. There is usually a selection in each one but because there is a selection there may be something in that disagrees with you. Worth mentioning as a possible reason

[Wwerty in reply to silverfox7]

This is what I have been telling the drs all along, I think it’s the acacia that is in them, I’ve only taken mercury pharma, I’m on nothing at the moment because they think they may have misdiagnosed me, I’ve got another blood test on Monday (tsh and t4) I’m just wondering if my levels will have changed much in a week, I’ve been off meds for 2 and half weeks and most of my symptoms that I didn’t even associate with thyroid have come back, painful thighs, stiff joints, itcy ears( I don’t know why but it stopped when I was on levo) weak legs if I’ve been stood too long, no motivation, night sweats, puffy fingers, restless legs, burning feet, internal tremors.

I’m just don’t understand how the blood tests work if that makes sense, last week my tsh was 2.7 and t4 15, would my tsh rise and t4 fall if I’m under active and not medicated, it’s all so confusing, thanks for replying

[humanbean in reply to Wwerty]

would my tsh rise and t4 fall if I’m under active and not medicated,

Yes.

[Wwerty in reply to humanbean]

Thank you for your reply, I’m kind of hoping it changes vastly before I have bloods done on Monday because I think I’m going to have a fight on my hands

[SlowDragon Administrator in reply to Wwerty]

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Vitamins also drop if GP keeps messing about changing dose, especially after Levothyroxine is stopped

Ask/insist GP tests vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)