Blood results check: Hello....I am underactive... - Thyroid UK

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Blood results check

Kooks profile image
30 Replies

Hello....I am underactive and have been for 12 yrs, 2 years ago after blood results my Levothyroxine was reduced from 100mcg down to 75mcg. I don't think I'm getting enough meds!

Can you please look at my lab results and kindly leave a comment. It says their normal but I think the T3 is low. Maybe I'm wrong.

Thank you

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Kooks profile image
Kooks
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30 Replies
SeasideSusie profile image
SeasideSusieRemembering

Kooks

The aim of a treated hypo patient generally is for TSH to be 1 or below or wherever it needs to be for FT4 and FT3 to be in the upper part of their reference ranges, if that is where you feel well.

Your FT4 is 56% through range and your FT3 is 21% through range. Your conversion of T4 to T3 isn't good but your FT4 is rather low in range so you could do with an increase in Levo as a first step.

Did you have vitamins tested - Vit D, B12, folate and ferritin. It's important to test these as they are often low or deficiency in hypothyroid patients and they need to be optimal for thyroid hormone to work properly. If not tested then I'd get these done, post results and members can make any suggestions for improving low levels if necessary.

Once your FT4 is in the upper part of the range and your nutrient levels are optimal, you can then see where your FT3 lies to see if conversion is still poor.

Kooks profile image
Kooks in reply to SeasideSusie

Thank you. I'm due to have bloods tomorrow for a full blood count but not sure if that means ferritin, B12 etc but I'll check with nurse and request if they aren't. X

Marz profile image
Marz in reply to Kooks

The FBC does not include B12 - Folate - Ferritin - Vit D ... hope your GP is co-operative ...

carroll998 profile image
carroll998 in reply to SeasideSusie

Hi if my tsh is 0.01 and t3 is 4.1 and t4 is 22 is my t3 converting ok please ?. 😊

Lalatoot profile image
Lalatoot in reply to carroll998

You need the ranges for the results to work out the conversion figures.

carroll998 profile image
carroll998 in reply to Lalatoot

Here goes my ranges are tsh 0

30 -5.50

....ft4 10 - 19.80 and ft3 3.50 - 6.70

Lalatoot profile image
Lalatoot in reply to carroll998

I haven't done the maths as it is so obvious that you are a poor converter. Ft4 is over 100% and Ft3 is at the bottom of its range. It should be at least in the top half of the range and towards the top.

carroll998 profile image
carroll998 in reply to Lalatoot

Sorry tsh 0.30 - 5.50..I know my results say I'm hyper but I'm not. But I feel a little better at this range.

Lalatoot profile image
Lalatoot in reply to carroll998

Tsh is not important.

carroll998 profile image
carroll998 in reply to Lalatoot

Thank you, I did think I was a poor convertor but I just wanted it confirming. I cannot get t3 on nhs any ideas please ? You can pm me

Lalatoot profile image
Lalatoot in reply to carroll998

Sorry I can't help with sourcing t3 as I get mine on the NHS.

carroll998 profile image
carroll998 in reply to Lalatoot

Was your conversion similar to mine or worse. Just trying to see if I could try and fight my case again. They said no because I had atrial fibrillation 4 years ago.

DeeD123 profile image
DeeD123 in reply to carroll998

You may find more help if you start your own thread. X

carroll998 profile image
carroll998 in reply to DeeD123

Sorry got carried away, apologies if I offended anyone

DeeD123 profile image
DeeD123 in reply to carroll998

I doubt if you have offended anyone 😉 but as you need answers your own thread will get you further. X

carroll998 profile image
carroll998 in reply to DeeD123

Thank goodness for that !😊

Lalatoot profile image
Lalatoot in reply to carroll998

I live in Scotland and have a good gp and good end. It still doesn't make it easy to get it prescribed but with a convincing case you can.

carroll998 profile image
carroll998 in reply to Lalatoot

Thank you, were my conversions similar to yours ?. I need to get off here not my post x

SlowDragon profile image
SlowDragonAdministrator in reply to carroll998

Suggest you put up post of your own and members can advise

You need vitamin D, folate, ferritin and B12 tested

Getting these optimal improves conversion

What supplements do you currently take

See you had total thyroidectomy

carroll998 profile image
carroll998 in reply to SlowDragon

No thyroid. All off above levels you mentioned above are very good. Thank you

SlowDragon profile image
SlowDragonAdministrator in reply to carroll998

FT4 should be at similar % in range to FT3

Useful calculator

chorobytarczycy.eu/kalkulator

carroll998 profile image
carroll998 in reply to SlowDragon

Thank you x

R2d2c3po profile image
R2d2c3po

Hi, I had a similar experience. A new GP reduced me from 100mcg to 75mcg based solely on my TSH. I had my bloods done privately and both my T4 and T3 were in range but at the bottom. I upped my T4 back to 100mcg did the tests again and whilst my T4 was now in the upper range my T3 was still bottom of range. My original Gp is sympathetic but said I wouldn’t get T3 on NHS in our area. Instead she writes me a private prescription and I source it from Germany. I followed advice from this forum to get my T3 in upper third of range and I only need 5mcg a day of T3 to add to my T4 but it makes such a difference.

(I had RAI so have no thyroid)

We all have different personal stories in trying to get ourselves feeling well. Good luck.

SlowDragon profile image
SlowDragonAdministrator in reply to R2d2c3po

R2d2c3po

Make sure to get plenty of T3 ordered in ahead of Brexit. Not at all clear if access to EU T3 will remain possible

R2d2c3po profile image
R2d2c3po in reply to SlowDragon

Thanks, just about to get another 200 days worth and checked with German Pharmacy who say they can supply with no delay at the moment.

I had almost exactly the same problem! After finally getting up to 100mcg Levo, (a battle in itself!) it was obvious after a few weeks that I would need a further increase. Instead, a test showed that my TSH was 0.01, so I had to take a decrease.

At least it was only half yours - 100/75mcg on alternate days. But after about 4 months on this (having been given a "Reprieve" from having to take yet another decrease as TSH was still below range) I began to get breathlessness and swollen ankles.

Thankfully, heart tests showed no damage, and those new symptoms convinced the doctor that a return back to 100 was needed. This helped a bit, but I will need to pester the doctor again soon for a further increase.

The fact you are a poor converter means that you will need an increase of Levo, and likely T3 down the line.

If you haven't tried that, make a bullet list of your main symptoms and how they affect your life and give it to the doctor to read. It might convince that you are under, not over medicated.

all the best x

Kooks profile image
Kooks

Thanks to everyone for your advice, I get my bloods taken regularly for B12, iron and Vitamin D due to also having Fibromyalgia. I asked the nurse today what my last reading for these were and she said they were normal. I will ask about getting an increase in my levothyroxine or T3 as a separate medication. Wish me luck and thanks again x

SlowDragon profile image
SlowDragonAdministrator in reply to Kooks

"Normal" is an opinion......not a result.

You are legally entitled to printed copies of your blood test results and ranges

Fibromyalgia is often linked to low FT3

FT3 should be at similar % through range as FT4

Useful calculator

chorobytarczycy.eu/kalkulator

What are your actual results and ranges for vitamin D, folate, ferritin and B12

Looking for vitamin D at least over 80nmol

Folate at least over ten

Serum B12 at least over 500

Active B12 over 70

Ferritin at least half way in range

Kooks profile image
Kooks in reply to SlowDragon

Ok thanks for that. I will phone my surgery tomorrow and get a print off. Great info x

SlowDragon profile image
SlowDragonAdministrator in reply to Kooks

Very likely GP only tested TSH ....or TSH and FT4....completely inadequate

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