t3 withdrawel

[katherine107]

moving to Brighton in 2 weeks and have been told ccg will not prescribe t3. i have been taking liothyrinine since 2012 through endo. How do i go about keeping it on prescription please. cannot function without it. Can it be stopped immediately by gp surgery? Would they have to refer me to endo first? so worried

[msmono]

I'm not surprised you are worried. There is some info around NICE guidelines with T3 on this website. I'll try and find them and link you until someone more knowledgeable than me comes along to help you

[msmono]

I don't know if this will help - you may need someone to suggest how you can use it as Im inexperienced on this. thyroiduk.org/tuk/campaigns...

[msmono in reply to msmono]

this sentence at the bottom: "If you have had your T3 withdrawn without a referral to an endocrinologist you could try going back to your GP with this guidance and ask for it to be reinstated whilst you wait for a referral."

[MaisieGray]

The document that guides prescribing of Liothyronine is that provided by the Regional Medicines Optimisation Committee (RMOC). Although the 2018 version was revised in July this year due to the lack of clarity of the original version, it still lacks definition and requires a degree of interpretation; and certainly doesn't expressly cover your situation. I'll give you the link to the whole document, but to answer your question, it states:

The review of NHS patients presently receiving liothyronine is to be managed locally and scheduled according to service capacity. Local commissioners should consider providing advice to GPs to support the gradual conversion of current patients to levothyroxine, where clinically appropriate, with NHS endocrinologist support, and with appropriate arrangements for endocrinologist review.

The abrupt withdrawal of liothyronine therapy from patients who have been stabilised on treatment for hypothyroidism is inappropriate.

Treatment changes are to be under consultant NHS endocrinologist review or in circumstances where a GP is fully supported by a consultant NHS endocrinologist.

sps.nhs.uk/wp-content/uploa...

[SlowDragon Administrator]

Brighton CCG is one of the worst. Contact Improve Thyroid Treatment campaign on Facebook for info on anyone who has managed to get T3 prescribed on NHS

They may have to change current stance .....but look to be dragging heels into autumn 2019 publication of new NICE guidelines

gp.brightonandhoveccg.nhs.u...

GP should not alter/stop T3 prescription - should refer to endocrinologist

pulsetoday.co.uk/news/clini...

thyroidtrust.org/a-gp-write...

New NHS England Liothyronine guidelines July 2019

Note that it says test should be in morning BEFORE taking Levothyroxine

Also to test vitamin D, folate, B12 and ferritin

sps.nhs.uk/wp-content/uploa...

Open prescribe website - current rate of prescription in Brighton CCG - just 13 prescriptions in last year

openprescribing.net/analyse...

[katherine107 in reply to SlowDragon]

Thankyou for this info