Is inner shaking and balance problem connected... - Thyroid UK

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Is inner shaking and balance problem connected with Hasimoto and thyroid

silvisilvi profile image
22 Replies

I am new here and very thankfull for all the advices and directions that I may get and on strict gluten free diet,but for short time ,have Hasimoto and hypo thyroid ,need time for AIP,sometimes some oat,but should not probably,I have full panel test,have done privately,but no Vitamin test,have to go to the lab again.Yes,before testing no medication for 24 hours,low fT4,low fT3,Tsh in range.I have inner vibration and unstable walking and sleeping problems.Taking Eutyrox,small dose,undermedicated,as I found out,will increase dose.Taking suplements but not regularly.selenium ,zink Vit D and C,magnesium and omega 3,few times a week.I am 60,and coping very hard with a symptoms,had been healthy most part of the life or just thought so.My GO suggested AD but I have 3 grandchildren and dont feel D, anxiety yes,for example waiting in line,Inner shaking is not visible,could it be from anxiety since I found out about the illness and had lots od stress last 2 years.Constantly on the internet searching for help,as very disapointed with doctors approach,just following protocols.

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silvisilvi profile image
silvisilvi
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22 Replies
Lalatoot profile image
Lalatoot

Yes I feel shaky inside me when I am very undermedicated. Also when I was very undermedicated I was of balance. You will get more advice from folks if you post the actual blood results and their ranges. With the numbers we can look and see if we would suggest an increase in medication or if we think you have a conversion problem or whatever.

SmallBlueThing profile image
SmallBlueThing

Low calcium could be the reason, though you would be expected to have other noticeable symptoms, such as spasms/cramp.

hypopara.org.uk/hypoparathy...

silvisilvi profile image
silvisilvi in reply to SmallBlueThing

I dont have cramps,spasm but tight muscles yes a bit,back ache yes ,is taking calcium tablets safe...should I do blodcheck first,thank you sBT

humanbean profile image
humanbean in reply to silvisilvi

Calcium should be tested before supplementing. Supplements should only be taken if you find out you are deficient.

Simba145 profile image
Simba145 in reply to silvisilvi

One egg shell has your Dailey calcium needs if you wanna just whip that in a smoothie

silvisilvi profile image
silvisilvi in reply to Simba145

I am not sure that I could,also concerned about salmonela,is there a safe natural food calcium,what about almonds,thank you for your reply.

Simba145 profile image
Simba145 in reply to silvisilvi

when it comes to suppliments i am abit of a know it all being from a sports science background. my advise is if you don't live in america you're eggs are likely fine. but i understand the concern

SmallBlueThing profile image
SmallBlueThing in reply to silvisilvi

Serum calcium should be tightly controlled within range, by our hormone system.

A bone profile test includes calcium and phosphate. If one is high and the other low, there's likely to be a parathyroid problem.

Long-term low calcium causes calcium deposits in the basal ganglia, which can cause balance problems. But, as written before, you would be aware of other symptoms, unless you had simply grown thoroughly used to them as your normality.

silvisilvi profile image
silvisilvi in reply to SmallBlueThing

And please ,what is the parathyroid problem ,maybe I have that, too.I have done 24 hour urin test,I have to locate where I put it.

SmallBlueThing profile image
SmallBlueThing in reply to silvisilvi

There are four, small, parathyroid glands, located behind the thyroid, and they release parathyroid hormone to control the calcium level. If they are overactive (hyperparathyroidism), serum calcium rises and it may be necessary to surgically remove them to control high blood pressure. If there's been neck surgery (thyroidectomy), they may have been damaged/removed, leading to low serum calcium. They can also be damaged by autoimmune disease, though that's rare. Also rare is over production of calcitonin, which decreases both calcium and phosphate (usually phosphate would be high if calcium is low).

Although it gets complicated, hypoparathyroidism is one of the parathyroid problems causing low serum calcium.

Urinary calcium can be tested, but it's perhaps unlikely yours would have been without you knowing why, and in the UK it takes a month to get the results back.

TaraJR profile image
TaraJR

I had inner shaking/ trembling for many moths. It disappeared when I started on T3. My records showed that my T4 had been near the top of the range, but my T3 was near the bottom. I now take a T4/T3 combination and almost all my other symptoms disappeared too.

silvisilvi profile image
silvisilvi in reply to TaraJR

And I have both ft3 and fT4 at the bottom of the range and was taking very small dose of levo,found out that I am undermedicated,but no T3 available in my county.

MariLiz profile image
MariLiz

Have you ever had your B12 levels checked? Low B12 can cause a shaky feeling and loss of balance.

I would suggest approaching your GP for a blood test for B12, ferritin, folate and VitD.

If you have a thyroid problem, these can often be low, and are all needed for the thyroid medication to work effectively. The B12 ferritin and folate need to all be at good levels as they work together.

silvisilvi profile image
silvisilvi in reply to MariLiz

Thank you,my vit D is around 100,feritin 70,have not checked B-12 and folate,my doctor does not send me to do any findings,I did everything private and brought her findings and when I complained about my symptoms she tells me live day by day,your illness is not curable,which led me to terrible anxiety.I found out that I have hypo and hasi myself ,she never even sent me to do any testing. I still have to see her as live in the small community, not enough GPs,and others cant take new patients so I go to the private doctors now and spend a lot from my small salary,in spite of having government and additional insurence.

Not sorry,everything for the health,but I learned more from this community in a few days than from any of the doctors that I have seen.

Big thank you to all,

humanbean profile image
humanbean

Balance problems may be caused by low vitamin B12 and/or low folate. You would need these to be tested. Your doctor might do these if you ask. Make sure to get copies of the results and reference ranges.

...

Inner shaking and being jittery is common with cortisol problems. Unfortunately there is no way of guessing whether or not you have low cortisol or high cortisol, it has to be tested. The symptoms for low and high cortisol have a lot of overlap. If you wanted to you could test your cortisol levels with a saliva cortisol test if you can buy such a test where you live. A good test measures cortisol in four samples of saliva produced throughout the day and also tests DHEA. Many doctors don't "believe in" saliva testing for cortisol, and only do early morning blood tests, so you may have to help yourself rather than getting help from a doctor. Saliva testing is more informative than blood testing for cortisol.

A couple of things you could try without testing, to see if they help ...

Make sure that you always eat a good quality breakfast with generous amounts of protein and healthy fats, and keep the levels of carbs fairly low.

...

You could also try a home-made adrenal cocktail. For recipes see this link :

therootcauseprotocol.com/fa...

For when to take it :

Take 1-2 times/day — an hour before or after food (usually around 10am and/or 2pm)

...

Some people try the AIP diet (Autoimmune Protocol Diet) and feel better on it. I have never tried it myself, but it would be worth looking it up.

silvisilvi profile image
silvisilvi in reply to humanbean

Thank you so much,I will try one or the other,I have done saliva kortizol test,here are the results and big lab shipped me salivetes and I took blod draw at the local lab and sent it back and the lab-mailed me the results.It is the thing to do it if you live in a small town like me.

morning 1.25(ref. 0.5 -5.7

noon 1.71 (ref. 0.2-3.6)

afternoon 1.57 (ref. 0.2 -2.4)

before sleep 1.23 (ref. 0.2-1.3

And local endo saw it and said,ohh it is a bit high in the evening.That was it.

Anyone can comment results,please.If you do the blood test,the needle has to stay in the vein for 3o min till you calm down and than blod draw.The nurse told me this not the doctor.

mourneadventurer profile image
mourneadventurer

Prudent to check and monitor heart rate the inner shakiness might be related to palpitations? Which can be related to SIBO, hiatus hernia, low blood sugar, low thyroid medication, food sensitivities, deficient minerals and vitamins such as Vitamin C and B complex, Magnesium and potassium for example. I’ve been using ReMag, ReMyte and ReAlign (BotanicaHealth) made by Dr Carolyn Dean MD ND. These 100% bioavailable supplements are expensive but effective.

It might also be worth having a look at Dr Deans website as there is a lot of free relevant information available.

Working with a functional practitioner might help - ThyroidUK have a list of recommended practitioners.

silvisilvi profile image
silvisilvi in reply to mourneadventurer

And I do not have acces to the funtional doctor,so will have to fly to the biger city.

I have made balance test and isome aspects are not good but neurologist and endo dont know why,so they wanted to prescribe me AD,which I dont want to take.I am hypo and hasi patient,60 and I knew nothing in the beginning I thought that I was dying so I even wrote letter to my children.Two years later I am still alive but strugling with symptoms,it is a battle.

mourneadventurer profile image
mourneadventurer

Dr Isabella Wenz’s book on Hashimoto’s is possibly a good place to start?

Is it possible to work remotely with a functional practitioner online with Skype or FaceTime and required tests are sent by post.

silvisilvi profile image
silvisilvi in reply to mourneadventurer

Probably yes,and I hope so,but for the first time I want to talk to the doctor personally and later online.Thank you for all of your help.

mourneadventurer profile image
mourneadventurer

You’re welcome.

Another suggestion that comes to mind is the work by Drs Jay Davidson and Todd Watts they have some very good YouTube videos regarding their detox protocols using Microbe formulas sold in the UK as Cellcore Biosciences (Amrita Nutrition and Beaumed). Their Full Moon protocol is a useful starting point which might indicate whether or not the full protocol might be of assistance.

It nearly goes without saying that if you increase T3 you’ll need to ensure all the required amino acids, minerals and vitamins are supported in a format that can be utilised.

Dysbiotic bacteria including H. Pylori, parasites such as Protozoa and worms thrive on fast release sugars so it is also key to alter your diet and lifestyle. The internal buzzing might be insulin resistance related to these uninvited guests.

I also found the Emser nose wash using their therapeutic salt very helpful and I initially included a few drops of Dr Dean’s Picosilver to alleviate the vertigo. As Magnesium (ReMag) and minerals (ReMyte) were replenished and the bacterial load reduced by the salt and Picosilver my balance has thankfully returned to normal. Takes time and go slowly alternating nostrils daily for a nose wash.

mourneadventurer profile image
mourneadventurer

Have you had your Active Vitamin B12 checked? Some symptoms are unsteady walking gait, balance issues, tingling of extremities including fingers, toes and tongue, tongue smooth and swollen with teeth indentations on sides.

These symptoms can be easily overlooked as well as fatigue that can overlap with other causes.

The active Vitamin B12 Test is crucial as it measures what is happening inside the cell. Best not to supplement until this is checked. The normal B12 blood test can show an excess in the blood which means the B12 can’t get into the cell hence the need for the Active B12 Test.

Also if supplementing B12 avoid cyano-cobalamin and opt for methyl, hydroxyl or adenyl. The HealthUnlocked Pernicious anaemia group should be able to guide you.

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