Seriously confusing blood results! Help underst... - Thyroid UK

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Seriously confusing blood results! Help understanding please

g0courtney profile image
4 Replies

Hi there,

(I will also attach pics of my blood results below)

Since 2016 I have been living with a diagnosis of overactive thyroid (with graves antibodies present). Since Christmas this has been very manageable, and I have been on 2.5mg of Carbimazole daily.

In July I had a check up and my blood results showed me to be underactive (despite the low dose of Carbimazole)

TSH: 9.3, T4: 13

I was advised to stop medication and have two blood tests in the following 6 week period.

At this point my TSH was 0.62 and T4 at 17 - once again told to stay off meds.

I have just received a letter with the results of my second blood test and its totally different!

TSH: 0.01, T4: 45, T3: 23.8

AND I have been told to restart Carbimazole at 20mg daily!!! Why this huge jump? How could I have gone underactive while on a tiny dose previously.

I have asked before if I could have both hashimotos and graves? I don't know how possible this is if I have graves antibodies but I will ask my doctor (although they never give me useful answers anyway!!)

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4 Replies
SeasideSusie profile image
SeasideSusieRemembering

Two months ago in this thread

healthunlocked.com/thyroidu...

you said:

As far as I can remember, I haven't had a TRAB or TSI test done.

Have you since had them tested and they were positive?

And in this thread

healthunlocked.com/thyroidu...

your Blue Horizon results show positive TPO and Tg antibodies confirming Hashi's but you never responded to the replies members made.

Since your first post a year ago members have been asking about your antibodies and explained the fact that doctors often mistake Hashimoto's for Graves. Have you actually done anything about following this up and finding out if you do actually have Graves or if you are in fact incorrectly treated?

g0courtney profile image
g0courtney in reply to SeasideSusie

Thank you for your reply! My blue horizon test only highlighted my vitamin issues, I didn't realise the TPO and tg meant anything relating to my thyroid.

I've asked my endo repeatedly if it's something worth testing and they just tell me it's an irrelevant thing to investigate

SeasideSusie profile image
SeasideSusieRemembering in reply to g0courtney

My blue horizon test only highlighted my vitamin issues, I didn't realise the TPO and tg meant anything relating to my thyroid.

My reply to your Blue Horizon results included the comment:

Your Thyroid Peroxidase and Thyroglobulin antibodies are raised and confirm autoimmune thyroiditis aka Hashimoto's which is where antibodies attack the thyroid and gradually destroy it. The antibodies fluctuate and cause fluctuations in test results and symptoms. You may have been diagnosed with Graves erroneously whilst you were in a "hyper" phase of Hashi's - ie when the hormone levels were high after an antibody attack, as the dying cells dump a load of hormone into the blood which gives low TSH and high FT4 and FT3.

**

I've asked my endo repeatedly if it's something worth testing and they just tell me it's an irrelevant thing to investigate

Then you need to run away from this endo very quickly, he hasn't got a clue.

SlowDragon profile image
SlowDragonAdministrator

Private testing for suspected Graves - TSI or TRab antibodies

medichecks.com/thyroid-func...

Wether you have a Graves or Hashimoto's, either way....strictly gluten free diet helps thousands

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

EXTREMELY important to regularly retest vitamin D, folate, Ferritin and B12

These frequently need supplementing to maintain optimal levels

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