Feeling over medicated could someone please gi... - Thyroid UK

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Feeling over medicated could someone please give me some advice on these results

BuzzBuzz12 profile image
23 Replies

Endocrinologist did bloods 6/6/2019 came back TSH. 0.29 FreeT4 18.8 FReeT3 3.6 I was feeling fine then lately have felt different sweating tired but not sleeping so exhausted bone pain muscle pain constipated had my bloods taken at my gp surgery last week visited the gp for my results today only tested TSH which is 0.49 gp says it’s a good level but I feel terrible my endocrinologist has asked my gp to aim for my blood levels for 0.27-2.5 ie bottom half of the normal range I take 100mcg Levothyroxine daily could anyone please help with these ranges please Thanks

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BuzzBuzz12
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23 Replies
greygoose profile image
greygoose

What you've given us are the results. You haven't given us the ranges. Therefore it's rather difficult for anyone to comment. Could you add the ranges, please, the numbers in brackets after the results? :)

BuzzBuzz12 profile image
BuzzBuzz12 in reply to greygoose

They are all I have I can try and ask for print outs from my doctor tomorrow thank you for trying to help me I really appreciate it

greygoose profile image
greygoose in reply to BuzzBuzz12

You're welcome. And do try and get the ranges, because they vary from lab to lab. So, we need the ranges that went with your results to make sense of them.

BuzzBuzz12 profile image
BuzzBuzz12 in reply to greygoose

Thanks

BuzzBuzz12 profile image
BuzzBuzz12 in reply to BuzzBuzz12

Hi Greygoose these are what my gp surgery gave me today my last three blood tests 16th July is the most recent one I would be grateful for any advice thank you

BuzzBuzz12 profile image
BuzzBuzz12 in reply to BuzzBuzz12

SeumTSH -20/3/2019 0.81miu/L (0.27-4.2). —————— Results16/6/2019 TSH 0.29 (0.27-4.2)free T418.8Free T3 3.6. 16/7/2019 0.49miu/L (0.27 -4.2) i really hope you can understand this many thanks

SmallBlueThing profile image
SmallBlueThing

Even without the ranges, your ft4 to fT3 ratio is worse than 5:1, indicating poor conversion.

maxart profile image
maxart in reply to SmallBlueThing

Now that’s super useful - thank you!

Judithdalston profile image
Judithdalston

Ask surgery if you have had any ferritin, b12, folate and vit D tests too and what were results and ranges? They need to be optimal , in upper part of range etc, to aid good thyroid health and conversion.

BuzzBuzz12 profile image
BuzzBuzz12 in reply to Judithdalston

Thank you I will ask

SlowDragon profile image
SlowDragonAdministrator

Bone pain is often low vitamin D - extremely common with hypothyroidism k especially with Hashimoto's

Sweats at night low B12 common hypothyroid problem

Constipation common if still hypothyroid and FT3 is low

Just testing TSH tells nothing

Full Thyroid and vitamin testing essential

If hypothyroid, especially if cause is Hashimoto's, We frequently need to supplement some or all these vitamins virtually continuously in order to keep optimal levels

BuzzBuzz12 profile image
BuzzBuzz12 in reply to SlowDragon

Thank you I will follow your advice

milkwoman profile image
milkwoman in reply to BuzzBuzz12

I agree with SlowDragon.

I wish you also had RT3 result as that would be helpful BUT I think you could benefit from T3 added to your Levo.

BuzzBuzz12 profile image
BuzzBuzz12 in reply to milkwoman

Thanks

NWA6 profile image
NWA6

Hey Buzz 👋 Try to put your results like this :-

TSH 0.29 (0.27 -4.2)

FT4 18.8 (????)

FT3 3.6 (????)

If you set it out this way it’s easy to interpret.

If what I’m thinking is correct the same thing happened to me. I kept increasing my Levo to feel better but my FT4 only got to the top range a few times and didn’t make any difference because my FT3 was always at the very bottom range.

I really would like to know why I got Hyper symptoms even though my FT3 was so low. The only thing that helped was to add T3. Now my FT4and FT3 are only middle range but I feel perfect 👌

abartme profile image
abartme in reply to NWA6

Now that's interesting-experiencing similar issues only just experienced tachycardia (120) yesterday with a normal BP ! Also bathroom issues last nigh and this morning but now I feel fine. No meds today which is only 60 mcg of levo, down from 65ml of armour which I was overmedicated on. Just can't get this right ! Tsh is around 1.30 very low T3 2.5 range 2.0- 4.4 don't have t4 but I know it was low.long road coming down of too much (about 3 months now) and just can't seem to normalize. I'm afraid adding t3 could cause palpitations ?? trust Doc's less and less (-: Your are not alone...

NWA6 profile image
NWA6 in reply to abartme

I don’t think adding T3 will cause palipitations. Your FT3 is really low. Have you been on Levo long enough? Do you need another test before adding? If it is a concern then it is sensible to add in slowly over a few weeks (I didn’t but I’m a bit gun ho 😬) did you try just reducing Armour or it just really didn’t work out for you?

abartme profile image
abartme in reply to NWA6

armour was okay until I increased it by 15mg. Then I ended up in ER after a couple weeks. New Doc says armour is unreliable due inadequate calculations on strength.I will be tested again later this week but t3 does spook me too, although my doc said most people feel better on a little. Been on this ride for about 4 years now. Was stable on 100mcg Tirosint a few years ago. Doc went back to India, new doc let me try armour, all started there LOL. Really armour had side effects one of which was the odor coming off of me ! Didn't whole heartedly trust it..

NWA6 profile image
NWA6 in reply to abartme

Do you were stable and then something must have changed? Such a shame that it all went south 😩 Don’t be scared of T3. FT4/3 tests after 6wks and then if your FT3 still looks low and your FT4 is higher in range then add T3. It’s really not demonic 😀

abartme profile image
abartme in reply to NWA6

Thanks Paula I feel way more secure talking to people on here then with some of the Doc's I've seen. Yes I think I want to try a low dose of t3 while on Tirosint .50. It's amazing what happens once you've been overmedicated. Hard to find a new normal.

BuzzBuzz12 profile image
BuzzBuzz12

Paula6 thanks for that but my doctor didn’t test FT4and FT3 on my last blood tests and says everything is in range I’ve just been discharged from my endocrinologist im just confused

NWA6 profile image
NWA6 in reply to BuzzBuzz12

Bit you did put FT4/3 results in your post, so you just need the range to go with them. You also need to get yourself a full thyroid history. You have one from June, any others? Get another one done in August and repeat till you see a pattern of symptoms and test results but you cannot rely on TSH. You either convince your GP to do it or you get it done privately but no one can guide you if you don’t have a history 😬

BuzzBuzz12 profile image
BuzzBuzz12 in reply to NWA6

Ok I’m thinking of having bloods done privately but thank you

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