Help totally confused : My doctor prescribed 10... - Thyroid UK

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Help totally confused

Rufusjill profile image
10 Replies

My doctor prescribed 100 levothyroxine

Had my own blood done which came back with a few issues, my own doctor decided to re test my thyroid but totally ignored my own blood test , his results came back normal , so I am to stay on 100 levothyroxine

The tests I had done were 2 weeks previous, and show issues with my liver

ALT. 89.1

GGT. 62

And ferritin levels , plus high thyroid level

My doctor did not check any of these issues

What should I do now , I am not convinced that I’m stable , my hair is still falling out , still issues with energy levels , skin , nails, lack of sleep. Weight gain .Would appreciate some advice

Thank you

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Rufusjill profile image
Rufusjill
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10 Replies
greygoose profile image
greygoose

By 'stable', do you mean optimal? Just being stable on levo is not much use, because you can be stable at any level, but if your FT3 is too low, and you have hypo symptoms, you won't be optimal.

Have you ever had your antibodies tested? Do you have Hashi's?

Your FT4 is very high, but your FT3 is not too high ate all, so you obviously have a conversion problem. Have you thought about trying T3?

Rufusjill profile image
Rufusjill in reply togreygoose

According to my doctor I am on the right dosage , my concern is the issues that are flagged up on my private blood tests , the liver issue and high ferritin levels plus the indication that my thyroid is now to high , how can my doctor do blood tests within a few days of these results and yet the doctors results say My thyroid is within range .

I would have also thought he would have done the check on my liver , ferritin to see if he got the same results.

Regards jill

Rufusjill profile image
Rufusjill in reply togreygoose

I have not had my antibodies checked , my doctor has just done the standard thyroid check

greygoose profile image
greygoose in reply toRufusjill

By that you mean just TSH? If so, he has absolutely no idea if you're on the right dose.

But, your 'thyroid' is not too high. Your FT4 is too high. But that is either because you have conversion problems or you have Hashi's. You really need your antibodies tested to find out.

Did you ask your doctor to test the liver? He would have no idea about the ferritin, anyway. They don't 'do' it in med school.

SlowDragon profile image
SlowDragonAdministrator in reply toRufusjill

You can get antibodies tested at next test

Getting vitamin D and folate optimal will very likely lower FT4

SlowDragon profile image
SlowDragonAdministrator

Reply here to same results in previous post today

healthunlocked.com/thyroidu...

Unless you feel clearly over medicated, these results don't show over medication.

Improving low vitamin levels can help improve conversion of FT4 to FT3. This will raise TSH slowly and FT4 will drop,

Did you do this test as early as possible in morning and fasting and last dose Levothyroxine 24 hours prior to blood test?

Rufusjill profile image
Rufusjill in reply toSlowDragon

My private blood tests were done around lunchtime

My doctors bloods were taken at 10.30 am

Took my levothyroxine at 8 am on both occasions and had breakfast 1 hr later

I was not told to not take my medication prior to the tests or to fast

SlowDragon profile image
SlowDragonAdministrator in reply toRufusjill

So FT4 is false high, it's showing you took your Levothyroxine

Always aim to get blood test as early as possible in morning and fasting and before taking Levothyroxine

Angel_of_the_North profile image
Angel_of_the_North in reply toRufusjill

So both tests are inaccurate for thyroid.

SlowDragon profile image
SlowDragonAdministrator in reply toAngel_of_the_North

You weren’t over treated on 100mcg levothyroxine

Ft4 is high because you incorrectly took levothyroxine before blood test

Testing as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before blood test gives highest TSH and lowest Ft4

Folate was deficient and vitamin D too low

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