Help with Levo: Hi just wondered has anyone tried... - Thyroid UK

Thyroid UK
104,664 members121,475 posts

Help with Levo

Bible1000
Bible1000
16 Replies

Hi just wondered has anyone tried Levothyroxine liquid. My consultant said it might help me i have nets cancer and had radio active iodine so thyroid doesn't work have to rely on meds. thyroxin doesn't suit me neither does NDT or T3 so I'm Struggling. I can't get dose right due to monthly cancer injection and the fact it makes all medication react I'm not sure if it's the fillers. Thank you. D

16 Replies
oldestnewest
radd

Bible1000,

Sorry to hear of your nets cancer.

All thyroid hormone replacement requires optimal iron and nutrients to work well, no matter what the cause of hypothyroidism. Have you had ferritin, folate, VitB12 and ferritin tested ?

Reply
Bible1000
Bible1000
in reply to radd

Yes had test iron 18 and 20 is the highest. B12 350 D3 110 TSh was ,0.2 but it should b lower now as this was 2 weeks ago and I've increased thyroxin and 5 grains of T3 makes me ill but still took it. I have it checked each month as injection means malabsorption + they removed most of my bowel and liver . Never the same after. I have b12 d3 Iron done bloodsand liver and bone etc monthly. I take 2 curcumin CBD proabotic and minerals and vit c. I am 4 days plant based but have liver once a week and org meat twice. I don't drink or smoke.Remember I'm in UK so I think it's a different method of measurement. I just feel so ill. Thank you. D

Reply
radd
radd
in reply to Bible1000

Bible1000,

This forum is based in the UK.

T3 is measured in mcg. NDT is measured in grains. If you post exactly what meds you are taking and the amount, members will comment.

Post any blood test results complete with ranges (numbers in brackets) and members will comment.

If your injection encourages malabsorption issues, it may be that your gut needs supplements to help absorption. If you supply further details, members will comment.

Reply
Bible1000
Bible1000
in reply to radd

Sorry

Reply
radd
radd
in reply to Bible1000

Bible,

For what ?

Reply
Bible1000
Bible1000
in reply to radd

Not used to posting so did not no where you were or how it works d

Reply
radd
radd
in reply to Bible1000

Bible, ranges are needed to identify adequacy.

Some are reactive to the fillers in thyroid hormone replacement and liquid thyroxine is lactose free so may be more beneficial to you but it will still require good levels of the cofactors known to help thyroid hormones work.

.

thyroiduk.org.uk/tuk/treatm...

.

thyroiduk.org.uk/tuk/treatm...

Reply
Bible1000
Bible1000
in reply to radd

Thank you. They r discussing putting me back on hrt for sleeping and sweats not sure about this but Prof Caplin knows what he is doing. (I hope) d x

Reply
Bible1000
Bible1000
in reply to radd

Thank you that link really helped mine is mercury oral and it looks better. I feel much better for seeing that. Many thanks d

1 like
Reply
McPammy

Hi.

I’m very sorry to hear of your situation truly.

I was put on liquid Levothyroxine last year by my private Endocrinologist. We were ruling out fillers. But what I found was it is so much better for taking my dose twice a day instead of in one hit. As it’s liquid in a syringe you can take any amount unlike splitting of tablets. I now take 2 doses per day which is suiting me much better.

I hope you are alright today and you get the correct help and guidance for your situation.

Kindest regards

Pam

2 likes
Reply
Aesm

I was diagnosed last year and live in Italy. I have been on liquid levo from the start and am now on 100mcg. I take it in an oral form. Most of the small quantity of liquid is absorbed in the mouth and throat tissue before it even gets to the stomach so it will prevent some of the issues associated with digestion etc. it sounds like it may be ideal for your situation and should be worth trying. Good luck.

2 likes
Reply
Bible1000
Bible1000
in reply to Aesm

Thank you. D x

Reply
SilverAvocado

Bible1000, what do you mean by the treatment not suiting you? Did they make you feel speeded up and racing? Things like a fast heartbeat, feeling restless, feeling hot, anxious, difficult to sleep, etc.

These things can sometimes happen, especially when we're very ill. Its because as the thyroid treatment increases the metabolism, its a lot more work for every part of the body. You can deal with this by starting on a very tiny dose, and increasing the dose very very slowly.

Reply
Bible1000

Hi having no thyroid I have to get meds correct due to cancer injection of octratide it upsets the hormone balance so I never no if I'm on too much or too little or what my best numbers for me are, any meds make me ill. 2 paracetamol I'm in bed for days a sleeping tablet I'm bed a week and so ill. I don't sleep at all now. So trying liquid thyroxin to c if it helps 75 MCR. Thanks d x

Reply
vocalEK
vocalEK
in reply to Bible1000

Wow. That looks like a nasty drug. chemocare.com/chemotherapy/...

Reply

You may also like...