So endo started me on a combo of T3 and T4
5 weeks ago
Gp gave me a script for 28day
The pharmacist has taken it of me and won’t issue again
Seen Gp he said can’t have it sorry
Endo emailed to say hospital won’t provide anymore and it needs to be GP and if can’t get any just use T4
T4 only makes me mental with anxiety
TSH not suppressed
Gp says hospital needs to supply
Piggy in the middle
What to do next
Endocrinologists are permitted to prescribe T3 I am sure.
GPs cannot now prescribe T3 but Endocrinologists can.
Others will respond to your question as it is really ridiculous how they put the patient through untold pressures and messing them about. It's bad enough to deal with hypothyroidism.
I'd also write to your local MP and write to Lord O'Shaughnessy at the House of Lords complaining about the withdrawal of T3 and the fact it was prescribed by an Endocrinologist.
shaws GPs can prescribe T3, what they can't do is initiate prescribing. So once the patient is deemed to need T3 in the long term after the initial trial period, the GP can, if he feels it appropriate take over the ongoing prescribing; which is what my GP does.
The former Health minister Lord O’Shaughnessy resigned his post as Parliamentary Under Secretary of State for Health in December 2018. The current Health Minister is Matt Hancock.
Unbelievable cock up
Your NHS Endocrinologist should prescribe via hospital for first 3 months, then GP is obligated to continue
thyroidtrust.org/a-gp-write...
Tried that letter. Dr would not read it
I had some advice from my local CCG and they have said it’s not them. It’s the U.K. guidelines
How does a pharmacist have the power to take your prescription?? What the actual!! 😩
Endo has started you do the GP can then continue
What explanation did the pharmacist and GP give for taking it?
None yet. I have to put a complaint in to the practice manager to get answers
Within the National Health Service (Pharmaceutical and Local Pharmaceutical Services) Regulations 2013, a pharmacist not only has the right to chose not to dispense ie may not dispense in certain circumstances, but in others, he must not dispense, and this includes:
(2) P must refuse to provide a drug ordered on a prescription form or repeatable prescription where the order is for a prescription only medicine which the prescriber was not entitled to prescribe.
(3) P must refuse to provide drugs or appliances ordered on a repeatable prescription where—
(h)P has been informed by the prescriber that the prescription is no longer required.
He definitely has the power enshrined in law, and if it was the GP who has prescribed and then recinds it, the Pharmacist has no choice but to not dispense.
Are you well on T3? Even the RMOC guidelines indicate that a three month trial is appropriate. I think you could challenge your GP on this. Ask for his GMC number and report him to the GMC as he is not fulfilling his contract - he is supposed to put your needs first, before the CCG. As for the pharmacist I believe he/ she is working beyond their area of competence. Report them too.
I am doing well started it on 27th April
And feeling brand new
I have painted all day and fitted 4 locks to the garage
Cleaned the care and washed it
We started at around the same time. I honesty feel the same. Adding T3 was the best thing I’ve ever done. Normal daily tasks are now easy, i nearly believed that I was lazy and unworthy. I haven’t even started my fight to get T3 on the NHS but I hope I can get lots of advice when i do 😔
Hi you can quote the BTA at both of them - statement says dangerous to suddenly withdraw T3. Other than that RMOC have a guideline and that says after 3 months it’s the GP or you get a shared care agreement in place. It’s cost and budgets as usual being more important than lives.
From the limited information we have, the Pharmacist was not only operating within his competence, but within the law.
Hi yes. But they gave me it then took it away and did not inform me
Do you think I can argue that I am not hypo
I don’t have a thyroid
There is a difference
hi dodge1979 I was responding to the assertion that the pharmacist was allegedly operating beyond his competence and should be reported; to clarify the principle and the absolute law that if a prescriber withdraws the prescription - whether thats right or wrong medically, to do so, or whether it's done in an informed way - in law the pharmacist has no choice but to not dispense ie I didn't want you wrongly going down the track of blaming the pharmacist and formally 'reporting' him as suggested. ie the question of your needing T3, or the rights and wrongs of the GP doing a u-turn on prescribing it are separate from the actions of the pharmacist, although the latter was contiguous on the former.
I think there is an important difference between a pharmacist choosing not to dispense and ‘taking my prescription off me’ although I know they can’t always transfer or return the electronic prescriptions. I am told that there are some good pharmacists out there but my views are tainted by a couple or more experiences with the ‘jumped up’ pharmacist variety. Some are taking great pleasure in seeing our T3 denied (experts on T3 though they are not) as they deem it a waste of nhs money. If pharmacists and their families are upset by my views they need to look amongst their number and weed out those with unprofessional attitudes. I look forward to the day when I no longer have to deal with them at all. Internet ordering and delivery by drone would be a great improvement.
re. they can’t always transfer or return the electronic prescriptions
I had an online pharmacy unable to fill a prescription recently (why they couldn't order in any stock remains a mystery). They read me the electronic prescription code and then cancelled their association with that particular prescription. That allowed me to read the code to another pharmacy, who ordered in some stock and filled the prescription. Given how easy that was, I'm not sure under what circumstances a pharmacy might not be able to transfer or return an electronic prescription.
Thank you JumpJiving , I had no idea, clearly your pharmacist is more helpful or knowledgable than the ones I’ve dealt with.
JumpJiving Yes there is no problem in principle, transferring an electronic prescription even if it has been already added to the Spine by the first receiving pharmacist - the bar code data is simply copied from one to the next so that responsibility for prescribing can be unlinked from the first, and passed to the next pharmacist. When I had to do it recently I simply took a photograph of the Spine code and emailed it my preferred pharmacy in another part of the Uk. But in this scenario however, the issue wasn't about whether the pharmacy had the drug to dispense or that he did or didn't want to, but that the prescribing Dr had withdrawn the prescription; in which scenario, a pharmacist would always be legally unable to dispense. He simply could not do so without breaking the law.
Will we in the future have to carry a 'passport' that states we have hypothyroidism? Why are the Associations so determined (they all have their thyroid glands I assume), that only levo has to be prescribed.
I have my gland and cannot function without T3 so if you do not have a gland at all you definitely need more than levo to recover your health.
Lol
You could but your own NDT or T3 it's easy to order and not very expensive.
sps.nhs.uk/wp-content/uploa...
See opening "summary information "
......if a patient is ever initiated on treatment, prescribing responsibility should remain with the hospital consultant for at least 3 months......
See box below summary on next steps
.....following this trial ....endocrinologist will advise on the need for ongoing Liothyronine
Hi and thanks. I have been told I can’t use the attached link. Because this is for a south region and not we’re I live
Ok will see f I can find one for your area
Here we go
Print out and highlight
Exceptional circumstances
Item 1
northoftyneapc.nhs.uk/wp-co...
Thank you
Would you have one for Hartlepool and Stockton-on-Tees?
Do you want a miracle!
It seems this might cover area very slightly North of you ?
Here's something interesting
medicines.necsu.nhs.uk/liot...
The four NHS England Regional Medicines Optimisation Committees (RMOCs) function as a single national system, with one committee meeting every month to produce once-for-England recommendations and resources.
So the Guidelines produced by Southern RMOC applies to WHOLE OF ENGLAND
sps.nhs.uk/wp-content/uploa...
It's not the patients fault that NHS is incapable of sorting an affordable supply of T3 (from other EU countries) if necessary. T3 is not an expensive medication in any other country in the world
drive.google.com/file/d/1c2...
mjauk.org/wp-content/upload...
Thanks
Endo refusing to see me
Annoying chat with new endo
Endo appointment today 
Second half of email sent from NP
