Parathyroid and high calcium

[Soldieress]

I have high calcium.

Has anybody had a problem with high calcium and Parathyroid Disease?

[bantam12]

Yes

[Soldieress in reply to bantam12]

Hi bantam12,

Thanks for your reply.

How did you go with the high calcium?

[bantam12 in reply to Soldieress]

In what way ? My calcium was very high although I didn't have many symptoms, I had parathyroidectomy and now have just one left.

[Soldieress in reply to bantam12]

Have you felt better from having the surgery?

[bantam12 in reply to Soldieress]

I can't say I've noticed any difference but the aim is to resolve the high calcium level which if left untreated can be extremely serious.

[t3rr]

yes, then had parathyroid blood test, also high, subsequently followed by sestamibi scan and ultrasound to confirm an adenoma which was surgically removed.

[Soldieress in reply to t3rr]

Hi t3rr,

Thanks for your reply.

I looked up about the sestamibi scan and it was saying it could not be accurate. I don't like the idea of having radioactive agents.

parathyroid.com/sestamibi.htm.

Did the ultra sound show where the dysfunctional glands were?

Do you feel better after the surgery?

[bantam12 in reply to Soldieress]

Adenomas can be difficult to locate, neither ultrasound or mibi showed mine up, surgeon had to go in and search for it.

[t3rr in reply to Soldieress]

I think the ultrasound just confirmed the sesta mibi scan, and yes felt completely better after the operation, just took a couple of weeks after the operation of not doing much and then was back doing everything normally again. I had suffered lots of pain in the bones in my legs prior to the op, and literally after the op all had gone!

[julesmarg]

Yes, I had high calcium, referred to endocrinologist then ent surgeon had surgery year ago. , was long route to surgery, which is the only cure if its benign adenoma on one of parathyroid glands. Need calcium blood test, pth blood test and vit d levels checked in same blood draw to determine. Plus scan and maybe bone density testing, kidney testing if had long time. Dont leave it!

[Soldieress]

Hi julesmarg,

Thanks for your reply. Did you need to go off Vit.D3 supplements before the test?

I've had high calcium in the blood just 1 over the range but I recently did a hair mineral test and it showed even more high calcium. I broke my wrist radius 3 fractions so did a bone tensity last year showed osteopenia.

Have you got any tips to not have a long route to surgery?

Did you have the sestamibi scan with radioactive agents? Or just a ultra sound?

Did you feel better after the surgery?

[bantam12 in reply to Soldieress]

If your calcium is high taking VitD is unwise as it won't help your already high level.

i have a website with lots of info

hyperparathyroid.forumotion...