T3 fight

[paul1979]

Hi all

Just had a call from my endo and he is willing to trial me on T4 T3 combo

I have had to fight for over 5 months

He is worried my GP will not issue or give me long term

But that’s my fight to have!!!

Will this improve my tiredness and anxiety issues?

He plans on 150 levo and 10 T3 per day

Or 150. levo and 20 every other day of T3

[SeasideSusie Remembering]

You can't alternate days with T3. It has to be taken every day. It's a short acting hormone, not a storage hormone like Levo.

You need to ensure that your vitamins and minerals are at optimal levels, essential when taking T3, preferably optimised before taking T3.

Vit D

B12

Folate

Ferritin

Low levels/deficiences bring their own symptoms, particularly low ferritin can cause fatigue. Have you had them tested?

[paul1979 in reply to SeasideSusie]

Hi. Yes all tested and all in the low ranges.

I have been taking vitamin d spray and b12 to get levels up but not doing to well on the folate and ferritin

Trying meat and blackpudding

Hate liver

[SeasideSusie Remembering in reply to paul1979]

I think you will do better with your T3 (and your tiredness) if you optimise your nutrient levels. Recommended levels are

Vit D - 100-150nmol/L according to the Vit D Council/Vit D Society

B12 - minimum 550pg/ml for serum B12, Active B12 should definitely be over 70, 100+ would be better

Folate - at least half way through range

Ferritin - half way through range

Are you still seeing a nutritionist? Are you taking the supplements/doses suggested in reply to your original post on the forum?

A good level of ferritin (minimum of 70) is essential for thyroid hormone to work properly.

Symptoms of low ferritin are listed in this article, including low energy levels/chronic fatigue and GI related issues

restartmed.com/low-ferritin/

[galathea in reply to paul1979]

I very recently found that my low folate levels, which have not responded to folic acid are due to my having a faulty gene.... Instead of folic acid i am increasing folate by taking methyl folate. Might be worth you giving the methyl version a try?

[SlowDragon Administrator]

Which CCG area are you in?

Some CCG areas are more helpful than others

If your endocrinologist is an NHS one, then your initial 3-6 month trial of T3 is via Endocrinologist at hospital.

Assuming trial goes well, then ongoing care and cost is taken over by your GP.

Annual review by endocrinologist

Your endocrinologist may need to apply for individual funding request on your behalf

[Judithdalston]

Can’t recommend enough Seasidesusie’s advice re. getting your vits/ mins tested, and supplement if necessary etc, before you add T3, as tiredness for eg might be due to low iron etc. T3 is not easy to add...as you look on the forum you will find various methods to take it: tiny1/4 th pill to start , and alter every two weeks...then as you go up ...some split dose into 2 or 3 doses a day, others one dose during night....you will have to experiment slowly to find what suits you.