Hypo to Hyper??: Hey hoping someone can give me... - Thyroid UK

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Hypo to Hyper??

Henson1980 profile image
7 Replies

Hey hoping someone can give me some advice as I’m not sure what to do next.

I woke at 3am this morning, heart pounding, sweaty palms and a feeling of dread like I was going to pass out or something, I eventually managed to calm myself down and I lay here now feeling exhausted!

I had a private thyroid test done approx 6 weeks ago, it came back that I have Hashis and my TSH level was 4.9. I went to my DR’s with the results and she increased my levo to 100mcg and wanted to re-test me again 1 week later. That’s what we did and my TSH came back as 1.9 so quite a drop after only 1 week of being on the increased dose. Fast forward a few weeks and I’m experiencing bouts of anxiety, upset stomachs, headaches, palpitations and problems sleeping. I’m not due for another blood test until April. I know it’s difficult to advise me without my latest results but I’m not sure what to do. Do I continue with the 100mcg dose until the blood test in April or do I reduce it now to try and alleviate the symptoms I’m experiencing? ....it’s scaring the crap out of me 😩

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Henson1980
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SlowDragon profile image
SlowDragonAdministrator

Have you had your vitamins tested yet?

Or done coeliac blood test?

healthunlocked.com/thyroidu...

Getting vitamins tested and supplementing any that are low will help Thyroid hormones work better

Henson1980 profile image
Henson1980 in reply toSlowDragon

Hi Slow Dragon, yes vitamins were tested, vid d came back as just under the normal range, I take a vitamin D spray for this now. Coeliac blood test came back negative 🤷‍♀️

SlowDragon profile image
SlowDragonAdministrator in reply toHenson1980

So what were actual vitamin results and ranges?

How much vitamin D are you supplementing?

When vitamin D is low, magnesium is often low too

sciencedaily.com/releases/2...

magnesium supplements should be at least four hours away from taking Levo

Alternatively can improve magnesium levels by magnesium flakes in bath or magnesium spray for applying on skin

A daily good quality vitamin C can help support adrenals

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

The ONLY way to know if that 80% includes you is to try it

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

MrTHG profile image
MrTHG

Hi, sorry to hear your going through a tuff time. I suffered similar symptoms when I was on 100mg. Headache were on another level. I think you probably need an increase of does. When my was increased to 125mg all symptoms vanished in the matter of a day. Don't take my word, everyones different. Look at my other thread about juices I drink. Stops Alot of my symptoms. All the best

shaws profile image
shawsAdministrator

To have a blood test after one week's increase is insufficient space. Tests should be six weeks later after an increase. I am assume your doctor increased your dose from 75mcg with 25mccg of levothyroxine?

We can have unpleasant symptoms at times and we don't quite understand what's happening and they can be scary if we're on our own and they are new symptoms to us.

Henson1980 profile image
Henson1980 in reply toshaws

They wanted to do their own set of tests as the one I had done was private. I’m just concerned at how quickly the meds worked and does that mean that I could now be over medicated hence the palpitations, bad tummy and anxiety. I have to laugh when I think back to the day I was diagnosed, thought it was just a case of popping a tablet and everything will be fine but I guess nothing is ever that simple!

shaws profile image
shawsAdministrator in reply toHenson1980

Palpitations can be caused by too little hormones or too high or to a sensitivity to the fillers/binders in the tablet.

Unfortunately it is not as easy as 'popping a tablet' as the majority on this forum have found out.

You could get a pill-cutter and 1/4 tablets and reduce by 1/4 dose and see if that alleviates your symptoms. We are supposed to gradually increase dose (doctors don't do this) being alert for any unpleasant symptoms and reduce to previous dose.

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