No diagnosis but goitre and declining TSH levels - Thyroid UK

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No diagnosis but goitre and declining TSH levels

Oliviasmummy profile image
4 Replies

Hi,

I was diagnosed with a multinodule goitre last year. My bloods have been monitored and the goitre has been scanned a few times. I’ve been told that my bloods are within normal range and they’re happy that the goitre is stable in size.

Can anyone have a look at my blood results over last year and see if they seem ok? I can see that my tsh is declining...is that of any significance?

Dec 2017

Serum TSH 1.02 miu/L (0.3-5.5)

March 2018

Serum TSH 1.07 miu/L (0.3-5.5)

Se thyroid peroxidase Ab conc 12 ku/L <34

July 2018

Free T4 12.2 (12-22)

TSH 0.76 ( 0.3-4.2)

Free T3 4.9 (3.1-6.8)

Dec 2018

Free T4 12.9 (12-22)

TSH 0.67 (0.3-4.2)

Free T3 5.3 ( 3.1-6.8)

I hope that makes sense!

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Oliviasmummy
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4 Replies

Your TSH is improving, not deteriorating, but I believe there may be penalties to your health if it goes too low for those who still have a thyroid gland.

As you fail to mention any health problems, I doubt you have anything to worry about right now as long as your condition is monitored.

What you need to be aware of is the possibility of the goitre enlarging, particularly inwards, so that it starts to affect your ability to breathe. Also the possibility of extreme fatigue; I mean where your brain wants you to continue doing work as you don't feel tired, but your legs are buckling underneath you. There is the distinct possibility that you may need surgery at some future date, but no surgeon will ever be quick off the mark to perform the operation until you feel very ill indeed.

In the meanwhile, get out and enjoy yourself, take a holiday and stop worrying.

SlowDragon profile image
SlowDragonAdministrator

Your FT4 is right at the bottom of range and this suggests your thyroud may be struggling. But the TSH is not responding to low FT4

Your FT3 is improving however

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also extremely important to test vitamin D, folate, ferritin and B12

As advised a year ago in previous post

Low vitamin levels are extremely common, especially if either of Thyroid antibodies are raised

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

You could just test vitamin D initially for £29 via NHS postal kit

vitamindtest.org.uk

If vitamin D result is under 75nmol then improve by supplementing

Local CCG guidelines

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Then retest thyroid and vitamins in full test 2-3 months later

Oliviasmummy profile image
Oliviasmummy

Thank you. You’re spot on with the worrying Panda 😉. I’m currently suffering from awful anxiety which is a relatively new thing for me (in the last year or so). As for other symptoms, I’m always exhausted, cannot seem to retain new information, forget words/forgetful in general, have very dry skin on my knees, elbows and feet.

I saw the consultant today who advised me to monitor my symptoms and get a blood test every 12 months.

Oliviasmummy profile image
Oliviasmummy

TSH 0.79

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