So I have a question that keeps whirling around in my head.
Is Graves controllable?
My 65 year old mother is having her second episode of severe symptoms in 18months. Diagnosed with Graves in 2015, confirmed with positive test for TRAb, she has been on Carbimazole ever since. Her endo is disinterested, and has told her to have RAI. Though he denies her symptoms have any relation to her thyroid. I am in the process of having her consult with a private endo.
Anyway, her TRAb are currently elevated :
1.72 (0.00-0.81 IU/L)
1. I do not know if they are elevated beyond where they have sat since her 'somewhat' recovery from her initial diagnosis, as they have not been tested in between. Do any of you experienced Graves people think this is a very elevated? Are these dreadful episodes that leave her bed-bound being caused by the Graves flaring?
2. Could it really be that her Graves is just uncontrollable, leaving her is a position where the options really are surgically remove her thyroid, or try and hang in there, and risk these continuous, dreadful attacks until there is the potential for her to try the immunisation that's being trialled?
3. Would optimising vitamins have any real affect on the antibody levels? We know that her active b12 is low in range and I plan asking her gp to trial b12 shots for her, but I just wonder if this is really going to help this other major issue?
4. If she has surgical removal of her thyroid, will she still have these episodes, only it will be even more concentrated on her eyes and heart? I read that these are then the focus of the attacks once the thyroid is removed, and given that she has heart palpitations and raised heart rate, and sore/gritty eyes with blurred vision already this seems like a scary prospect.
Feeling very frightened tonight that I might not be able to save her from the hell that's she's in and just want to understand a bit more about all this before speaking to the specialist.