I went to my consultant almost 2 weeks ago and he told me to stop taking my propranalol, i questioned the withdrawal and he said ok be off them by the following week. I have been on them 6 weeks, i have weaned down to taking 1 a day as i didnt like the idea of coming off them immeadiately, i am suffering sleepless nights and headaches again also my heartrate is a little irratic. Has anyone been told to do the same with propranalol and had the same feelings and effects as you had prior to taking them?
Thanks in advanced
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Sm13
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I have been reading your first post of a month ago - when greygoose asked you about your test results with ranges. Did you manage to obtain them as I cannot see them ... I expect you would have needed them before your Endo appointment. We often ask members for their test results so we can make comments - without any information we would be guessing. I think we are making sure you have had the correct diagnosis and the correct anti-body testing. We have seen people here on the forum with the incorrect diagnosis. Was your FT3 over range ?
Sorry not able to help with the drug you mention.
How are your levels of B12 - Folate - Ferritin & VitD ? If they are low in range - they too can be the cause of palpitations and more.
Yes those levels are high but without the ranges - the figures in brackets after the results. There are no anti-body results there either - to confirm Graves or Hashimotos. Are the above results from before you were diagnosed or from two weeks ago when you saw the Endocrinologist ?
Did you ask for copies of your results as mentioned to you above - in my first response So what is being tested this time ? Did you ask for the B12 - Folate - Ferritin and VitD to be tested ...
Do you have a copy of your results for VitD ? - as the amount you take for treatment is often according to your result. 800 IU's is not enough for a fly - I take 5000 IU's and live in the sun - Sigh !
Without antibody testing, your doctors do not really know what is wrong with you, and just just guessing. I wouldn't want anybody guessing at my treatment, when there are tests that can be done to show what is actually wrong.
Those results don't actually make sense, though, because your FT3 is too high compared to your FT4. They're not balanced, which is weird.
That could be a sign of Graves' - it's quite common for T3 to be relatively high, eg still above range when T4 is back within range. Obviously could do with seeing the TRAb/TSI results.
I was just commenting on a possible reason for the FT3/FT4 ratio, which isn't 'weird' for someone with Graves'. So far as I can see, SM13 hasn't mentioned carbimazole.
In principle, I agree with you about having antibody tests before treatment, and that some people are being prescribed fairly high doses of carbimazole when their results are barely over the range, and have only been tested once. However, people are having to wait months before they see their endos for the first time, and it seems TRAb/TSI tests are mostly restricted to specialist order only. Ideally GPs would re-test FT3/FT4 and TSH after 4 weeks and if they are still well over the reference range, at that point be able to order antibody tests and prescribe carbimazole in consultation with a specialist if the result come back positive. This should be followed-up with blood tests every few weeks, as would be the case if he carbimazole had been prescribed by an endo. Unfortunately, this isn't an ideal world.
Twelve weeks waiting to see the endo, plus four to eight weeks for thyroid levels to come down, plus a month or so before thyroid tests were even considered ....that's a very long time to live with the effects of thyroid levels more than double the range. I think it's right to help people make an informed decision, so they understand their thyroid levels might come down anyway without treatment, that the carbimazole might bring them down very quickly (so they need regular re-testing), and that carbimazole can have serious (if rare) side-effects, but I don't think it's right to say categorically that people should decline treatment until they have antibody tests which could be months away. I appreciate this isn't exactly what you're sayng, but some people have.
Agree with all the points you raise. It just frightens me the number of people we see on here that have been diagnosed with Grave's, and given antithyroid treatment without ever having their antibodies tested. Even that some endos refuse point-blank to test them! And, then, when they are finally tested, they find out they actually had Hashi's! We certainly do not live in an ideal world.
I have been tested for antibodies... I am on carbimazole as i have mentiinrd in another post.... I am having further bloods done to check my antibodies again on monday ...
I have also been advised to continue with propranalol but on a lower dose
Please ask me anything rather than question things between yourselves presuming things...
You need good levels of B12 - folate - Ferritin and VitD. So please have them tested. When Hyper or Hypo we need optimal levels to feel well. Have you ever been anaemic ? Are you still taking the CBD oil ?
I take propranolol...I was put on them years ago when my anxiety was very bad..At one stage a GP I saw told me to just stop taking them, it didn't seem right but I did stop them , I was shaking , going dizzy felt very weak within a few hours , I had to start taking them again the same day ...it was so wrong of the GP to tell me to stop .I have never been able to stop taking them..My niece used to take them , she weaned off them very , very slowly, it took her months to come off them completely...your doctor sounds as good as mine (not)..
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So what is being tested this time ? Did you ask for the B12 - Folate - Ferritin and VitD to be tested ...
My first post
Stopping medication? 
Lactose Intolerance 
Hyper / Graves, Help please with 3rd blood test results
Overactive, NHS sucks, and weight gain
