Apologies if this post is long.
I was diagnosed with graves and overactive thyroid about 5 years ago. I had been treating it on and off, but mainly off because I’d heard so many stories of people gaining weight on carbimazole. I have body dysmorphia and weight gain would be highly detrimental to my mental health.
I told my GP I’d like to start treatment again 7 weeks ago, because my symptoms were so bad and I felt like I was (and probably actually was) on the brink of death. Instead of starting me on carbimazole straight away, he delayed this for a week while we got a blood test done. He then put me on 40mg a day.
I then had to wait 6 weeks for a hospital appointment, where the “specialist” (I actually saw a haematologist for some unknown reason, not the thyroid specialist named on my letter) told me my blood test results were missing, so just keep taking the same dose and we’ll see what happens. Is it just me or is that completely ridiculous and outrageous?! I feel like no one is taking this seriously at all, they’re just wasting my time and guessing dosages like it’s some sort of game. I’ve now been taking 40mg carbimazole daily for about 7 weeks, no one has any clue what my levels are like (they didn’t even give me a copy of the initial blood test results) and I’m already gaining weight despite exercising more and lowering my calories from a 3000 (I had a crazy appetite) to 1700. I’m absolutely terrified of the weight gain and extremely likely possibility of going underactive, since I’m being “treated” by complete idiots. Does anyone have any advice? This whole thing is driving me insane. I see no other solution than to stop taking the tablets.