High Free T4: I’ve been taking Levothyroxine... - Thyroid UK

Thyroid UK

137,769 members161,559 posts

High Free T4

Dukemaster profile image
15 Replies

I’ve been taking Levothyroxine 50mcg for hypothyroid my latest results are

TSH 3.04

Free T4 15.2

I have been feeling very unwell shaking dizziness palpitations a friend said my free T4 is too high so I. could be hyperthyroid and taking too much medication I am going to make GP appt but they don’t seem to do an awful lot.

Any advice appreciated thank you

Written by
Dukemaster profile image
Dukemaster
To view profiles and participate in discussions please or .
Read more about...
15 Replies
Marz profile image
Marz

On your post of 12 hours ago the ranges for your results were requested - please post them as labs do vary. Read through your last post/replies where it was mentioned more than once that you are UNDERmedicated ... 😊

Ranges are the figures after the result.

Dukemaster profile image
Dukemaster in reply to Marz

Hi thank you for your reply I did write another post with the ranges as well

TSH 3.04 mU/L. (0.3-5.0)

Free T4 15.2 pmol/L. (7.9-16)

I think this is why a colleague said I may be taking too much as from these lab results my TSH in range but Free T4 on the higher side.

I’m really not sure though I’m going to make GP appt as I’m definitely not feeling right at all. Thank you very much for your reply.

Dukemaster profile image
Dukemaster in reply to Dukemaster

Vit B12 is 137 ng/L (120-900)

I was having 3 monthly vit b12 injections but then stopped them as they said my iron stores were adequate for 2 years 😉

Marz profile image
Marz in reply to Dukemaster

Your Iron stores have nothing to do with your B12. Do you have Pernicious Anaemia ? Testing B12 whilst having injections is not correct - as your results will be skewed. Your latest result proves you still do need those injections ...

Marz profile image
Marz in reply to Dukemaster

Sorry did not have time to go back to previous post ! You are only over-medicated if the FT3 is over range or high - and that was not tested. T4 is a storage hormone and needs to convert into the Active hormone - T3.

You are not feeling good as your B12 is Low - not that your GP will think that - they are content when things are in range - but it is where you are in the range that is key. Read the book - Could it be B12 ? - by Sally Pacholok - or watch the film on YouTube - same name. She suggests 500 to prevent cognitive decline and neurological symptoms.

b12deficiency.info/signs-an...

Scroll down in the above link to read the signs and symptoms of Low B12 - neurological ones come first.

I am sure your other results will also be low - Folate - Ferritin and VitD - are the key ones initially ...

Not sure what the GP can do apart from the tests for vitamins and minerals you will be requesting - also Thyroid anti-bodies TPO & Tg. Your symptoms could be due to Low B12 and the others. Have you ever been anaemic ? Did you have a Full Blood Count ?

Dukemaster profile image
Dukemaster in reply to Marz

Thank you for your reply

Yes I had a full blood count they were ok except cholesterol was high

I called my GP today the receptionist said they wouldn’t start me back on B12 until they got confirmation from the consultant. I asked why can’t the GP put me back on the B12 injections as it’s showing low she insisted they need to do another blood test first 😉 I may call and ask to speak to the practice manager as the consultant is away now for another week so the letter won’t get to my GP for a while yet.

Marz profile image
Marz in reply to Dukemaster

The Full Blood Count is about Red and White blood cells - nothing to do with cholesterol. Which consultant are they waiting for to sanction your B12 ? When did you start quarterly injections and how long after stopping was the last test done ?

Dukemaster profile image
Dukemaster in reply to Marz

Hi

Yes I meant that my full blood count was ok as were my U&E but they also checked cholesterol that came back high. I’ve just had one of the doctors call me from the surgery and I’m seeing her on Thursday so hopefully will get somewhere. Thank you for all your help and advice.

Marz profile image
Marz in reply to Dukemaster

Don't forget to ask for copies of ALL your results with ranges - so you can monitor your progress - and post more easily here. You are legally entitled to them. You didn't answer my questions above about the B12 ....

Dukemaster profile image
Dukemaster in reply to Marz

It was a neuro consultant that I was referred to for the dizziness and shakiness he asked about my B12 and why it was stopped. The GP didn’t really say anything about my thyroid or B12 just referred me to neuro. The B12 was stopped about 2 years ago when the level was 600 however I was having 3 monthly injections back then but it has obviously been dropping as it’s now 137

Marz profile image
Marz in reply to Dukemaster

Shocking ... I posted a link for you about B12 above - did you look at it ? On that website there is also a Draft letter that could be left with your GP regarding your treatment ... Hope all goes well.

Dukemaster profile image
Dukemaster in reply to Marz

Yes thank you I will go armed with that information 😁

Dukemaster profile image
Dukemaster

Thank you for your help I will ask for these

SlowDragon profile image
SlowDragonAdministrator in reply to Dukemaster

When vitamins are too low we can't use thyroid hormones

Getting extremely low B12 sorted is essential. And testing vitamin D, folate and ferritin as these are very likely too low as well

Poor conversion of FT4 to FT3 is common especially when vitamins are low. Then FT4 is high, but FT3 likely low, as shown by TSH being too high

Dukemaster profile image
Dukemaster in reply to SlowDragon

Thank you very much for your help

You may also like...

High Free T4 with hypothyroidism?

because my free T4 is at 51! I'm a wreck. How can I have high Free T4 with hypothyroidism? My TSH...

High TSH & High Free T4

test as well. It show my TSH is 7.81 but strangely my free T4 is also high 26.5 I was advised to...

normal TSH high Free T4

TSH is in the normal range and so is my T3 but my T4 Free is high. My symptoms have been...

High TSH, High free T4, very high vitamin B12

Hello. I’ve had hypothyroidism for 19 years and it goes rogue every few years. My last results......

High TSH and normal Free T3/T4

don't want to take the drug Levothyroxine as it made me not feel so good. Free T3 = 4.4 / Free T4=...