A newbie: Can you tell me if be you have set... - Thyroid UK

Thyroid UK

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A newbie

Applesspice profile image
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Can you tell me if be you have set backs of sleeping for days. When on meds.

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Applesspice
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Heloise profile image
Heloise

I don't know how common that is but it's possible that your body needs it for many reasons. Your adrenal glands produce cortisol to wake you up and then it reduces it so you can sleep at night. You may have issues with that. Your adrenals could be exhausted. Of course with low thyroid you may be using up your energy stores if the T3 part of your thyroid hormone isn't sufficient.

Would you like to express how your treatment is going? You should be kept informed of your blood tests so you can track your progress.

SlowDragon profile image
SlowDragonAdministrator

How much Levothyroxine are you currently taking?

When was dose last increased?

You will need bloods retested 6-8 weeks after each dose increase

Low vitamin levels are extremely common when hypothyroid. Low vitamins can affect sleep too

First thing is, do you have any actual blood test results? if not will need to get hold of copies. You are legally entitled to printed copies of your blood test results and ranges.

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

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