Newbie: Hi which brands of Levo are there please... - Thyroid UK

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Hi which brands of Levo are there please? I have been experiencing some digestive upset on a lactose free one called Teva and I had my dose reduced to lessen the digestive symptoms.

I was diagnosed hypothyroid in 2011. I have lactose intolerance as well. Thank you

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Clutter profile image
Clutter

Jenna_Marie1,

Reducing your dose will undermedicate you. If you are intolerant to Teva you should ask your pharmacist to exchange it for another Levothyroxine make or get a new prescription at the original dose and get one of the makes below.

Mercury Pharma 25mcg, 50mcg, 100mcg

Actavis (also known as Almus and NorthStarr) 50mcg and 100mcg.

Wockhardt 25mcg.

You can make a yellow card report re the adverse effects of Teva via yellowcard.mhra.gov.uk/

in reply toClutter

I have been on Mercury Pharma, Actavis and Wockhardt

I am lactose intolerant.

Thanks

Clutter profile image
Clutter in reply to

Jenna_Marie1,

Teva is the only lactose-free Levothyroxine in the UK.

Have you tried any of the others?

in reply toClutter

I tried Thybonn Henning which I think is German lactose free levo but GP prescribing it said it was taking too long to be ordered in so refused to prescribe it on repeat.

Thanks

helvella profile image
helvellaAdministrator in reply to

Henning Thybon is NOT levothyroxine (T4). It is liothyronine (T3).

(There is Henning L-Thyroxin - which is T4. But is is not called Thybon.)

in reply tohelvella

I can't remember what he said about the Thybonn, sorry

in reply toClutter

Endo aware I have undermedicated results, no increase suggested

in reply toClutter

Endo said I am not absorbing levo very well with the Actavis, Mercury Pharma and Wockhardt brands. Lactose deficiency was confirmed and he put me on Teva which improved my levels but made me feel awful.

Clutter profile image
Clutter in reply to

Jenna_Marie1,

Ask endo or GP to prescribe one of the European lactose-free Levothyroxine tablets in thyroiduk.org.uk/tuk/treatm... via named patient basis prescription thyroiduk.org.uk/tuk/treatm... or ask for a prescription for liquid thyroxine which doesn't have fillers.

in reply toClutter

Thanks my endo will not prescribe any European lactose free tablets and will not give me liquid levo

Clutter profile image
Clutter in reply to

Jenna-Marie1,

If you'd mentioned this in your opening post we wouldn't have needed to play 20 questions.

Options appear to be:

1. Ask your GP to reinstate prescription for Thybon. It shouldn't take more than a few days for a pharmacy to obtain it from Germany or one of the specialist importers.

2. Write to the head of endocrinology or the hospital PALS and ask them to intercede with your endo as you have confirmed lactose intolerance and arrange for European lactose-free Levothyroxine prescription or liquid thyroxine and for assignment to another endo.

3. Buy NDT online if you can find one which is lactose-free. Brands and ingredients are in stopthethyroidmadness.com/a...

in reply toClutter

Sorry but I feel like a pest to the endo

Taking 25mcg levo Teva, very symptomatic

Previously taking 150mcg, endo said it was just as well since my TSH was 0.03 (0.2 - 4.2) FT4 25.3 (12 - 22) FT3 3.9 (3.1 - 6.8)

Clutter profile image
Clutter in reply to

Jenna-Marie1,

What do you suppose he meant by that?

Current results on 25mcg

TSH 4.69 (0.2 - 4.2) FT4 14.8 (12 - 22) FT3 3.2 (3.1 - 6.8)

Clutter profile image
Clutter in reply to

Jenna_Marie1,

You are undermedicated. I suggest you dump your endo. He's obviously not helping you at all. The FT3 range is wrong by the way.

in reply toClutter

Might as well die then

Yep, clearly a pest.

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