Odd symptom - concerned: Hi, I'm new here! Anyone... - Thyroid UK

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Odd symptom - concerned

luthien profile image
16 Replies

Hi,

I'm new here!

Anyone have dairy alternatives?

I've recently started to get hot flashes, especially at night. Been reading up about comparisons between dairy and non dairy for nutritional content; all non dairy alternatives are usually fortified with calcium and B12 (in the UK as standard) but not iodine, therefore iodine intake can drop below the good levels.

I think my night sweats may be due to low iodine; I had my blood tested a year ago (full blood and hormone counts) but it came back fine. What else can I do? What can I add to my diet to improve my iodine intake

As a footnote; I also have endometriosis and am 34, I am not on any medication. My diet - reasonably healthy reduced dairy, reduced gluten and reduced red meat as of about 3 years ago. Previously no problems.

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luthien profile image
luthien
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16 Replies
greygoose profile image
greygoose

If you are taking thyroid hormone replacement, you're unlikely to be low on iodine. 100 mcg levo contains 65 mcg iodine which is recycled.

luthien profile image
luthien in reply togreygoose

I perhaps wasn't clear! I am not on any medication for thyroid problems as my hormone tests last year came back clear, so there was no concern. I will update the above

greygoose profile image
greygoose in reply toluthien

No, you didn't say that. But it sounds as if you probably should be. Did you get a print-out of your results from that test that was 'fine'?

luthien profile image
luthien in reply togreygoose

Yes I did, I don't have it with me to put on here, or can remember the result. They did the test alongside all the other hormone tests for my endometriosis. As far as the doctors were concerned my thyroid hormones are functioning normally.

I'm interested in what effect a low dairy diet could have on iodine levels rather than going straight for hormones as it could simply be finding out what I should be including - supplementing my diet with the correct iodine levels.

fibrolinda profile image
fibrolinda in reply toluthien

You need to check your iodine levels before you even think of supplementing it or trying to increase levels. Not a good idea to go in blind, on anything, but iodine can cause more problems.

luthien profile image
luthien in reply tofibrolinda

Thanks perhaps that's the problem; docs checked hormone levels not the actual iodine. I guess I can ask for that?

MaisieGray profile image
MaisieGray in reply toluthien

It's not a routine test, and if your Drs concluded that your thyroid hormone levels were 'fine' and your thyroid functioning 'normally', there would be no obvious reason to test iodine. Low iodine levels would most likely be indicated by diminishing thyroid hormone levels. A fear that you might be low because you don't drink milk is unlikely to persuade them. If you eat a nutritionally sound diet and have no absorption issues, the lack of milk is unlikely to be putting you at risk - despite newspaper articles to the contrary. Iodised salt and bread, shellfish, seafish, cheese & yoghurts (you say you eat reduced, rather than no dairy) are all sources.

luthien profile image
luthien in reply toMaisieGray

Okay thanks :)

I'll monitor these sweats I get to see if there's any other pattern.

I'll have a chat with my GP and causes, issues, concerns as thyroid function is linked to endometriosis.

greygoose profile image
greygoose in reply toluthien

OK, but you should know that just because your doctors say your thyroid levels are fine, doesn't actually mean they are. Doctors are very bad at interpreting blood test results.

SlowDragon profile image
SlowDragonAdministrator

Night sweats can be low B12

Endometriosis can be linked to autoimmune thyroid disease (Hashimoto's)

You need both TPO and TG thyroid antibodies tested

Low vitamin levels are especially common with Hashimoto's

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

Understanding Hashimoto's

hashimotoshealing.com/under...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

Iodine is not recommended with Hashimoto's

drknews.com/iodine-and-hash...

luthien profile image
luthien in reply toSlowDragon

Wow thanks so much for all the info. Going to read through and plan what to do next x

Marz profile image
Marz in reply toluthien

Here are all the links - see above !

luthien profile image
luthien in reply toMarz

Ah couldn't find this - thanks!

I've posted so many things as part of another group I couldn't see my post on here. I shall have to start bookmarking things!

Marz profile image
Marz in reply toluthien

Click onto your username to go to your previous Posts and Replies !

luthien profile image
luthien in reply toMarz

yeah I did that and didn't spot a second page lol, or a third!

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