Hypothyroidism and Crohn's disease

[bubbatetley]

Hi, I wish you all well. Has anyone been diagnosed with Hypothyroidism and Crohn's disease.

[SlowDragon Administrator]

Yes.....several on here including

Marz

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Obviously Crohns can badly affect vitamins too

What supplements do you currently take?

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

[EllaRuby]

I have, as well as others & it sucks!!

[greygoose]

Marz

[Marz]

Yes I was diagnosed when I was 27 - now 72 ! We have chatted before on another Forum when I asked about your VitD. You did not respond ... am guessing it is low - often is with Crohns. It is anti-inflammatory - so helpful. Diagnosed with hashi's back in 2005 ...

[bubbatetley in reply to Marz]

Hi Marz, so sorry i've just seen this[ BRAIN FOG] My VitD rang is -

Serum total 25 - hydroxy vitimin D level { Xabo0 = 50 . 6 nmol/L

😣

[Marz in reply to bubbatetley]

Hi - are you supplementing ? Your level needs to be around 100+ ....

[bubbatetley in reply to Marz]

Hi - taking Vit D , 4,000 u daily , as you suggested, just received my bloods from yesterday,

Vit B12 = 411 ng/L [ 211.0 - 911 . 0}

Folate = 11 . 5 ug / L [ 3 . 0 - 14 . 4 }

Having more bloods done next Monday,, not getting very far with GP, its such a struggle trying to get any bloods done by him.I am now looking at what other supplements that I can take via Seaside susie and Slow Dragon, sorry if Im a bit confused at times but , its BRAIN fog !!!!!

Take care

[Marz in reply to bubbatetley]

Are you supplementing B12 & Folate ?

[bubbatetley in reply to Marz]

As yet no, as I was told by Endo I don't need to😕. I m very confused with being told different things. GP saying I'm already taking Vit D and its enough.

[Marz in reply to bubbatetley]

You need to take Magnesium and VitK2-MK7 when supplementing VitD as suggested by Seaside Susie ..

I would take a GOOD B Complex to keep all the B vitamins in balance. Re-test VitD at end of winter. Was Ferritin tested ? Personally I would follow advice given here about supplements.

[bubbatetley in reply to Marz]

Folate being tested next week. Will get the supplements as recommended,

Thank you

[penny]

Check out Vit D and Crohn’s.

[Hidden]

Yes my niece she has both, and has had her thyroid removed.