hi all, I'm not sure if anyone can advise me? I'm new to the site today and did allot of reading last night going through what others have suffered on here. I would diagnosed with hypothyroidism 8 years ago. I first went to see my gp with flu like symptom's ,she did a blood test and said I had hypothyroidism and needed to start taking levothyroxine daily, I started taking 25mg a day of levothyroxine,3 weeks later increased to 50mg a day of levothyroxine and still felt unwell, in fact more unwell than when I first started the meds. this was then increased again to 100mg a day of levothyroxine after 8 weeks and at this time my muscles began to go into spasm and simple tasks were becoming difficult me.
after 12 weeks she increased my dose to 200mg a day of levothyroxine and I collapsed at work and was taken into hospital. I couldn't see (blurred visions now massive headache's , constant sweats day and night , complete lose of appetite started to get palpitations , severe stomach cramps and the symptoms just kept adding up.
I only felt like I had the flu went I first saw my GP 8 years ago when I was 34 years old, but she advised that this is the side effects of taking the levothyroxine and something I now how to live with ,she lowered my dose to 175mg a day of levothyroxine but I was being sick every morning 30 minutes after taking the medication and now not sleeping not eating and could barely get out of bed anymore and lost my job as an engineer due to time off work.
I have had to put up with these symptom's for 8 years, seen various specialist and told its all in my head, told I have angina asthma and even cancer at one point.
finally saw a locum GP 7 weeks ago and said it sounds like I had gone from being hypothyroid to hyperthyroid and suggested I just do a simple test and stop taking the 175mg of levothyroxine a day and see what happens (I was virtually crippled at this point and had almost given up on life as I was so fed up of being sick in the mornings and the evenings and the pain had become unbearable).
much to me and my partners surprise as I had been told I could never stop taking the 175mg of levothyroxine by my own GP, I began to rapidly recover. after 2 days I was no longer being sick, my sweating had stopped almost instantly and I was sleeping for 7-8 hours a day come the end of the week.
7 weeks have now past and I feel fantastic, I have my life back again, and I'm eating well have a new job which I'm enjoying and its working 12 hour shifts days and nights I would not have ever thought this was possible as I was about to quit life altogether and call it a day.
I had a blood test Monday this week and my results have come back saying I'm hypothyroid again. however I will not be going on the levothyroxine again due to what it put me through for a years and every time I complained to my GP just gave me a sick note with needs to rest for 8 weeks, I had lost 9 jobs because of this since 2012 until now but like I said, now don't have any symptoms despite my recent bloods saying I'm hypothyroid again.
I was just wondering if anyone else has tried or been through this or something similar and should I be waiting to suddenly crash and be back to having the flu like symptom's again?
can people also just live a normal life with an underactive thyroid? and without any medication?
I also had a CT scan and that has shown an abnormality in my lower bowl so I'm now waiting to have an MRI ,could this be caused by taking the levothyroxine for 8 years when its quite possible i never needed to take it the first place and it made me feel so unwell for 8 years,
so to go on but any response to the above would be much appreciated and very helpful to me.