Help me go in prepared please!!

[Harrisan]

So, the picture is my lab results after 5 weeks of a levo increase from 125 to 150. This was done a couple of weeks ago.

I have just had the following results back from the doctor for tests done this week.

TSH = 0.06 (0.3-4.5)

FT4 = 19.1 (10.0-22.0)

Vit D = 26.9 (50-175)

I have an appointment with my doc in two weeks. I know what he's going to say. "Here's a big whack of Vitamin D, that was what was making you feel bad, it wasn't your thyroid at all and we must reduce the dose again."

I understand that the main prob was clearly my vitamin D, however my previous TSH, taken in December was 1.14 and he accepted that I feel better under 1 and that was why he agreed the levo increase. I don't want to reduce levo as my hair and nails are better, I feel less bloated and my weight appears to be making a small shift.

So, is my TSH dangerously suppressed? Or, as I've not hit the top of my T4 range is it safe?

I have no real hyper symptoms other than, having changed my eating habits, I appear to be losing weight which hasn't happened ever since diagnosis no matter what exercise and eating regime I've tried.

I want to say to him that I'm fully informed and prepared to take the risk of being suppressed as long as my FT4 is in range so please please dont lower my levo. I'm not sure how it will go down. Do you think I'm justified?

What do you guys think?

[Peanut31]

Hi

For your protection can you edit your picture as it gives your date of birth, your patient ID number and your surgery address.

Best Wishes

Peanut31

[Harrisan in reply to Peanut31]

Sorry, did it on my mobile and trying to remove it was a nightmare - have cropped personal info out now.

Thanks

[Peanut31]

Hi

Hopefully the vitamin experts will help further, but have you been told you have Hashimotos? (auto immune disease) going strictly gluten free can help and some find going dairy free as well. I am gluten free, but didn't find dairy was any good.

Your vitamin D is not good, do you supplement at all? a higher supplement than the GP can give you, they normally give you 800 iu which is no good. I take a better for you spray 2,000iu a day.

B12 could be better, do you supplement?

Best wishes

Peanut31

[Harrisan in reply to Peanut31]

Thanks peanut,

Yes I had Hashimotos confirmed a year after initial diagnosis.

I tried gluten free for four or five months but didn't notice a difference to be honest.

My vitamin D tends to do this every year/year and a half. They usually give me a big dose then I have a maintenance dose of 800I.U per day in chewable tablets.

I have just started taking a b vitamin complex as I didn't think it was good and I wanted to get my folate up too!

[greygoose]

There's no such thing as a 'dangerously' suppressed TSH. The TSH itself presents no danger whatever level it is. What would be dangerous would be a very, very high FT3. But, you don't have that. Your FT4 is on the high side, but that's because you don't convert very well. But, there is no way your doctor can say you don't need the dose of levo you're on now, because your FT3 is only just over mid-range, and if he reduces it, your FT3 will reduce and your symptoms will increase. It's T3 that causes symptoms, not the TSH.

And, as you have Hashi's, he should expect your levels to fluctuate without getting panicked about it. That's the way Hashi's works.

[Harrisan in reply to greygoose]

Can you come and tell him that?? Lol!

Thank you though I'll stop listening to the scare mongering!!

[greygoose in reply to Harrisan]

Yes, you must! They'll scare the c**p out of you, given half a chance. A right bunch of old gossip-mongers, full of myths, rumours and half-truths. Wouldn't know a scientific fact if it got up and bit them.

Oh, and if I could, I would come and tell him that! But, I'm sure you're just as capable.

[MissGrace in reply to greygoose]

I’d like to be there to watch! 🤸🏿‍♀️

[greygoose in reply to MissGrace]

lol

[Harrisan in reply to greygoose]

Just an update and a question. If you guys don't see this I'll post it separately.

My doctor is an angel (and very honest). He basically said 'yes your TSH is suppressed but 30 years ago when I was in the hospital my boss would have said it probably needs to be suppressed for you to feel well. '

I nearly fell off my chair. He didn't want to reduce my levo at all!!!

So, my question.

He gave me vitamin D. Two lots of 20,000 iu per week for seven weeks. Is this enough? Should I buy more?

Thanks!

[greygoose in reply to Harrisan]

That's great! Thank goodness he had a good boss.

I don't really understand vit D. Depends what your level was. I think you ought to write a new post with that question and let those that know about vit D reply.