Hi
On 24 Jan 19 I had my bloods done while taking NDT. I’d been on NDT for about 6 months.
My results were:-
T4 8.8 (7.86-14.41)
T3 5.6 ( 3.7-6.0)
TSH 3.99 (0.35-5.50)
Cortisol 112 (155-607) 2pm
I was very unwell the day of the above test. I could hardly walk with weakness.
My Endocrinologist suggested I stop taking NDT he said it was not physiological and could cause long term damage. Not sure what damage. He suggested liquid thyroxine instead.
I started liquid thyroxine and have now been on it for 12 days. At first I felt absolutely fantastic. At last I thought I can now get my life back. I was free of weakness and very heavy legs. After 5 days had past I got pain in my lower back quite bad. Then I got very weak indeed. I had double vision and my face half numb. I could hardly walk. It was very frightening. Then I bounced back again. Then the same thing happened a few days running. Today was the worst day ever. I had already a blood form off my GP to go to my local hospital for thyroid and cortisol monitoring. I literally fell into the blood clinic. My legs would not carry me I was so weak. They got my s wheelchair and I was taken to A&E.
When my bloods came back today this was the results.
T4 8.8 (7.86-14.41)
T3 4.30 (3.7-6.0)
TSH 23.95 (0.35-5.50) !!!
Cortisol 277 at 10am
I have been taking the Levo liquid as directed. Half in the morning then half in the afternoon. This is the same as I took NDT half am and half pm.
I just don’t understand what is happening to me. The A&E Dr today was bewildered. Does anyone have any idea what maybe going on here.
I will be contacting my GP and Endocrinologist but just thought you lovely people may be able to throw some light on this.
I have taken my medication everyday.
Thank you for any help.
Pam