Low Thyroid : Hi I have been suffering from... - Thyroid UK

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Low Thyroid

Adeleaidedams profile image
13 Replies

Hi

I have been suffering from fatigue/muscle aches/chronic constipation/ brain fog have very poor memory..all the symptoms of low thyroid. I had my thyroid checked for all of tests and I’m just in the bracket of being in normal range.. So they are saying I should be fine!! I’ve been told that in other countries the bracket can be much wider than the uk thyroid test and would class me as hypothyroidism and would be offering support? I’ve attached my results if anyone can please please help me I just want to feel normal again. :(

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Adeleaidedams profile image
Adeleaidedams
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13 Replies
SlowDragon profile image
SlowDragonAdministrator

Did you do this test as early as possible in morning and fasting?

This gives highest TSH

Yes these FT3 and FT4 levels look low, but TSH is not high enough for most medics to consider it a problem, and especially with no high antibodies it would be difficult to find any medic who would consider treatment

Next step is to test vitamin D, folate, ferritin and B12

These are often too low and important to improve these. Then TSH often rises so that you can get thyroid treated

See if GP will test for you or test privately

Come back with new post once you get vitamin test results

Adeleaidedams profile image
Adeleaidedams in reply toSlowDragon

Hi

Thank you so much for such a speedy response!

Yes I did the blood test at 7am in the morning but no fasting..does that make a difference? I will get those other tests done on vitD Folate,firritin and b12 as I didn’t realise it can effect TSH!?

Thanks you

A

NatChap profile image
NatChap in reply toAdeleaidedams

Low vit d, ferritin and b12 can all make you tired, achy, foggy and generally pretty crap. People with thyroid disorders often suffer with with these deficiencies too which just compounds the problem.

Adeleaidedams profile image
Adeleaidedams in reply toNatChap

Thank you I didn’t realise that!

I will have another blood test and hope something flags up..just so fed up of feeling crap every day! :(

SlowDragon profile image
SlowDragonAdministrator in reply toAdeleaidedams

Just have water before testing. Coffee or tea can lower TSH, as can food

You can eat the night before, just not on morning of the test

Low vitamins can cause symptoms in their own right and/or affect Thyroid levels

Adeleaidedams profile image
Adeleaidedams in reply toSlowDragon

I did have a tea in the morning before testing.. so might of effecting results. Ok will test the other things you suggested. Thank you :)

Adeleaidedams profile image
Adeleaidedams in reply toSlowDragon

I have luckily done another blood test yesterday that covers

( VitD,folate,ferritin, B12 ) Hopefully will get the results Monday and let you know.

Thanks again

A

Adeleaidedams profile image
Adeleaidedams in reply toSlowDragon

Hi Slow Dragon

I had my results back for blood test you suggested to have but they have all come back in (normal range) apart from the VitD being boarder line. Im Soooooo gutted as I was really hoping something would be flagged up..I feel like giving up now and have to except that I will just have to feel like crap! As my Doctor won’t help me. I just don’t understand the chronic constipation...headaches..brain fog and days of complete sluggish and tiredness it’s making my life hell. :(

Here our my results please please tell me what you think and if there is anything else I can do or should get tested for to explain these symptoms?

Many Thanks

A

vitamin D - 55.09 nmol/L

folate - 7.48 ug/L

ferritin - 30.5 ug/L

B12 active - 131.000 pmol/L

SlowDragon profile image
SlowDragonAdministrator in reply toAdeleaidedams

Can you add the ranges on these

Vitamin D is too low. Needs improving to at least 80nmol and around 100nmol may be better

Vitamin D mouth spray by Better You is good as avoids poor gut function

Suggest supplementing at 1000iu-2000iu daily-

Retesting in 2-3 months

It's trial and error what dose each person needs.

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Retesting twice yearly via vitamindtest.org.uk

Local CCG guidelines

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D

Magnesium supplements can help improve constipation. Loads of posts on here about magnesium

betterbones.com/bone-nutrit...

articles.mercola.com/sites/...

healthy-holistic-living.com...

articles.mercola.com/sites/...

betterbones.com/bone-nutrit...

Do NOT supplement any vitamin K if you take any blood thinning medication (eg aspirin)

drsinatra.com/vitamin-k2-su...

Vitamin C and bones

healthimpactnews.com/2018/d...

Ferritin looks low, should be at least halfway in range, over 70. Eating liver or liver pate once a week, plus other iron rich foods plus daily vitamin C to improve iron absorption, can all be beneficial

Folate looks low.

Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.

B vitamins best taken in the morning after breakfast

Recommended brands on here are Igennus Super B complex. (Often only need one tablet per day, not two). Or Jarrow B-right

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Suggest starting with vitamin D.

Wait 2-3 weeks and then add vitamin B complex

Selenium supplements can help improve conversion of FT4 to FT3

You might consider testing selenium or zinc, before supplementing

Trying strictly gluten free diet is something to consider, but getting vitamins optimal is first step

Then retesting thyroid and vitamins in say 2-3 months after adding last vitamin supplement

Make sure to test as early as possible in morning and fasting to get highest TSH

Very common that TSH rises, once vitamin levels improve, so that your GP will agree that you have thyroid problem and start treatment with Levothyroxine

Adeleaidedams profile image
Adeleaidedams in reply toSlowDragon

Hi SlowDragon

Thank you so much for your response! You’v made some really interesting points that I have taken on board. :)

Here are my results again but this time with the ranges that they provide as (normal) if your still interested-

vitamin D - 55.09 nmol/L

Range- 50.00- 200.00

folate - 7.48 ug/L

Range- 3.89-26.80

ferritin - 30.5 ug/L

Range- 13.00 - 150.00

B12 active - 131.000 pmol/L

Range- 37.50- 188.00

I bought the (Dlux 3000 vitD spray Better you) today and also B complex that has b6 b12 and folate but not folic acid that you suggested.

Thanks again for all the help and support I really appreciate it!

A

SlowDragon profile image
SlowDragonAdministrator in reply toAdeleaidedams

Aiming to get vitamin D over 80nmol and around 100nmol May be better

Ferritin at least half way in range

Folate near top of range

B12 is fine. This will go up too with vitamin B complex

Suggest retest thyroid in 2-3 months

Adeleaidedams profile image
Adeleaidedams in reply toSlowDragon

Ok great will try too increase levels and will message again in a few months when iv retested results.

Thanks again for everything :)

greygoose profile image
greygoose

Well, drinking tea might have has a slight effect on your TSH, but, given how early in the morning you did the test, I don't think it would have made that much difference.

Your TSH is low compared to your FT4/3, which are right at the bottom of the range. Your TSH should be a lot higher. The fact that it isn't, suggests to me that what you have is not a thyroid problem, but a pituitary or hypothalamus problem - what we call Central Hypo.

Central Hypo is when there is a problem with the pituitary (Secondary Hypo) or the hypothalamus (Tertiary Hypo) rather than the thyroid itself (Primary Hypo). For some reason, not enough TSH is being produced to stimulate the thyroid to make thyroid hormone. So, your FT4/3 levels remain low. Too low for good health.

Doctors know very little about Central Hypo, so may need a nudge in the right direction - your GP has probably never even heard of it. So, you need to do your homework before going back to your GP and gently suggesting that that might be your problem, and further investigation is probably in order. You would need to be referred to an endo, because a GP can't do the necessary tests. Your Frees are very, very low - difficult to see, but isn't your FT3 under-range? That is in no way 'normal'!

As to getting diagnosed in another country. That's rather doubtful. I've never heard of a TSH range that stops lower than 3. So, you probably wouldn't get diagnosed anywhere with that TSH, if the doctor only looked at the TSH. And most doctors, in other countries, are just as ignorant as those in the UK, and only look at the TSH!

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