Trial and error?: I have been under active for... - Thyroid UK

Thyroid UK

141,236 members166,485 posts

Trial and error?

Conygarview profile image
3 Replies

I have been under active for about thirty years. After a few years a blood test showed that I had Hasimoto 's . Nothing was done about it. I continued to feel unwell, then in 2011, I have up gluten and was much better. Over the last year I began to think that certain brands of Levi was making me ill. Last week I was told to go to A&E with racing heart and high BP. We thought it was gluten used as a filler a filler in my levo. My GO saw me between Christmas and New year and allowed me to have liquid levo, though he prescribed Teva and when I got home I realised I had been given Mercury Pharma instead.

Written by
Conygarview profile image
Conygarview
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Conygarview profile image
Conygarview

I wanted to finish my above letter by saying I still rough with hot sweats and anxiety. Any ideas?

MaisieGray profile image
MaisieGray

"I had Hashimoto's. Nothing was done about it." - that is because there is no medical treatment, only lifestyle changes such as going gluten-free, as you have done.

If your Dr specified Teva on the prescription, and you weren't dispensed it, then that is an error and should be addressed by your pharmacy. However, are you sure/did you see it written on the prescription? If he didn't actually do what he said he was going to, and simply wrote levothyroxine, the pharmacist is under no obligation to replace the tablets.

A racing heart and high BP sounds like over-medication - what are your latest results and their ranges?

SlowDragon profile image
SlowDragonAdministrator

Teva brand upsets many people. Though some love it. It's the only lactose free Levothyroxine tablet in UK

Many of us with Hashimoto's find strictly gluten free diet helps

Some also need to be lactose free

As you have Hashimoto's low vitamins are extremely common

Have you had vitamin D, folate, ferritin and B12 tested recently? Or at all

Add results and ranges if you have them

What supplements do you take, if any?

When were Thyroid levels last tested?

You need FT3 and FT4 tested, as well as TSH

Add results and ranges if you have them

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Not what you're looking for?

You may also like...

Medication trial and error

I hope this doesn't sound too reckless. I don't know about anyone else . . . when I take either...
dashi2208 profile image

HOSPITAL ERROR

Last year I was admitted to hospital with huge palpitations. They diagnosed the problem as being on...
fiftyone profile image

Hashi's and T3 - can a gluten-free diet help when on T3?

I have Hashi's. I've been on Levo for about 9 years but about 3 years ago my symptoms flared up...
bristolboy profile image

TSH Dropping on 50mcg Levothyroxine

After going gluten free a year ago (I was found to be EXTREMELY gluten sensitive) I have had some...

New erfa trial with levo - very worried about endo prescription and pharmacy NDT info. Please can anyone help?

Edit - endo says take ERFA 30mg OD - I don't even know what OD means? Assume every day 30mg but...
Opal79 profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator
Jaydee1507 profile image
Jaydee1507Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.