Trial and error?: I have been under active for... - Thyroid UK

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Trial and error?

Conygarview profile image
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I have been under active for about thirty years. After a few years a blood test showed that I had Hasimoto 's . Nothing was done about it. I continued to feel unwell, then in 2011, I have up gluten and was much better. Over the last year I began to think that certain brands of Levi was making me ill. Last week I was told to go to A&E with racing heart and high BP. We thought it was gluten used as a filler a filler in my levo. My GO saw me between Christmas and New year and allowed me to have liquid levo, though he prescribed Teva and when I got home I realised I had been given Mercury Pharma instead.

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Conygarview profile image
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Conygarview profile image
Conygarview

I wanted to finish my above letter by saying I still rough with hot sweats and anxiety. Any ideas?

MaisieGray profile image
MaisieGray

"I had Hashimoto's. Nothing was done about it." - that is because there is no medical treatment, only lifestyle changes such as going gluten-free, as you have done.

If your Dr specified Teva on the prescription, and you weren't dispensed it, then that is an error and should be addressed by your pharmacy. However, are you sure/did you see it written on the prescription? If he didn't actually do what he said he was going to, and simply wrote levothyroxine, the pharmacist is under no obligation to replace the tablets.

A racing heart and high BP sounds like over-medication - what are your latest results and their ranges?

SlowDragon profile image
SlowDragonAdministrator

Teva brand upsets many people. Though some love it. It's the only lactose free Levothyroxine tablet in UK

Many of us with Hashimoto's find strictly gluten free diet helps

Some also need to be lactose free

As you have Hashimoto's low vitamins are extremely common

Have you had vitamin D, folate, ferritin and B12 tested recently? Or at all

Add results and ranges if you have them

What supplements do you take, if any?

When were Thyroid levels last tested?

You need FT3 and FT4 tested, as well as TSH

Add results and ranges if you have them

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

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