Private T3 and NHS blood tests ??: Hi, I haven't... - Thyroid UK

Thyroid UK

139,912 members164,449 posts

Private T3 and NHS blood tests ??

TSH86 profile image
10 Replies

Hi,

I haven't posted for a while but have been reading some posts which are helpful. Thank you to you good people.

It hasn't been decided yet if I will be allowed to continue treatment on T3 on the NHS. Am on T3 only.

If I am forced to buy T3 privately like a lot of us are unfortunatly, would I then have to pay for thyroid function tests privately too ?? !!!

I would very much appreciate any advice.

Thank you.

Written by
TSH86 profile image
TSH86
To view profiles and participate in discussions please or .
Read more about...
10 Replies
SeasideSusie profile image
SeasideSusieRemembering

TSH86

If I am forced to buy T3 privately like a lot of us are unfortunatly, would I then have to pay for thyroid function tests privately too ?? !!!

That's down to your doctor. If that was me and I was forced to buy my own after having my prescription taken away, and my doctor was on board with me sourcing my own, then I would expect him to agree to continue monitoring me and do the tests through the surgery, ensuring that FT3 is included as you take T3.

TSH86 profile image
TSH86 in reply to SeasideSusie

Oh dear !! My GP would not agree to blood tests because she just cannot understand why I can't take T4 but thank you for your reply. At least I know where I stand.

This situation is just so unbelievable and disheartening.

SlowDragon profile image
SlowDragonAdministrator in reply to TSH86

Did you get DIO2 gene test?

If not, the Blue Horizon DNA test, does more thyroid related DNA testing

bluehorizonmedicals.co.uk/t...

TSH86 profile image
TSH86 in reply to SlowDragon

Thank you SlowDragon,

No problem with D102 but the further DNA testing looks interesting. I will look into that.

I suffer from multiple allergies which are getting worse. Waiting to see an Immunologist. They may test me for fillers in the T4 tablets. I'm wondering if that could be what it is.

SlowDragon profile image
SlowDragonAdministrator in reply to TSH86

So you test negative for DIO2?

Do you have Hashimoto's? Also called autoimmune thyroid disease diagnosed by high thyroid antibodies

What about vitamin D, folate, ferritin and B12 levels ?

What supplements do you take?

TSH86 profile image
TSH86 in reply to SlowDragon

Yes negative for D102.

I have Hashimoto Thyroditis. Antibodies are high.

My vit d is ok as taking suppliments. I recently had blood tests for B12 and folate. They were ok too. So sorry I don't have the levels to hand.

Ferritin to be tested.

Also taking calcium.

I am also going to try gluten free as soon as I can. I remember you have suggested that before.

Advice very much appreciate.

Thank you.

SlowDragon profile image
SlowDragonAdministrator in reply to TSH86

There's little point in being almost gluten free

It needs to be absolutely gluten free

Takes 4-6 months to recover after any consumption of gluten

chriskresser.com/the-gluten...

TSH86 profile image
TSH86 in reply to SlowDragon

Thank you. I did read that somewhere but didn't realise it takes 4 to 6 months!!

SlowDragon profile image
SlowDragonAdministrator in reply to TSH86

Yes so if sneaking in something with gluten once a fortnight, or even once a month, you're not getting anywhere

TSH86 profile image
TSH86 in reply to SlowDragon

A gluten free life !!! Doesn't sound easy but not impossible either.

Not what you're looking for?

You may also like...

Blood tests private

Hi everyone, I’m due for a check up at the Endo this month, and this time would like to go armed...

private blood tests

Hi all, Who uses private blood tests and where / how do you do them? I am under a consultant...

Private blood tests.

Hi - I used to have this info somewhere but now don't know where 😳😬😂🤗: where to have Thyroid...

Private blood tests

Hi. I'm so glad I have found this forum! I was searching for the possibility of having FT3 done...

Self medicating T3 - GPs and NHS blood tests

For those of you in the UK and taking Liothyronine from your own sourced supplies, how have you...