Im just back from my endo apt.. it wasn’t the doctor I originally saw or spoke to on the phone who prescribed me with 10mg HC. The doc I saw today and also an additional doctor came in to the apt as They both stated they did not think I needed HC as my second test I just missed it by 7nmol.
They said if it were them they wouldn’t even of put me on HC in the first place.
I was reading out information from stop the thyroid madness stating that 10mg was too low a dose. Dosage needs to be split between 4 hours higher in the morning then tapered to lower also showed them my self down temp checks.
I done two ACTH test. Both test done at 9am
Was cortisol 251 range (240-600)
Doc said was normal
After test Cortisol was 395 <430
Failed to rise
ACTH 4 <20 normal
Second test done week prior
Baseline 377 (240-600)
After test 423 <430
ACTH 6 normal
The doctors reasoning for not upping my dosage is that my body doesn’t need it due to morning cortisol being within range.
And upping the dosage to 25mg or 30mg
And putting a patient on a steroid such as HC is a long term drug which has damaging effects such as osteoperosis. She even stated that in ten years time I could have a host of problems and she doesn’t want to be held accountable. I was in this consultation with two doctors for 1 hour 50 mins.
Their advice is 10mg HC first thing in morning.
I am dealing with chronic neurological Lyme and mercury poisioning too.
My head feels as if it about to burst as I hate just had a back and forth heated discussion with those doctors.
I also asked them to check for PCOS
they said all results where normal even tho I have read you need certain hormones checked at a particular time of cycle.
🤯 everything with nhs seems to be an on going battling.
I finally felt since I got the phone call I had abnormal results back and when initially speaking over the phone to the first doc he said to come in and will discuss dosage and if needed increasing it😬 shame that doc has now moved to another hospital.