Current labs

[Inafunk63]

So my current labs (blood drawn early)

Tsh 2.42

T4 17.4

On the day of the bloods (now 5 days ago) I dropped down to Ptu 75mg daily (I cut my pills and take a half 3 times a day) from 150mg and feeling well the last two days. I looked at a few of my old blood tests from 2017 where my tsh was around .33 which is around the time I was on around 150mg per day I think. Isn’t that considered optimal TSH?? I can’t understand why if I was doing well on it why they changed me to Carbimazole. Anyways, it was my actual GP I saw and he was very supportive and instead of trying to bully me or shuffle me out the door with an it’s all in your head type of stance he reassured me that I know my body best and “within range” doesn’t always mean the best for me and to have my levels checked again in 3-4 weeks and every 4 weeks thereafter. Hopefully this dose will suit me well because today and yesterday it feels good to feel a little more normal

[shaws Administrator]

There's no history on your Profile and I am a bit confused - were you diagnosed as being hypothroid or hyPERthyroid originally?

I am assuming you were diagnosed as hypothyroid but that your doctor changed his mind and ? That doctor then changed levothyroxine to Carbimazole>

When we have blood tests for thyroid hormones, we have to always have the earliest possible appointment, fasting (you can drink water) and allow a gap of 24 hours between last dose of levothyroxine and the test.

How can the doctor think you were hypo and then changed diagnosis to hyPERthyroid?

[Inafunk63 in reply to shaws]

Sorry for lack of history, I had posted it all in my first post about a week ago. I was diagnosed as HYPER with graves antibodies 12 years ago. I never felt unwell as HYPER but they scared me into taking meds and I wasn’t clued up on all the information so just blindly took meds for years. In February of this year they changed me from PTU 150mg per day to carbimazole 40mg per day I then went severely HYPO and so they cut me down to 20mg once a day, still HYPO after a retest, so then down to 20mg for six days and skip one day a week. I was so completely unwell ever since they switched my meds that I could barely function. After skipping the one day of tablets I realised I started to feel better after not taking the Carbimazole and more unwell after taking it so I switched myself back to PTU nearly two weeks ago. And so those were my updated labs as of switching.

[Inafunk63 in reply to Inafunk63]

I should add that after switching my meds my Endo never informed me that I should be retested after 4 to six weeks. It was my GP who actually called me (nearly 5 months after switching) to tell me he hadn’t received any lab requests from my Endo and he thought it was strange after switching meds so he wanted me to come in for labs straight away.

[shaws Administrator in reply to Inafunk63]

Copy and paste the above history into your Profile (where you just have your name at present,) so that you don't need to be asked the same question often. I think your treatment by Endo is shocking. We shouldn't have pressures wondering what we should do next.

[Inafunk63 in reply to shaws]

Thanks for the tip! I’ll do that

[greygoose]

Have you found out, yet, which antibodies were tested?

[Inafunk63 in reply to greygoose]

My doctor didn’t have a test for antibodies on file which I thought was unusual. My Endo definitely said I still tested positive for graves antibodies in February because he specified it had to be sent off for testing (somewhere in England). I’ve been trying to contact my Endo’s office today but no luck! Will try again tomorrow.

[greygoose in reply to Inafunk63]

Well, endos don't always tell 100% the truth. So, do keep pushing for this.