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[Bible1000]

Hi I have nets cancer and had radioactie iodine treatment 3 years ago for high thyroid the 2 are linked. I have not worked well with t4 and have an injection called octistide every month which lowers my tsh but it can slow cancer ad it is terminal. Been ill for years chronic fatigue sweats can't sleep all the usual torture and never can get the right dose to keep stable so never well. Seen 4 NHS doctors no good. Have d private had natural thyroid and it made me really I'll so came off it. Being feeling really ill for 4 weeks had to go into hospital yesterday they checked bloods tsh 37.7 t4 11.4 and t3 2.7 the NHS specialist gave me ,t3 I nearly passed out. Said take it and 50 thyroxin. C how I go. Thanks for listening any support I'm grateful for. d x

[Nanaedake]

I'm sorry to hear you're so unwell. Could you visit your GP following on from your hospital visit and ask them to discuss a plan to monitor the thyroid aspect of your condition? Which specialist did you see for thyroid hormone? There should be an endocrinologist who is part of your cancer multi-disciplinary team, is that who you saw?

[Bible1000 in reply to Nanaedake]

Hi thank you. The consultant in the hospital came to c me he said 50 t4 and 5 MCG t3 to get thyroid on the move he has booked me in a Solihull hospital to c me in 6 weeks. I hope he helps me I'm so fed up with feeling so I'll knowing I may not have too long don't want to b so miserable. I will start to check which Levi suits me the best learning all the time. Thank you. D x

[Bible1000 in reply to Nanaedake]

Thanks I've seen 4 given up now. D x

[silverfox7]

So sorry you have multiple problems. Looking at your results even without the ranges you look very undermedicated. I wonder if increasing your thyroid medication so upping the Levo would help as the addition of T3 didn't. That should be more gentle for you.

[Bible1000 in reply to silverfox7]

Your probably right. Thank you d x

[appyalison in reply to Bible1000]

Thinking of you and wishing you the best of luck. I hope upping the meds will make you more comfortable.

[Bible1000 in reply to appyalison]

Thank you so much d x

[eeng]

I guess that you are on several different sorts of medication. Taking other medication at the same time as thyroid meds often mean the thyroid meds are not absorbed properly and don't work well. Also most people who have a thyroid problem for a while find they are deficient in Vitamind D, B12, Ferritin (=stored iron) and Folate. Unless these nutrient levels are really healthy (usually half way up the 'normal' range or better) we can't make best use of the thyroid medication. See if you can get your doctor to test these and post the results here (with the ranges) for someone to comment.

Hope things improve for you soon.

[Bible1000 in reply to eeng]

Hi I don't take anything take it early then no other tablets until 4 in the afternoon this is what I was told. Take all my Vits I think its the cancer injection. If its going through my system 24/7 for 28 days no way of knowing what its doing. Thank you d x