Peripheral Neuropathy: Numb toe on going for... - Thyroid UK

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Peripheral Neuropathy

Hpbr profile image
Hpbr
11 Replies

Numb toe on going for weeks. Put it down to my shoes.

Left hand weakness but put it down to a previously operated on compressed ulna nerve. Right hand also affected now.

Right hip, occasional sharp pains. Fractured greater trochanter 15 months ago. Only a little one because I didn't take time off work.

Links to poorly treated hypothyroid? Yes, possibly. I never would have considered this.

google.com/url?sa=t&source=...

Another conversation with GP I think.

I've just had previous dose of 150/20 reinstated. This is only day 2. One month of 200/10 and feeling very ill. Even my previous dose was very probably just enough to get by. Certainly not optional. The reduced liothyronine was the tipping point I think.

It's gonna be a long road to health. Grrrr

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Hpbr profile image
Hpbr
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11 Replies
nightingale-56 profile image
nightingale-56

Thanks for posting Hpbr . I will take this to my Physio on Tuesday.

Kipsy profile image
Kipsy

Thank you! My 10 year old daughter has been referred to a peripheral neurologist for constant pins & needles and as both my husband & I have Hashis, I am aware that her thyroid may decline with age. A useful article to file- thank you for posting.

RedApple profile image
RedAppleAdministrator

Very interesting paper, thanks for posting.

helvella profile image
helvellaAdministrator in reply toRedApple

It certainly is.

The science is way beyond me but the fundamental idea that inadequate thyroid hormone can have an effect, in this paper on nerves, which is detectable is no surprise.

I'd like to think that the results of nerve conduction studies on individuals could feedback into the diagnosis of hypothyroidism.

I'd also like to speculate on whether any form of nerve conduction study could be achieved by something like a mobile phone - possibly with a bit of extra hardware?

Hpbr profile image
Hpbr in reply tohelvella

My nerve conduction study on my elbow resulted in an operation. It was called an Osbourne Release. The nerve was compressed. I had already been diagnosed with hypothyroidism. No link had been made between the nerve issues and hypothyroid problems. Shame if I had to undergo an unnecessary operation. I don't know for sure but the question is out there

google.com/url?sa=t&source=...

SlowDragon profile image
SlowDragonAdministrator

When your T3 was reduced vitamin levels almost inevitably crash due to sudden collapse in gut function and subsequent low stomach acid

Low vitamin D and low B vitamins go together

This link discusses how and why

drgominak.com/sleep/vitamin...

in reply toSlowDragon

That's such a great read. The above study was on those 'newly diagnosed' as hypothyroid so highly likely most had low nutrients. Shame that wasn't included in the test.

Hpbr profile image
Hpbr in reply toSlowDragon

Thanks Slow Dragon. That's really interesting.

Hillwoman profile image
Hillwoman

A very interesting and important paper, thanks for posting.

On a tangential and personal point, I would love to know why some people with extensive nerve damage from hypo (and/or PA and B12d) nevertheless 'fail' these electrophysiological tests repeatedly. As a consequence, I was told my paraesthesia and the large areas which became permanently numb were "all in my head", despite the stubbed toes, cuts, burns, bruises, poor balance, etc.

Hpbr profile image
Hpbr in reply toHillwoman

It really pains me when the stock response is "it's all in your head". It's demeaning and disrespectful. What it does mean is that the investigator has not found the cause. Or they haven't performed the right test. Why don't they just say "they don't know". It's candid and more honest surely. Yet another thing to grind my gears.

Hillwoman profile image
Hillwoman in reply toHpbr

Absolutely! I too would have more respect for this profession if its individual members could just admit, "We're sorry, but we don't know what is going with you and we don't yet have the tools to find out." As it is, treating the patient as an affront to their knowledge and authority contravenes the basic principles of ethical conduct. It makes me very angry, but the profession hasn't changed its stance in over forty years of ill-health.

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