Peripheral Neuropathy

[beaton]

My GP is the only one treating me these days. Thankfully we have sorted my T3 dose so everything is getting better in that area.

I had a brain scan for peripheral neuropathy,which came back clear,so he didn't know what was causing my symptoms. (pins and needles and numbness in feet)

Does anyone else have this?

[shaws Administrator]

I am glad your scan was all clear.

Maybe your pins/needles could be a slight disc degeneration at the top of your spine. Your GP should request a neck X-ray.

[beaton in reply to shaws]

Thank you Shaws,interesting,I do have pain in my neck and shoulders and in the SI joints. :/

[loueldhen]

I lost contact with my toes a couple of years ago - GP's response was to do a diabetes test but that was clear. I had been on T4 (100mcg) about 5 years at this point. 18 months later stopped taking T4 in desperate attempt to resolve muscle pain/weakness and had some return of sensation in my toes. But still not back to normal.

Whilst trying to diagnose what turned out to be largely T4 side effects I had neuropathy tests on my feet at Kings. They place a stimulus and measure the response. Apparently my nerves are in tact and work so they couldn't explain the numbness. Had a spinal MRI at same time nothing there either. I'd love to know the cause and better still resolve it. I think there's hope seeing as they 'passed their tests'.

In reading about B12 I note it says low levels can cause toe/feet tingling. I haven't had my B12 measured yet so don't know if this is an issue for me.

I'v just started T3.

Good luck and keep your toes safe.

[beaton in reply to loueldhen]

Hi Louelhen, I've been on T3 only for a couple of years, (first T4 then combo.) I did ask about B12,was tested a year ago and told it was ok. (?)

[greygoose in reply to beaton]

Never accept 'OK' as a diagnosis! Insist on seeing the numbers. Doctors think that anything in range is 'OK'. It isn't. Your level should be up the top somewhere, around 800.

Another possibility is low magnesium.

Hugs, Grey

[Jackie]

Hi Mine is diabetes. However, it started well before the diabetes.

Jackie

[beaton]

Thanks Jackie, I was checked for that. Looks like I'm running out of options.xx

[Hidden]

Hi Beaton - sorry I missed this post of yours before. As you know we share many symptoms and are both very drug intolerant. I too saw a neurologist who diagnosed me with a progressive small fibre neuropathy and I will have MRI and more intensive nerve conduction tests in a few weeks time - including a complext test to find out whether my SFN is immune mediated as they suspect.

I've never seen an endo and have been on Levo (between 100 -150mcg) for well over a decade. I had my thyroid bloods checked again a month ago and they were same as usual - a supressed TSH (always under 1 now) and low end of normal FT4. They didn't check my FT3 as far as I know.

Both my GPs are satisfied that the neuropathy isn't thyroid related as they feel my Hashi's is well managed presently. If nothing flags up and I'm told my SFN is idiopathic then I plan to address it as a possible thyroid/ Levo problem and demand to switch to NTD - tell them that if they won't I will try it myself on my own.

I'm not sure what age you are but I'm post meno too at 51? I also suffer from deep chills of the type you described recently followed by soaring heat - but I no longer sweat much at all - even after exercise. Do you get dry eyes more mouth at all? If so have you considered Sjogren's Syndrome?

Twitchy

[beaton in reply to Hidden]

Thanks Twichy,I'll re read this and look into what you have said.xx

[beaton in reply to Hidden]

Thanks Twichy,I'll re read this and look into what you have said.xx