NICE and B12: Here's hoping that the combination... - Thyroid UK

Thyroid UK

141,244 members166,489 posts

NICE and B12

helvella profile image
helvellaAdministrator
6 Replies

Here's hoping that the combination of thyroid and B12 guidelines from NICE reaps its potential to help a very large number of people.

Well done to the PAS people.

WE’VE DONE IT!

Today (17th October) we received an email from the Director of Guidelines at the National Institute for Health and Care Excellence (NICE). They have been formally requested by NHS England to produce a Guideline on the Diagnosis and Management of Pernicious Anaemia.

This decision fulfills the main aim of the Society which was to get the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed. The NICE Guideline will hopefully achieve this aim.

pernicious-anaemia-society....

Written by
helvella profile image
helvella
Administrator
To view profiles and participate in discussions please or .
Read more about...
6 Replies
crimple profile image
crimple

This is really great news for those that suffer from PA. Too late for my Dad who was on monthly B12 injections but in recent years reduced to 3 monthly which resulted in B12 levels well below 500, so he now has severe neuropathy. Lets hope its not too long before things improve for PA sufferers and that thyroid sufferers get similar better treatment from NHS from better NICE guidelines.

Angel_of_the_North profile image
Angel_of_the_North in reply tocrimple

Same here. They were determined that my Dad had dementia and wouldn't even test his B12 (even though his twin was having injections). By the time he was tested it was too late to reverse the damage.

JGBH profile image
JGBH

Thank you for this post and link helvella. At long last... Indeed congratulation to Martyn Hooper and his team.

However it will take NICE 3 years.... so I doubt any GP or other medical professional will change their ignorant and obtuse minds just yet! But progress...

Foggyme profile image
Foggyme

Yes...it's fantastic news...echo your thoughts helvella . Here's hoping that NICE comes up with 'the goods' for our 'hypo' and 'hyper' pals too.

Fingers crossed for us both...from your deficient friends over in the PAS forum 🤞xx

JGBH profile image
JGBH in reply toFoggyme

Indeed hope at last.... Hooray!

lady_eve profile image
lady_eve

Great news.

Not what you're looking for?

You may also like...

ME exercise therapy guidance scapped by Health watchdog Nice

ME exercise therapy guidance scapped by Health watchdog Nice Victory for...
helvella profile image
Administrator

Only One Chance - B12 deficiency

Recommended article on the Pernicious Anaemia Society website. Quite an easy read and very much...
helvella profile image
Administrator

Patient Rights, Choice and Autonomy - A collection of references and information

Medical Ethics – Seems only to apply if patients actually know about it………….....
Charlie-Farley profile image

New NICE Guideline - Thyroid cancer: assessment and management

Have not looked at it at all. Thyroid cancer: assessment and management NICE...
helvella profile image
Administrator

B12 advice needed

Hi everyone. I posted a while back and you were all so helpful. I've taken a lot of advice from...
crabapple1 profile image

Moderation team

See all
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.